Recurrent miscarriage support - tests, treatment, trying again - thread 8

[Bakingtins]

Welcome everyone, pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of company, information, moral support, tea or sympathy.

Can I suggest we start page 1 with a recap of where we are all up to, because my fuddled head can't keep track?

Fucking phone!

Late let us all know if you poas, the bleeding before af could be IB, fingers crossed!

nearly as everyone else says, not everyone see's a hb at 6 weeks so try not to worry if this is the case for you. The earliest I have ever seen a heartbeat with ds was 8 weeks and it was a teeny flicker of a thing so can't imagine it had been visible for very long iyswim?

notgivingup Glad your acupuncuture went well and you've had your rant here, I think I'd just end up whining at dp to death if i didn't have here, it's great isn't it?!

bakingtins If madness is a symptom I'm def having some positive signs. Feel like i am losing the plot sometimes.

How you feeling today squiz? I've done four knicker checks today, nothing to report. Boobs feel ok to, nipples teeny bit tender and sensitive but other than that I actually feel ok which is making me worry. I think I'd feel more relaxed if i was puking all the time

It's a BFN for me this morning. More blood when I wiped but none on the pad- could be the start of AF. Will see how it goes today and will possibly repeat procedure tomorrow as I'm not due until Friday. Baking, I think it was you who mentioned madness as a symptom? I think the causes are many and frequent along this journey!!!

Downstairs Any boob pain is good boob pain! :)

Late Still FX because I've been in that situ in all but 1 pg, and my losses were sticky blood or dodgy chromosomes NOT implantation so could just be a very bleedy implantation! Try POAS on your AF due day if it tails off.

As for me: tender boobs (especially left one), poo still like Nibbler's from Futurama, usually gurgles and twinges, cream/clear CM, 2 knicker checks (both normal), dizzy/queazy this morning for about 2 minutes... could be the thought of work though.
Latest madness: insect bites (clearly bites or hives) are some pregnancy-killing virus and/or the histamine from the bites will go round my body and undo the good the clexane is doing. THEY'RE EFFING INSECT BITES, CRAZY WOMAN!

reporting back: 6+1 with a hb feeling rather overwhelmed atm. I didn't have hbs with two of the mc so this is a good thing, isn't it. They don't want to see me until booking in unless I have any problems.

Nearly That's excellent. I believe I've also read, a HB further reduces % chance of MC in many cases! :) Not that it will stop the knicker checking I guess, but hoping the stress is less for you today.

nearly That is brilliant news, what a relief! Definitely a good thing

squiz You're getting insect bites in January?! Iew, pigeons... Can you complain to your office manager? Sounds like a case for pest control.

Not That sounds really positive, things are moving along. Glad to hear that you are enjoying the acupuncture treatment, and even more that your therapist still advises medical tests - often they just want to sort it all out by themselves. I went off the idea of acupuncture after a consultation with a therapist who wanted me to stop exercising and start eating dinner-type meals for breakfast . And drink special herbal teas, which were a no-no while ttc. All to 'calm' down my basal body temperature, which sometimes looks a bit like the skyline of the Himalaya before I ovulate. Which is not really what I was interested in, esp as it would have meant taking a break from ttc.

Not much to report from my end. CD11 today, gearing up for ovulation... Trying a 'low-key' form of SMEP, I really don't want another bladder infection. So slowly ramping up the horizontal action
Not helped by the fact that DS is having very erratic sleep patterns at the moment and wakes up a lot

JBird they reckon high winds blew flea-ridden nests around the attic area, all the dusk/some mites and fleas floated down into the floor below. Urrrggghhh. Rentokill coming in ASAP! :)

nearly that is fantastic news

Thanks everyone. I keep telling myself it IS good news. I think I need to use the line from another thread, today I am pregnant.
I'm now slightly concerned that the booking in appointment they have given me is at 9 weeks, it seems very early?

Hooray Nearly! Such good news! HB must be a wonderful thing to see ( but in a good way )

Great news, seeing the flickering pixel at my 6+1 scan was amazing

Brilliant news Nearly!!
Still light bleeding for me- on the wipe, not on the pad. Cinema tonight for distraction. Squiz, I'm lining up the sticks for the morning...

Lovely news Nearly! :)

Nearly From my experience, having the booking apt at 9 weeks is perfectly normal - I'd say the sooner the better, so that they have enough time to arrange the 12 week scan. You could try and ask for an early scan, given your history... Worked for me last time

Amazing news nearly. Did check today to see how you had got on and made me smile in the midst of work. Phew.
late I would test again on your AF due date to make sure.
Thanks for the tip tanny - I take a few of those but never heard of maca root! What kind of dosage do you take? At the mo on a hideously expensive pregnancy vitamin that seems to have higher dosage of everything than pregnacare but still at safe levels.
With you Jbrd - I fear that SMEP = urine infection so will try a reduced version of it this month. Hi to everyone else - hope all's well on this rainy Wednesday evening

ah ha thats why im confused jbrd the last time I had booking and 12 week scan at the one appointment. But I have moved trusts so this one probably does it differently. Does the booking normally involve urine and blood tests?

That's brilliant nearly! Great news!
Booking appts are after 8weeks, so 9 weeks is perfectly normal x

yey great news nearly :)

Great news nearly fx late hi to everyone else

That's fab news nearly and how did it go with the sticks late?

So... Period arrived this morn. 4 weeks after mc. Just feeling v low and tired of ttc rollercoaster. I think I need to have a plan / feel like I'm doing something.

Question for you ladies. If you were me, would you go see miscarriage person or fertility person - we are so lucky to have one DS who is 2.5 but then two mc - 1 mmc at 12 wk and then took 10 months to conceive again with 1 mc at 5.5 wk? Or should we see neither and it's likely all is ok and it's just sodding bad luck? Or do consultants do both fertility and mc? I just feel I need a plan. Any advice would be great please. I'm not one to sit around and wait as so badly want sibling for ds. Thanks so much xx

Booking is normally 8-10 weeks where I am. Urine and blood tests, blood pressure, endless form filling and a tree's worth of leaflets. I did mine v late this time but I didn't need an NHS 12 week scan as was already booked through the RMC clinic. Next milestone to head for.

Morning fedup crossed posts! First thing I'd do is ask your GP, being prepared they might say no. Then I'd get in touch with someone privately. I saw a local gynae consultant with an interest in recurrent miscarriage (she's one of the lead consultants at the RMC unit) I saw her after 2 consecutive MC and 3 in total, cost us £200 but she then wrote to GP and they did a lot of the tests for us on her say-so. If we'd had to pay privately for all the tests it would have been very expensive. The tests included the basic fertility checks like a scan, day 2 hormones, AMH. I'm sure if we'd been having problems getting, rather than staying, pregnant she would have recommended sperm tests for DH etc.
One thing I'd say is your 2 MC sound very different. When did the embryo die in your MMC? All mine have been the same (fairly unusual) pattern in that they've been at 8-10 weeks, often after seeing a heartbeat. The reason the NHS won't test until after 3 is that with a 15% background miscarriage rate there will be a number of women who have 2 purely down to bad luck. Of the 1% of women who have 3 in a row the standard tests only find a reason half the time.
I feel bad spouting the bad luck line to you when we've all been told it so many times. I found my 2nd MC particularly hard. I was prepared to accept my share of crappy luck, but to feel I had a problem and nobody was interested was horrible. If nothing else (because the tests I had didn't find my problem and when we TTC again I had my 4th loss) being proactive made me feel better. Good luck deciding what to do.

Thanks baking. I saw GP when I was recently pregnant (although didn't know it)?she was horrid and said I had to wait another year (so 2 years ttc). So bypassing her in future. Dr and EPU said she was wrong to say that. Where do you live? Can you recommend that consultant? We are SW London.
First mc I don't know re embryo. There could never have been one. It was just an enormous hormone producing sac at 12 weeks. Or it died about 5 or 6 weeks and re absorbed. There wasn't an embryo this time either as I had a PUL and suspected ectopic. They still don't know now where it was.
It probably is just bad luck but I don't know and I suppose I don't want to wait another few years to find out (if that makes sense).
EPU doc was nice tho and did say to come and see her if I get pregnant or if i don't and start to stress again (ie don't wait another year!) but don't know what she would do or if I should see someone privately to speed it up. Husband and I have talked about it and will throw money at it (fortunately we can - obvs mean cutting back elsewhere but we can)

Fedup I agree with Baking about possibly going to a private gynie for advice? If just for reassurance that it's horrible bad luck. They can write letters prompting GPs to action. St Mary's for example can be contacted privately. Like you, my losses have all been different (I had 1 loss at 5 weeks, one at 7 - both times everything just broke up and bled out, and one MMC 69/partial molar which dragged on and on including threat of 6 months chemo). I had to get my EPU to tell my GP to refer me because their attitude was "we can explain one of them as a one-off rare chomasome issue so in terms of testing you've only had 2 and they were early" Thank goodness for the EPU staff being nice in both our histories. Do take advantage of them if you need to!

I'm having a completely fecking mental challenging day. Nothing concrete, but I keep thinking my CM is a tiny, tiny bit less clear, more yellow/cream. DH pointed out I had a poo this morning (which has caused spotting before) and anyway all bodily fluids range from clear to slightly yellow due to the proteins or something (sweat, bogies etc all dry yellow) so even if I'm not imagining it it's probably OK. I had a stomach ache last night but I'm pretty sure it was need-a-poo-related and I'm OK (sick and sore boobed, my kind of OK) now.