Recurrent miscarriage support - tests, treatment, trying again - thread 8

[Bakingtins]

Welcome everyone, pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of company, information, moral support, tea or sympathy.

Can I suggest we start page 1 with a recap of where we are all up to, because my fuddled head can't keep track?

Thanks squiz you know what it's like after recurrent mc anything other than clear cm and the anxiety levels shoot up, I've just bitten poor dh head off he said she prob just caught your cervix when she did the scan I said yeah but how mant times have we said it might be this it might be that and it hasnt been. To be honest if I wasn't using the pessaries I prob wouldn't notice it but I've seen it now I'm also paranoid my ms isn't as bad, I said this yesterday then by last night I was ill with it. Last night I dreamt I was 29 weeks pg I had a bump it was lovely I hope that's a good sign....

Keep us posted butterfly, hoping for the best!

Squiz, I think I missed this but what did you ultimately decide about TTC over Christmas?

Baking, are you well? Hoping all is still normal.

butterfly hugs, crossing everything for you

Washed my hair tonight and at this rate I'm going to end up bald will make appointment to see doctor

butterfly hope it has settled down and your dream was prophetic.

Purple I lost lots of hair after having my boys but didn't notice it after MC When you are pregnant your hair all stays in a resting phase so gets nice and thick, then as the hormone levels drop they reach the end of the hair cycle en masse and all fall out (well, not all, but it feels like it) I don't think it was that noticeable to anyone but me, I didn't get bald patches or anything.

I'm ok, thanks for asking, LB . Scan anxiety starting to build up again for Thursday. Then I have booked an OSCAR screen for the following week. Surely I've had my share of bad luck and I won't get this far and then find out there is some awful genetic defect....

One more reason I'd like to be pregnant: luxury hair. But I never considered the fact that it wouldn't stay that way. How unfair!
Sending good relaxing stress free vibes to you Baking- Thursday here we come!

It seems to have settled down getting a lot of twinges in my cervix so now I'm worrying about that, I've got strong symptoms so I'm hanging on to that I'm surviving on crumpets and not much else at the minute feeling really sick.

Baking fingers crossed for thursday will this be your 12 week scan?

Butterfly, I'm not sure this will help as I know everyone is different. But I had light-moderate bleeding for 5 days during my current pregnancy - at around the 8-9 week mark. I was convinced it was the beginning of the end, but the cramping never came and my pregnancy symptoms remained, which wasn't the case when I was miscarrying. My consultant did a scan and everything was fine, much to my amazement. She said it's not normal to bleed during pregnancy but it is surprisingly common. I was also on progesterone at the time, although I'm also on blood thinning meds which might have contributed.

If your symptoms are still strong and there's no bad cramping and the bleeding is very light I would try not to think the worst. I know it's impossible though. I hope it stops soon so you can stop worrying.

Thank you Guppie there has been nothing today thank goodness just the twinges, I have another scan in a week so if everything stays as it is I'll just wait until then. I wonder if the worrying ever stops...

Butterfly thinking of you!! Hope it's a mere twing and will pass with no harm done.

Baking fingers crossed!

Late Gonna bd in a "roughly the right dates" way this month. Trying but not manic poas trying. If AF doesn't visit mid-december, will have a final hurrah of wine and oozy cheese over Xmas. If not, will have mineral water and needles jabbed in my tum, and be very grateful!

Duh... If AF DOES visit I will booze, if not, I will jab!!!

That is roughly the Bloomer plan as well- unpasteurized everything until Boxing Day really when ov starts. Though we'll be in the US over Christmas and it might be hard to find really oozy cheese. Guess I'll have to hit the booze extra hard .

So when I first got up this morning and all the pessary mess came out (sorry if tmi) a tiny little brown almost black thing came with it I wouldn't even say a clot it was really small. I'm thinking either it's old and that's what caused the tinge the other day or it's the beginning of the end :(

butterfly if you have no cramps and no fresh blood, stay positive, lovely. We're sticking with the theory that the scan caused a little bleed that is now coming away.
Hang in there until your next scan. I know that is easier to tell someone else than to do for yourself.

I hope so Baking I've got a little ache mainly on the left side but I don't know if that's just stretchy pain. I don't think I could do this again if the worst is happening we have felt so much more positive after 2 good scans even though I know at 7 weeks we are far from out of the woods yet. I don't know wether to bother epu or just wait and see.

Butterfly if it's small and hard, as you say it very may well be just an old clot off your cervix irritated by the scans. The ache on the left side might also be the cyst: I have always had them and sonographers have always had a look and said "just your luteal cyst, quite normal". But, if you do have a one sided pain and are worried, a visit to an EPU might put your mind at rest?

Butterfly, excuse the detail but have you tried using the progesterone up the wrong 'un so to speak? I started doing mine that way because found they were causing irritation vaginally and there's much less mess. It just might be easier to see what's coming out when not mixed up with that. Considering your history though I'm sure they will scan you if you say you're bleeding a little bit to put your mind at rest. It's horrible to assume the worst and just have to get on with it.

I had my appointment with the consultant today about the recurring miscarriages... All in all, I'm feeling hesitantly positive about it - nothing major was found (as I suspected). She was very friendly and thorough, going through all the results with us in detail. DH and I are fine chromosomally, which is a relief. There are still some flags with my blood tests, pointing towards clotting issues, but this has been (and will be) covered by the heparin injections that I have to take once pg - nothing more that can/needs to be done about that, however, she will talk to the haematologist about additional aspirin.
My most recent mc was due to trisomy 2 - very rare, apparently, and in our case, a spontaneous event, so again nothing that can be done about it.
She has recommended that I take progesterone when falling pg the next time.

I feel a bit less anxious now, almost relieved - at least I did not get the worst news, i.e. that I couldn't have any more children. My age is most likely the main factor here, combined with a hefty portion of bad luck... Which I can accept, given that the tests have not brought up anything else. Of course it would have been great to be told 'You have XYZ, which we can treat with ABC to ensure a successful pregnancy', but hey-ho.

I think that I feel a bit more positive about starting to ttc again. I know there is no guarantee that it'll work, but trying to believe maybe the age statistics are going to be counter-balanced by the fact that I've had so many mcs now Here's hoping...

Jbrd that sounds fairly positive. It must be hard hearing what was wrong with the baby you lost, but at the same time if you have a reason for the MC that is not likely to recur that is hopeful for the future. Sounds like there will be a lot of thread TTCing in the next few months

Butterfly hope you are ok and that you've had no more worrying signs.

Picardy hoping that all is ticking along for you and no news is good news.

Thanks everyone it's so lovely to have your support when I'm having a little freak out :) squiz I never thought about the cyst but you could be right as a lot of the twinges I get are left sided.

Guppie I've wondered about using the back door but when the consultant origionally wrote out the prescription it said "pv" so I haven't dare do it the other way incase there's a reason why she wants me to use the front door it is really messy though and doesn't help the. knicker checking. I might ask though.
Thankfully I've had nothing else keeping everything crossed it was nothing.

JBrd great news about your results I know we always want there to be an answer but finding nothing is the best possible outcome. Good luck ttc I hope the treatment plan they have for you is just the little help you need :)

Thank you Baking. All quiet here. Have had some job/career news to tangle with... good news on the whole but obv needed a lot of thought and diplomatic handling at this particular time! I will keep my fingers crossed for you for tomorrow.

Butterfly, I had exactly the same thing yesterday, or the day before. No further bleeding or anything. I figure it's just cervix stuff iyswim.

JBrd, glad you are feeling tentatively positive. Sounds a bit like the outcome of my investigations.

Waves at everyone :)

hmm. I have the fear again about tomorrow. Will I ever look forward to a scan?
Have been keeping too busy and am now exhausted. I worked a long shift on Monday and then we had people round for a murder mystery evening, which was great fun but a late night. I was good for nothing yesterday. In other news, there is the patter of tiny feet in our house (will get it one way or another) as we have a new hedgehog! Name suggestions please, DH wants to call him Marvin which doesn't bode well if we ever get as far as baby naming!

Butterfly, it's worth asking if you're on them a while longer. Mine said vaginally too, but then when the consultant asked how I was getting on with them and I said they were causing some itching and were messy, he suggested inserting them the other way. I found it preferable.

Baking, I get very nervous before scans too. I guess it's tough to forget the ones that have gone wrong beforehand and natural we're trying to prepare for the worst, but that just increases the anxiety. Is this your 3 month one? I do think it must be the worst one because it's such a hurdle to get over for anyone who's had early miscarriages. I've got my 5 month scan in 3 weeks' time and I'll be nervous but possibly a bit less so because I felt the baby move yesterday so I'm hoping I get some little reassurances from it from here on in that it's still hanging in there. I'll be thinking of you but if all is well then I guarantee it'll give you a real boost to keep going :o) You have a hedgehog IN the house?! Something to look after is definitely good for easing the anxiety I think.

baking as part of my counselling I have been talking about coping mechanisms for during my next preg. I don't think the counsellor really understood that I can't imagine relaxing until the baby is in my arms. I will keep everything crossed for tomorrow. How many weeks are you now?
Marvin is a great hedgehog name
I had a pretty rubbish appointment with a locum gp yesterday. She really made me doubt why I want to see a specialist. In her opinion I should be happy with what the general gynae clinic advice of all tests are normal and no treatment for next time

Picardy that's what I hope it was touch wood everything seems ok now.

Guppie I'll mention it at my next app it must still be effective when using the other door if they told you to do it, do you find doing that way you don't have to lie down afterwards?

Baking it's understandable you are nervous we all get like that, will be keeping my fingers crossed for you tomorrow :) re the hedgehog name I would choose something shit like spike coz I've got no imagination haha.

Nearly stuff what the gp thinks she isn't in your shoes, you feel like you need to know you have explored every avenue then if it's all clear you know you've ruled it out doctors don't have a clue they've probably never heard of half of the private tests that are available, you do what you need to do.

My breakfast reappeared this morning so crumpets are probably off the menu...what am I going to eat now!

thanks butterfly my confidence is a bit shakey at the moment so I was beginning tp wonder if I am over reacting.
We have pretty much decided that we will see the specialist next week and then we are going to jump back on the ttc wagon.