Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Baking that clip sums up everything! I am seriously tempted to send it round some of my friends its hard cause you know they are trying to help. I will bear the video in mind for how I am with one of my friends going through a really tough time at the moment.

Thanks tanny, I haven't actually moved from the sofa since I got home... nice to give in to the feelings though.

Fireman - sorry for your news. Take care of yourself. Sofa, tea and comfy pants has helped me through.

hi all, just jumping in to this thread. I've been on mumsnet awhile, but have only just found this board. I've only read half the thread, as I can't figure out how to bookmark where I was, but will catch up in a bit.

I had a miscarriage at 7 weeks, then a MMC at my 12 weeks scan (growth stopped at 10 weeks), a healthy DS who is now 2.5 and I have since had another MMC (scan at 8 weeks showed all was well and a routine scan at 10 weeks show baby had died at 9 weeks) and have just had another "natural" miscarriage at 6 weeks.

I have been really fed up and not sure what next steps to take. Blood tests from NHS came back normal, just been to a private gynae and he did an internal scan and said all looked normal.

I am about to ovulate so I guess I'll be in the 2WW soon, so if I get pregnant this month I'll be on asprin and progesterone.

I couldn't cope after my last MMC, esp since an 8 week scan showed all was well. I really thought I was in the clear.

Glad to have found this support!

Keenoonvino - very sorry for your losses. You will find this a great source of support and some of the most comprehensive info anywhere on recurrent miscarriage. It's one of the meanest things in life, but you are not alone.

Keeno Hi. So sorry to hear about your losses. Hope you find it reassuring and helpful here, I've found it amazingly kind and supportive.

This 1 bruise is daft. It's THE SIZE OF MY PALM. Like purple 3 or 4 inches. Slight bump (which interestingly follows the shape of my belt- perhaps it dug in?). Gonna try my uber flabby thigh tomorrow: seeing as only 1/2 the tum will be in action jab-wise for at least a week, don't have much choice!

TinyTear she sounds an absolute pain in the arse. Some people really just speak without thinking about it! I'd be tempted to cut her off to!

squiz I have had a increase in CM to so maybe that's a sign it's normal at this stage for us! I still do the odd panic though to. How are you coping with tiredness? Mine is overwhelming at the moment!

Hi Kee welcome and sorry to see you here. It's a great place though, full of support and lovely ladies. :)

Well a midwife FINALLY CALLED!! It took me emailing a complaint yesterday, she was very apologetic though. Picked up notes and have booking in next friday. Hopefully I make it to the 12 week scan.

Ouch squiz that sounds evil! Is one allowed to use arnica cream in pregnancy as that might help?
keeno hugs and welcome. It just totally wears you down sometimes but hope you can get some comfort here.
baking I am sending positive vibes for your Dad. Hope you are ok as can be. It's horrid waiting for results.
fireman I am really sorry. Sending you a big hug. Like everyone has said, you are completely allowed to feel sad and grieve. I've had 4 ERPCs and I have to say they really are fine. It's never pleasant having an op but it was also the first time I'd had a GA and was worried but it's actually quite nice being put to sleep! I never had much pain after and did bleed on & off for 2 weeks. Then got period within 6 weeks. Hope it's all straightforward for you.

Can I ask a really silly question. Think I need antibiotics for this bladder infection as it's not getting better & I've tried everything. In 2WW and don't have much hope of a BFP but...is it ok to take antibiotics do you think? Obviously I will tell GP but so paranoid about EVERYthing.

Jbrd fx for tomorrow!

keeno welcome - glad you decided to join us.

downstairs 'bout time too!

Aha... top tip from Stockport NHS here www.stockport.nhs.uk/documents/PIL/34646_Med44.pdf. The drop on the end of the needle can cause bruising. They also spurt a bit as they retract (which I have been doing to remove the needle to avoid wasting precious clexane) - might explain!

Welcome Keeno, as the others have said, sorry you find yourself here. Its a really good place to get support and advice, and feel like you're not facing things alone.

Downstairs, glad you finally got her attention.

Squiz I have been getting ma-hoosive bruises from acupuncture recently - I think sometimes you can just nick a vein under the skin. Shocking shades of purple, though! Owch! I showed one to my mum, I think it quite upset her :(

Fireman, So sorry for your sad news today. I am the (very sad) Queen of gyne ops (6 in the last 2 and a half years) and they are really nothing to worry about. You will feel woozy and as has been said, you will awake feeling as though no time has passed at all. You may be a little sore but get them to hit you with the pain killers and then get a good nights sleep. Take it easy with a good film/book/homes under the hammer and then resume normal life when you are ready. You will probably bleed for a couple of weeks, which will start heavy and reduce to spotting. If more than 5 weeks, go back to your GP. You should get a BFN within a couple of weeks. Your AF should return in about 6 weeks, maybe as little as 4 (my AF after most recent ERPC with U/S guidance was bang on 28 days). Any questions, don't hesitate to ask. Enjoy the morphine. In my experience, you will feel physically better after a couple of days, too, as the pg symptoms will fade (sad I know but you will feel more like yourself again).

Baking FX for good news about your Dad. Its horrible and I feel for you. Hopefully, what ever the issue is, it will be treatable (even better, not be an issue at all!).

Hi Keeno, sorry to see you here but as others have said you'll get huge support and knowledge here, hopefully you'll get a sticky one soon xx

And thanks for all the supportive messages, Just I really appreciate that, I don't feel as scared now, as my DS keeps getting me up at 5am these days I'm now looking forward to the sleep! Can't actually wait for the pg symptoms to leave.

Horay for midwife finally calling downstairs!

Hi all, sorry i've been quite for a while.
(Me: mmc 8 weeks 2011, 1 dd 2012, mc 5 weeks 2012, mmc 12 weeks, mc 5 weeks, both 2013, 5 weeks 2014. Diagnosed sticky blood.)

to baking keeno and fireman

Great news on the hb squiz! A bit further up thread you mentioned something about your single positive result, and thrombo and antibodies, so being on clexane and aspirin. You've said before about us having the same kind of sticky blood, but i'm only on aspirin (and a bit skeptical about the medical advice i've had). Do you mind me asking a bit more about what tests/results you've had/ what you were referring to? Sorry if its cheeky of me to ask, just ignore if you din't feel like sharing! Am just desperate for any guidance.

I cant remember who it was that recommended Prof Regans book to me, but thank you whoever it was! Its a really useful book!

quiet not quite. Duh.

Not yes, there are antibiotics that are safe to take when pg. I've just had some for a bladder infection. Just tell your GP, it should not be a problem.

There is a bit of a poas party on the ttc thread this morning.

jbrd will let you know how hers has gone.

I got a bfp. Very faint but only 10 dpo. Try, try, try again...

Tanny, a line is a line. :)

tentative congrats Tanny

Bobsmum I had thyroid and all the sticky bloods tested (due to my partial molar, it's unlikely I have a repeating genetic issue as that is so rare and random and happens when a normal egg mutates). But I had them at St Mary's and I understand their equipment is v sensitive.

Tanny the line would be faint at 10 DPO but it's still a line! :)

Just yes I think it must have been a little blood vessel. Tried in my thigh today - injection left a drop of blood (heard that's normal) but didn't hurt much bar the usual burn so fx. Also I think my belt line aggravated it yesterday so the thigh is just covered by trouser fabric or tights.

Oh, also Bobs I discovered that I kind of have a condition 'and a half'! Raj Rai didn't go into it in detail- just mentioned it as if it wasn't a problem- I think because the treatment for the anticardiolipin antibodies was the same as for my 'very slightly raised' thrombolipin so I was more than covered. This was what the 'in pregnancy' consultant said on Weds. But even so, I've not heard of any of the bigger centres just giving anyone aspirin these days for clotting so deffo query it!

Well, I am joining tanny today - it's a BFP for me, too.

I am happy (mainly relieved that I won't have to do SMEP again next month), but mainly feel numb and a bit scared. GP appointment on Monday to get the referrals and drugs going (need heparin and progesterone, and am thinking of starting aspirin, too...).

DH's comment, when I told him, pretty much sums it up: 'Here we go again...'

But for now, I am pregnant

Hi everyone. I had consultant appointment and they were surprised I'd never had any testing before (6 losses) so they took a load of blood from me to test for whole range of things. Also took some from DH. So hopefully may be getting somewhere. No results from erpc testing though unfortunately.

Last weekend I thought I was having a chemical pregnancy but now don't know what's going on! Got faint bfp last fri and sat then bfn Sunday but bfp every day since! Clearblue conception indicator thing still only saying 1-2 though which concerns me. Does anyone know if taking progesterone can delay the inevitable in that if you're going to lose it then it is sustained a bit longer by the progesterone?

Finding it all very stressful at the moment, pregnancy number 8 but only 1DC.

Tanny I hope you get a sticky one!

JBird Woop! :) FX for you.

Katie Sorry to hear of your losses. The ERPC testing- was that not back yet or inconclusive? It can take a couple of months. Do hope the tests provide some answers.
Sorry I don't know much about the pregnancy situation - the strength of urine etc' can vary. Perhaps speak to your GP about 48hr blood tests? For peace of mind? FX for you.

Congrats Jbird, my DH pretty much says the same thing every time I show him a bfp!

Thanks for the advice squizita, the erpc results just weren't back despite it being 9 weeks ago and that was the initial point of the appointment!

Congratulations Jbrid and Tanny!

Katie mine took about 8 or 9 weeks too. :/ Apparently they sometimes have to grow the cells so it can take ages. Frustrating and worrying. I suppose the best possible outcome to hope for is something "one off" because it gives an answer but isn't going to happen again.

Bruise Watch: today's is the size of a dot made by a chubby felt tip pen. Tiny. Phew.