Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Welcome, Betty. Don't worry, we're all pissed off sometimes (and worse )! Sorry for your losses.
I'm feeling a bit better today, I think I was just SO hopeful after seeing Prof Q, and thought she would magically solve all my problems. Two BFN cycles has taken the shine off. One more cycle to go before review. Trying to focus on the good/fun things I can do whilst childless. Still feel 'odd', physically and emotionally. If I hadn't had period and bfn, I'd be wondering...
Feel like going back to childhood education 'Birds and Bees' books, outraged, and denouncing them as mythical. No, seriously, where do babies come from? I've tried that; doesn't work!!!!

Hey Betty welcome! Please don't worry about swearing here! I might have used the occasional expletive to illustrate my point...

Baking you're right of course, I can get them both concurrently. That makes me feel better, as I'm on CD3 now, so can plan to attend in about 3 weeks time.

Right, need to kick my lazy arse out of bed and get going with job seeking. "Hello, my name is Tanny and I want a job so I can get upduffed and bugger off on maternity leave!"

Welcome Betty, don't worry about pissed... I have been known to have a potty mouth!

I feel decidedly pre-menstrual... just wish AF would show her face so I can get on with tracking ovulation to make my appointment...

Hey all. Just checking in. I'm 13dpo and testing tomorrow morning to see if the progesterone and aspirin has worked its magic. I'm not particularly hopeful. Ive got sore boobs and am tired and stuff but on prog that's normal right?

Hope you are all ok xxx

hi guys and hello new ones. sorry to find you all on here...
my scan showed a small clot/retained product. can't be sure but more likely a clot and will pass itself. rescan next week. HATE LIMBO LAND. but i suppose is better than - u def need a d and c an theres a lot left...
I've booked to see mr shehata but appt not till july
till then going to try chill out (!?) and not obsess too much. I'm not sure if I'm at the start of my journey or next time will be ok...but either way I'm gonna need a lot of emotional strength to get me through it so i need to try keep it together at least while not tic

sorry to ramble on about me.....

seasalt keep us posted!
jbrd - hope ur finding being back at work is OK
baking - not long to go for u ;).

Wow this is quite a chatty thread. Going to take me a while to get to know you all. betty sounds like we have had v similar experiences. I found the rm clinic a bit of a let down. I suppose I was wsihing they would find something, but they didn't. So strange hoping for a problem to be found.

Anyone have any experience with getting hypothyroidism sorted out? Boooked in with gp, have heard different stories about how long it can take to sort.

Also 2nd period after last mc. Now about 4 days late. Have been using contraception methods you are warned against in school. Don't feel even remotely upduffed. Should I test anyways?

Good luck for tomorrow seasalt piss the shit out of that stick

Negative. :(

I expected it, but its always shitty isn't it.

Seasalt bums.

It is what it is.

I am hoping the progesterone doesn't delay AF, which is due tomorrow.

I need it to come on time so I ovulate when I think I will, cos DH is away with work the last week of May and the first week of June. He's back the weekend in between, which is when I should ovulate! So fingers crossed AF turns up tomorrow!

Sorry seasalt. Let us know when af arrives interesting to l ow re the progesterone!
I hate that planning on bd around life events! I always feel like a nutter but always do it!

I will report back!

Handed in my resignation today. Fear has set in.

Tanny---Oh are u resigning? Are u planning on taking time
Out from work or looking for another job? I'm thinking of doing same but not sure yet! Well done for being brave

Good luck, Tanny, sounds like a break from the stress will do you good. What do you do, if you don't mind me asking?

I'm looking for another job. I've been off on sick leave since Feb, and work is the one shitty thing that I have control over changing...

I specialise in peer support. Specifically in mental health and substance misuse, so I train and support people to use their life experiences to support others. Not dissimilar to MN really!

I'd love to have a complete change of career, but the timing is all wrong, so it's more of the same.

Sorry it was the wrong result Seasalt. I can also symphathise with having to work around DH's job. Mine works away frequently so it can be tricky - for this time around he had to wake we when he got home at 1am to DTD!

Good luck with the job search Tanny. Hopefully you will find an organisation where you can start to enjoy the role again.

Hi everyone. I am a total newbie from Ireland. I have just had my 5th miscarriage in a row we got to 5 months this time and lost our little boy last week. He was born after induction this week and we buried him today. Tests are gone away but I am frantically assessing every single thing I did or said or ate. What if I killed him? What if it was something I did that was preventable? How do you all keep going every day?? I can't talk to friends even those on an Irish mums group I pop into... I just feel so lost.

Amy, sorry for your loses. Rest assured you didn't kill your babies. Heroin addicts and all sorts have babies (the b*stards). If all is well, all will be well. That isn't to say that there isn't a discoverable reason, probably treatable, for your losses. I strongly advise you to seek testing for RMC. Can you access this this where you live? I would think your gp would be able to set the ball rolling with some blood tests. Good luck.

In the same vein (as it were), has anyone else been tested for coeliac disease? Is it part of the standard auto immune tests? Will be off to badger my gp about it otherwise.

aoife POAS!

seasalt sorry it was BFN.

tanny well done you. Controlling the things you can control is a positive step. Hope there is a fab job out there with your name on it ( sod's law as soon as you get one you'll get a sticky bean)

amy welcome. I'm so sorry to hear about your losses. Absolutely heartbreaking to get so far and lose your son It's normal to search obsessively for answers but this was not your fault It's very unlikely to be anything you did or didn't do. If it turns out there is some disease causing your losses that is no more your fault than it would be if you had a dodgy heart or diabetes, or kidney failure.

just I don't think coeliac tests would be done as standard. Someone on another MC thread floated the idea of gluten being responsible for wider immune issues in the last few days....can't hurt to check it out.

amy you must be in bits, but unless you were throwing yourself off tall buildings repeatedly, your losses are not your fault. Look into rm clinics (tho I shudder to think how much it will cost). If you need to pay, you might want to look at some of the private options in the uk. You will get through this. It will drain every ounce of your strength, but you will get through. As soon as you are up for it start booking in things you like to do, like seeing certain friends and family, going to the theatre, seeing a gig. I found it difficult to motivate myself to get out, but booking things in advancce seemed to work, and I was always glad I went.

seasalt sorry for the bfn. Is it a definite no, seeing as af hasn't turned up yet.

Still no af for me. Will poas tomorrow. Think I will use the usual disabled loo in work. The number of sticks I have left in that bin, the cleaners must think everyone in the place is pregnant.

Amy, I'm so very sorry to hear you have lost your little one. I wish it wasn't so.

Aoifebelle I don't held great hope by it tbh, but at least it's something. Mcs all been different, so not sure Prof Q is next step after clinic although thought about and called for info. Sticking with ttc for now with zoombaby ov sticks but for first time I can really feel the panic rising. Hard to accept not being in control of any of it.

Tanny good luck with job search. Time felt right for a major change after 7 years in a job I had loved to start with but grew to dread. It was all ok in the end and so glad I left- hope will be a positive leap for you too :)

Hi all

Seems like the thread is getting active again! Hello to new joiners and sorry you find yourself here.

tanny wow a brave step, but certainly the right one. We all keep hanging on to our jobs in light of the elusive pg but maybe it's better just to move on and start things fresh.

seasalt sorry about bfn. aoife poas !!

baking I had a question on prof q test. Does the uterine biopsy cover two separate issues? NK cells and uterine lining? I remember you mentioning something about your uterine lining decidualising at a normal rate. Since I already have my blood NK cells results and been suggested prof Q protocol, I am deciding the added benefit from seeing her:

1. The benefits from uterine biopsy that may aid implantation in next pg (you fell pg straight after)
2. Any other testing she is doing e.g checking of uterine lining decidualising ????

Thanks for your help.

And AF is here!! on day 28 so back on track...

In 2 weeks shall track ovulation to make my Prof Q appointment. Hooray!

Yes its a definite no, Progesterone delays AF so it wont show til I stop the cyclogest. Which I've done. I'm hoping it arrives today or tomorrow.

triple she's looking for 2 issues - number of NK cells as a percentage of the normal cells lining the uterus, and how the tissue behaves when grown in the lab which is supposed to be representative of how well it decidualises, plus she measures lining thickness. She also does a 'scratch' which is supposed to stimulate a healing response that improves outcomes for the next few cycles.