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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

995 replies

bakingtins · 19/01/2014 07:41

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

OP posts:
Ruggle · 20/01/2014 17:42

Downstairs, I don't think an early scan would reassure me at all...but also if things happen to go wrong I would prefer to let nature take its course, and it would be much harder for me to deal with the sickness and nausea for several weeks knowing that it was all for nothing. So, I'm just going to wait for my 12 week scan, bang on 12 weeks, next Thursday, and go from there.

LateBloomer414 · 20/01/2014 21:53

Nearly, so glad you had reassurance today. It is so stressful. Squiz, your paranoia is normal and completely understandable.

Tiny, we are now officially Ladies of a Certain Vintage. Let's keep it our secret that it's the ' 73 vintage! I am struggling with 40, tbh . I think I wouldn't feel so insecure about it if is had successful pregnancies. I know that must sound odd, but the clock just ticks so much louder now it seems. Sigh Confused

BonnieBeaumont · 20/01/2014 21:55

ac73 I can't begin to imagine what you have been through. I'm so very, very sorry. x

bakingtins · 20/01/2014 21:59

nearly glad to hear it's going well Smile

I told everyone at work about the baby on Friday and they have been so lovely Blush I even got a "Nappy Days are here again" cake brought in today. Ahh.

OP posts:
Justonemoretime · 21/01/2014 07:25

Morning,
Congrats to pg ladies, it sounds like its all going in the right direction. Good luck for tomorrow, Squiz.
I was wondering, a few ladies have made reference to having been told they have 'good' fertility. I presume that they've had a test for their FSH levels? I don't think I've had that test? Is it a routine one? If they didn't do it, do you think its because they weren't concerned about my 'sell by' date? I'm 37 and paranoid something has been missed.

bakingtins · 21/01/2014 07:49

I had day 2 FSH/LH and AMH (antimullerian hormone) which is an indicator of ovarian reserve. I was 38 at the time.
The other thing you might mean is being told you are "super fertile" which at the moment seems to be a theory rather than something that can be tested for. It means you get pregnant easily but allow substandard embryos to implant which subsequently miscarry.

OP posts:
tannyLoo · 21/01/2014 07:50

Hi Just, I am one of them. Yes, I was tested for FSH. You'll know if you've had it because they draw blood around the beginning of af, at least that's what they did with me.
I'm 41 so geriatric in the eyes of obs/gynae. I don't know if that made a difference though.

I'm currently in the 2ww and symptom spotting like a crazy lady. Hopeful but this is the easy bit...

tannyLoo · 21/01/2014 07:54

Baking cross post! Nicely summarised Grin . Still feels like a fob off even if it fits my pattern. I do feel better about trying again as I feel more prepared.

Justonemoretime · 21/01/2014 07:54

Thanks Ladies, I've never had any of the those tests as far as I know, and no-one has mentioned the super fertility thing. I've got pg within 3 cycles every time, so maybe they don't think I've go an issue either way.
hmmmm. Just finished another short AF, 3 days. Sad

squizita · 21/01/2014 08:03

Just Raj Rai based his assessment on the fact that if I do the OV POAS thing (or even count to 13 days) I always get pg within 1-2 months, usually 1. He said you don't need tests to work that one out and congratulated my smug husband on his highly mobile sperm. He mentioned superfertility theory and said at that rate there might be some 'poor eggs' getting through but that they would be randoms not a pattern (based on my sticky blood).

Baking how sweet of your colleagues! :)

Tanny FX for the 2ww.

Felt sick as a dog this morning. Smile

Notgivingup1 · 21/01/2014 11:04

just on my way to St Mary's to talk about my super short AFs and hoping for a mid cycle scan to check lining as never had one. To top it all off feeling a bladder infection coming on. Damn SMEP! On the super fertility thing - at the time was told I would fit the profile but that the research was only theory and in conclusive. So it was left at that. Good luck for tomorrow squiz - totally totally understand what you mean about scans. I hate them but tend to calm down when I am in there. They will totally understand I am sure.

Hi to everyone else

butterfly86 · 21/01/2014 17:56

nearly good news about your scan :)

Hi to everyone else!

Ive been to the midwife today and she listened to the heartbeat even though I had a scan last week it was still reassuring to hear it :) I also think I've been feeling little movement's the last couple of days nothing definite but tapping here and there.

Millysdream · 21/01/2014 18:35

New to this so don't know the lingo so bear with me:) Am 31, no children, 3 miscarriages all between 6-8 weeks. Got married dec 2012 and had miscarriages in jan, May and august. Am currently 7 weeks pregnant. Heartbeat seen- let's hope this is a sticky bean! Going to recurrent miscarriage appointment on Monday. Been waiting for this appointment for ages! Only had a few basic blood tests and hubby had sperm checked and all ok so far.

Will they still do miscarriage tests on me if I am pregnant or will they just support me with this pregnancy?

Waited so long I will be gutted if I miscarry again and have to wait another 4 months for tests.

Wishing everyone health and happiness xxc

Millysdream · 21/01/2014 18:36

Any advice greatly received as all this is new to me and the last year has been a blurr

nearlyreadytopop · 21/01/2014 18:40

hi milly
I'm not sure about the tests but just wanted to say hello and welcome. There are a few of us around the 7/8 week mark and it so good to come here and share worriesSmile

Lancashire21 · 21/01/2014 19:10

Baking - glad things are going well. Hello troops x
Wondered if I could ask if anyone has heard much on possible recurrent tubal pregnancies?
Basically I have just (6.30) had my phone chat with Prof Q following my scrape tests in Coventry which all came back fine. So much so that she said my womb lining was better than she'd expect for someone like me who has had a lot of early losses. Gave rise to thought that my pregnancies may have been tubal. But so many?! She didn't know. Wants me to go on day 21 progesterone & then to explore IVF. Bloody hell
Have never explored it as I conceive on my own. And I'm 41 so this is a total nightmare. This is the closest I have felt to giving up in the last horrid six years.

squizita · 21/01/2014 20:16

Not hope st Marys went well!

butterfly great to hear you've had another reassuring scan!

Milly they may be able to do one clotting test from what I understand - but most tests are done not pregnant. However you can ask for 'TLC' such as reassurance scans perhaps?

Lancashire sorry don't know anything about that. How awfully stressful for you! Hope prof Q sorts it for you.

squizita · 21/01/2014 20:21

...ps. Am pooping my pants (metaphorically. Really the hcg is slowing that kind of thing). Well i'll know in 24 hr...

Justonemoretime · 21/01/2014 20:50

Squiz, good luck for tomorrow. FX

Lancs, sorry you're feeling down and frustrated. Horrid when you pin so much hope on getting an answer, only to find you have yet another hurdle! Hope you get some answers/action soon.

Welcome Milly, sorry you find yourself here, and congratulations on your latest pg. Which RMC clinic are you going to? When I was with St Marys the message seemed to be that if you were pg you should let it play out (you might not need them) and then come back if you (sadly) do need them again. But other clinics might be different. I should think you are entitled to an early scan at any rate and maybe they can do some blood work. St Marys is the only place that does the TEG (sticky blood/clotting) test, which is the one they repeat when you're pg, so if you're with another clinic they wouldn't offer it either way. Best of luck with it.

Thanks for all the advice this morning about the fertility testing - I'm paranoid something obvious has been missed, but I guess that if I can get pg reasonably quickly up 'til now, that's why they didn't do it. AF only 3 days again, so more worry (from me - Prof Regan said it was fine). Must chill -the f*ck-- out.

Millysdream · 21/01/2014 21:00

I am going to st Mary's manchester. I just worry that if I miscarry again I will be worse off that before as I will be back to square one on the waiting list. So frustrating! X

Millysdream · 21/01/2014 21:02

I am going to st Mary's manchester. I just worry that if I miscarry again I will be worse off that before as I will be back to square one on the waiting list. So frustrating! X

bakingtins · 22/01/2014 07:44

butterfly glad you heard a HB, it's a lovely moment.

lancashire I'm sorry you didn't get your answer. I don't know about recurrent tubal pregnancies, always thought ectopics (is that what she meant?) were a random thing. Have you ever had symptoms of an ectopic or alternatively a scan proving sac/embryo is in the womb? We had all our hopes pinned on that phone call, and had pretty much decided to call it a day if she had no answers, so I get how you must feel. I don't know where we would have gone from there. Take a while to let it sink in before you decide on next steps. Flowers

milly welcome! I suspect the clinic won't be able to do much in the way of testing, but they can and should support you with extra scans and TLC in this pregnancy. You should also be in their system so if you need their help in future you are not back on the waiting lists.

not hope your appointment went well.

squiz good luck, everything crossed for you.

OP posts:
tannyLoo · 22/01/2014 08:02

Squiz good luck today.

TinyTear · 22/01/2014 08:33

Good luck Squiz.
What time are you going?

JBrd · 22/01/2014 09:05

Thinking of you, squiz, good luck!