Recurrent miscarriage support - tests, treatment, trying again - thread 8

[Bakingtins]

Welcome everyone, pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of company, information, moral support, tea or sympathy.

Can I suggest we start page 1 with a recap of where we are all up to, because my fuddled head can't keep track?

Have just been told by my hospital that I need a GP referral to the recurrent miscarriage consultant if I want to speak to him about embryo transfer - really? With my history? What a waste of time and money!

If you are already on his books ac why don't you try just contacting him directly? Do you have contact details for his secretary?

My usual guy has left :(. This is a different one who I have seen previously about 5 years ago. Will try to track him
down!

ac your file should have been passes over to whoever was replacing your consultant. A call to his secretary might be helpful in sorting it out.

Just saw on another thread that desperately has had a MMC confirmed and is having ERPC tomorrow
desperately if you are still reading this thread, you have all our sympathy and thoughts for tomorrow and we're here to handhold whilst you get some answers to why you have suffered so much and until you get to take a baby home.

nearly I think going out of your mind with worry is a problem I'm going through it now but seems the hospital don't agree. As I am not bleeding this time they don't seem to care.

squiz i'll be thinking of you next wednesday! I know don't... I've been reading the missed miscarriage thing is 1% but you read lots of stories on the internet about it. I can't relax, I am a nervous wreck!

desperatly if your reading this, so sorry to hear about your loss, please come back here when you are ready, we all understand how hard it is.

I got through today at work. One more day till I find out if the baby is OK (or if their is a baby) i am slowly losing the plot...

desperatly I am so sorry. It's just so horrible. Big hugs.

Wish I could take the anxiety away from the early pregnant ladies. Take each day at a time and for the moment you are all doing ok which has to be good.

In other rubbish news - we had our house broken into yesterday. Particularly delightful as we have just unpacked after months on renovations and builders had finally left. Taken all my jewellery and loads of other stuff. Happy days. Well SMEP has kind of taken a back seat! Luckily have apt at St Mary's next week to talk about my weird cycles.

Hello I don't know if anyone remembers me. I was here Nivember - December time when I fell pg. I'm now 11 weeks tomorrow. I've had three mc (April 12 7.5wks, dec12 11.5 wks mmc and May 13 6.5wks).

I've had a tough few weeks - hyperemesis. I've been in hospital on a drip for 5 days between Christmas and new year and on umpteen different meds for vomiting. Except now, it's getting less and less. Which is great except... Well we all know what it can mean don't we?

I have a reassurance scan booked for tomorrow lunchtime. Please please send me good wishes. I've found it so difficult being so sick as you keep thinking "I wish this would stop" and then you catch yourself and think "what on earth am I thinking?".

I'm sorry for gate crashing in like this. I am falling apart a bit tonight and I'm trying not to google as everything points to hyperemesis peeking at 10-11 weeks. Not stopping...

worry hope you get good news tomorrow. There will be a few of us having sleepless nights the next few days...

not sorry to hear about your break-in. It's horrible to think someone has invaded your home like that.

Sorry about the break in not I can't imagine how you feel. for you.

iworry i think a few of us are in that boat as baking says, let us know how it goes tomorrow, my fingers are crossed for you.

Desperately - thinking of you. So sorry.

Not - sorry about the break in.
Fx for everyone who has a scan tomorrow. Xxx

Desperately I am so sorry you are going through this again. We are here for commiserations and to listen.

Notgivingup ugh that is just rubbish, I am sorry. Of all the things... just so unfair.

Early pg ladies - Squiz, IWorry, Downstairs - wishing you all good luck for HBs and happy scans. I know this is such an anxiety riddled time.

And hello to everyone else! I'm actually on a computer rather than my phone so it's nice to be able to namecheck. I'm sorry for the radio silence after my St. Mary's appt. on Tuesday. It's been a rough week - I just am in such a funk. Feeling a bit better today but just can't shake this feeling of sad. So Tuesday was the results appointment after the 6 weeks apart blood tests. I got called into none other than the famous Prof Regan's office and i was absolutely SHITTING it - I kept thinking this can't be good if she is the one delivering the news. But the news is that there is no news - she literally ticked the 'unexplained' box while I was sitting there. So when (if) I'm pregnant next I'm to call immediately to get a TEG test again as the sticky blood, which I don't have, can develop after a BFP. I told her we were in process to start IVF in Feb/March and her advice was: don't. She said we'd have better luck the old fashioned way as getting pregnant hasn't proven an issue for us, that IVF success rates are not actually great and that it won't actually buy us any time. The whole reason we explored the option in the first place was because we were strictly verboten from TTC while DH was undergoing chemo. Now that he's not a walking vessel of poison, we're ok to give it a go - and we have been since Dec without luck yet. So I don't know what to do. I actually DON'T want to go through IVF if we can at all help it - it just sounds awful. But would I be a complete fool not to take this one and only opportunity to do this through the NHS (I just turned 40)? Or do I listen to the world's foremost expert in RMC and just give nature some time to work? We can afford to do IVF privately if we had do further down the line. So, Wise Ladies of the Thread, what would you do in my shoes?

Hello ladies,

I just wanted to confirm what bakings has said, and that my MMC has been confirmed today after having to phone my GP to get me a scan as I wasn't getting anywhere myself with the EPU. I kept getting fobbed off and told to be patient and wait till Monday. I know my body and nobody was listening to me. (I am going to put in a complaint as I feel I was treated wrongly.)

I am looking optimistic for the future and I will be able to hold a baby in my arms one day.

Thanks ladies for all your advice and support.

To all ladies that are reading this experiencing there first MC all I can say is be strong and don't lose hope.

So sorry, desperately, its shit. My best advice is to get as many doses of painkillers as they will give you during your op. May as well enjoy the morphine.
LB I have the same diagnosis from the prof now my wonky womb has been fixed. Same advice about the teg test. I'm just trying to find out exactly how soon they will do that; I'll let you know when I hear back.

I think I'm out for this month (I know you will all say not til AF) but I just think I'm not feeling it IYKWIM maybe I'm wrong. And can't even drown sorrows next week, assuming AF, due to dryathlon. ffs.

Just, Prof Regan said to ring them as soon as BFP so I'd guess they'd do the test straight away from there. But who knows, I have to actually get to the point where I have the BFP! here's hoping.

Glad to hear from your Desperately. As mentioned, don't be shy about taking the painkillers if you need them.

I've calmed down a little and read as much of the thread as my phone will allow before freezing.

There are some heartbreaking stories on here. ac I don't really have the words to say how much your story moved me. I can't believe that you have been told you need a GP referral. I definitely back the 'track down the consultant' plan.

desperately I went and read your thread after reading your posts. I'm so sorry. I wish you and your dh the very best of luck in referrals in the future. I cannot imagine the strength you must have. I hope tomorrow goes as well as can be expected

downstairs I am on your behalf that your EPU won't scan you. Personally I've found the mental aspect of ttc after rm to be the hardest part - I can make myself bonkers just thinking too much. Does that make any sense? I hope you get a strong HB at your scan.

I wish I had the eloquence to express my sadness at how we are all struggling with something that can cause so much anxiety and distress.

desperately So very sorry to hear your news. Hope your physical and emotional recovery are as straightforward as possible.

AC try the new guy's secretary, and good luck! NHS admin can be SUCH a pain!

Not How bloody awful. I hope they catch them!!

Best of luck worry - hope the scan goes well. Try not to trust Dr Google too much says me the google addict.

Late How long is the window of free IVF available? I do know from people who've done it, it tends to have a 1/3 chance so they've all taken more than one 'try'... and Prof Regan's opinion is that is lower success than a post 'mystery' recurrent miscarriage I guess? But that would be without any other factors so... it's a tough one.

desperatly I agree with taking up the painkillers. My erpc pain wise was managed with codeine when i got home to, make sure you get looked after.

just i know what you mean about the "feeling" though read my post last month, i thought i was out, even ate pate, drunk on xmas day and had a BFP boxing day (and it was quite dark so guessing i could of tested earlier) hold on!

iworry so am i! The gp kept fobbing me off to, still not even a letter to say i have an appointment and next week in this trust is booking in week, no one's even spoke to me great when you've had two m/cs and are anxious as anything. Yes I do get what you mean. Along with knicker checking/reading horror stories/crying randomly i am going bonkers i think!

Have a good sleep all. i have a horrible knot in my stomach, just feel like it's all going to go wrong. Night night!

Horrible knots here too. The doom, the doom!

worry good luck for today.
downstairs keep busy, stay clam, not long to wait now.
Desperately thinking of you today, hope they are kind. Stamp your feet for the genetic testing this time.
LB without being personal, has your DH had any tests post chemo? I think I remember he banked sperm in case it affected his fertility, but do you know if it has? If he's ok, and you've not previously had issues conceiving, then what's the reason for IVF? I've heard of people having it for RMC with embryo selection for genetic problems (PTGD) but I wouldn't think that is on the cards for you.

good luck ep scan ladies today.

My temp is down so I should think AF will be along in the next 24 hours. Meh. feeling down atm, yet another family bereavement this week (grandfather; other one went in October, and, of course FIL before Xmas). topics at school are euthanasia, ethical dilemmas about conjoined babies and the Holocaust. DH on holiday next week. Might have a little cry... losing the will...

Just sorry to hear about your grandfather. The miserable stuff all comes at once with work, doesn't it. Know exactly what you mean.

Downstairs avoid the horror stories! :)

Desperately hope it all goes smoothly today and you get pathology done. Hope the pain isn't too bad (with mine, thankfully, the op was less painful than natural loss but if it hurts hit the painkillers!).

I dry heaved today. Bit of a tummy bug/cold or a good sign? Who knows. My boobs hurt like hell so just living from one injection to the next atm. (That makes me sound like a junkie haha. Clexane addict! ).

Thinking of you Desperately Life is so unfair. Hope you have lots of support in RL.

just Any chance you can take a duvet day?! Sounds as if you need it

In fact, I think that goes for us all... I'm counting the days until next Friday, when I will poas if AF hasn't arrived. Nice high temps at the moment, but I have an infection, am on antibiotics and also my sore throat/painful sinuses have re-appeared, so it could just be that. Honestly, how can I have a sore throat when I'm on antibiotics?! I'm so fed up with feeling poorly all the time. DH is the same, we just snivel and cough at each other at the moment.

baking am I right to think you went to Professor Q?

I have talked to my DH and we are considering it... £400 is tough but doable and it was the only thing I didn't get tested for and the St Mary's tests were normal...

IF i get diagnosed what is the treatment?

Thanks

Hi all, I'm not new to mumsnet but am new to this specific thread. I have had x3 MC's in a row and am currently on my 4th pregnancy at 5w 4d approx. I have a scan next week. I am on prednisolone, progesterone, baby aspririn (75mg) and vitamins etc. I was prescribed the above through a private clinic.

Desperately I am so sorry to read your news. Thinking of you and yours.

bakingtins I have met you on the pred thread, just wanted to say hi.

Hi to everyone else too.

Squizita I think our scans are on the same day (22nd). I am worrying alot but still trying to stay positive.

I have a question for all the ladies who have been to St mary's RMC (Prof Regan's clinic). I have an appointment booked for February at St Mary's (my first appointment after waiting months for a referal) and now I am pregnant I am unsure as to what they can do for me.

I am very interested in having the TEGS test at St Mary's, as I suffer with Migraine with Aura which I believe baby asprin helps prevent. But I know if a person is found with TEGS they go onto 150mg a day instead of 75mg. When I spoke to the receptionist at St Mary's she said that because I havent had any tests with them so far there is little they can do.

But I had hoped they could still offer the rassurance scans, because in Lesley Regan's book she says that the reassurance factor throughout pregnancy has helped maintain pregnancy. So my question is, should I still go to my appointment in February even though I am already pregnant? The receptionist seemed to think I shouldn't.

Any advice is appreciated.

I went to St Mary's back in 2011 but I wasn't pregnant then. when I got pregnant they did give me a 5w TEG blood test and then scans at 6w, 8w and 10w for reassurance... but really don't know how it is when you are already pregnant...

Good luck!