Recurrent Buns - MC Testing and Beyond... Part 4...!!!

[Julezboo]

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

Just wanted to pop on and send you ladies some hugs. Life is pretty hectic atm but I am reading.

O now weighs 8lb 12 and is 7 weeks old today!

Thanks everyone for your kindness - it's so sad that everyone here has felt the way I was feeling yesterday at some point during this mc nightmare. I wish no one would have to feel this pain. Thank You everyone.
I guess everything is still very raw for me. I saw my husband cry for the first time yesterday for our babies - It made me feel so sad - all this time I thought he didn't feel anything. I feel like I'm not alone anymore, and do actually now believe that men feel the pain of a mc, even if they don't show it all to often :(
I am feeling slightly better today - definitely think my hormones are playing up.

I hope everyone is well today xx

milkyway it provides small comfort to know that your feelings aren't abnormal. As lady said, those were nearly my exact words after my third miscarriage in December. I realised that I won't have a baby in 2011, another birthday and Christmas will go by without a child. It is devastating. You never truly "get over" it. If I did, I wouldn't be visiting this site, multiple times a day. I wonder why I have been cursed like this, but it won't change the fact that I seem unable to carry to term.

You aren't alone xxx

Hello, got a letter today with blood results - obs said I had tested positive for anti-nuclear antibody. Have just read letter and haven't begun my googling quest. No idea if this is 'good' or 'bad' news yet. Does anyone on the thread have experience of this? We have visitors so have to resist spending whole evening doing the research!

Iggi I found this: "positive result means that you have a higher than "normal" concentration of these antibodies and may be related to lupus or another disease. Alternatively you may be perfectly healthy and you may simply have a higher than normal concentration of these antibodies."

Thank You LAF and Lunatic - the support and information I have received from this forum is priceless, and although it is unfortunate that I am not alone, I can also feel solace in the fact that there are others out there like me.
Also glad your little one is doing well lunatic xx

iggi I am glad "something" has come up on the tests - hopefully this will be the start of the road to something good xx

Just want to echo what others sai. The feeling of life
being over isvery normal and it does pass. I remember feeling that I just didn't want to wake up any mor. .... Not being
dramatic but I really felt that.... It does pass though. Hugs to all who are feeling crappy.

Hi everyone.

I've got an appointment at the RMC this afternoon, sure she's going to tell me its just "bad luck" and to try again as all tests have already come back clear. I just wish she could give me a magic pill and tell me next time it will be okay!

Will ask about the 2010 Aspirin trial.

Hope you're all well, or as good as can be.

Big Hugs to everyone

good luck with the appointment luckyfor2, do make sure you ask for exact details on what they tested for and if you can have copies of all the results (if you want them).

Thanks lady. I'm doing a mental list of things I need to ask and that is one really good point, the Consultant went through all the tests last time but I always forget what I've had done and why. Plus, I'm hoping to see Prof. Quenby re.NK cells in a couple of weeks so would be good to have a copy from the hospital.

Its so hard to keep positive when you're constantly be told its bad luck, it all just feels like a process for more agony. How are you doing after your D&C. It has been 8 weeks since my delivery and I'm still finding it extremely hard. No hope etc.

Good luck for today luckyfor2.

Thanks Banana and Milkyway. Trying (unsuccessfully) not to dwell on idea that - rather than the "bad luck" I kept being told too - I had healthy embryos which my body managed to kill. I know it's more important to look to the future, but very hard not to look back (especially with another bloody due date coming up).
Hope everyone is hanging in there.

Thanks Banana and Milkyway. Trying (unsuccessfully) not to dwell on idea that - rather than the "bad luck" I kept being told too - I had healthy embryos which my body managed to kill. I know it's more important to look to the future, but very hard not to look back (especially with another bloody due date coming up).
Hope everyone is hanging in there.

Hi, all, am also feeling quite :( about the not actually knowing what happened when I lost my three pregnancies, and I will probably never know.

I am having my (private) AMH test this evening - there's about a two week wait for the results (how ironic)

I ovulated on Friday I think (It was day 21 after my medical management - so a slight delay I think - I was still getting positive pregnancy tests a week and a half after so perhaps hormones not quite settled). Can't help thinking 'what if that was a healthy egg??'

Not sure how I feel after my appointment today. Karyotyping came back clear which was what we were expecting. She went through our history and looked at each pg and mc. She said how they rarely found a cause for mcs but that they have an 80% success rate and how when we get pg they will scan us weekly which has shown to highly improve chances of a full term pg. She couldn't see how our losses (especially our third baby) could be due to abnormalities as getting to 13-15 weeks and having at 1:50,000 (best result) chance of downs would suggest that the baby was fine. I find the fact that my body killed my baby so hard to bear. I've had all the blood clotting tests redone as and I think many of you have already said that some blood tests have to be repeated. She thinks from our mc history that if anything, it is probably due to blood clotting issues and would prescribe aspirin in the next pg.

So I have to try the aspirin again to check whether it makes me bleed. I'm on day 21 of cycle so hoping AF will come on day 28 as usual (or as it used to do) and I have an appointment in four weeks to discuss results. I did mention the 2010 trial and she went on to say how they didn't know why but it did help some women, kind of ignored it in a way!

We also discussed Quenby and the NK cell theory. She was very supportive and didn't dismiss the idea and said how they have sent some patients to Quenby in the past when all other treatment had been unsuccessful. Apparently the reason why Quenby's first trial was stopped is because of the amount of side effects from the steroids and they'd rather start with other treatment before going down that road. I told her we were scheduled to see her next week and she was great about it.

Managed to get a copy of all my test results there and then. Thank you for that nudge Lady.

Sorry this is a me me me post, not sure if this info will help anyone else. I guess all our problems are different.

Thank you for listening.

hairylights I hope your test goes okay tonight.

lovemysleep haven't heard from you in a long time I hope everything is okay.

iggi I know what you mean about looking in the past. I constantly grieve for my lost babies as we all do its so hard to look forward. I hope the results you have will give you something to fix and have a healthy baby.

milky I'm so sorry you're feeling like you are, as LAF said you are not alone. I'm so negative about everything now, it just feels like you've got nothing to be positive about when this happens. The pain is enormous. I just feel like I have to keep trying as there isn't anywhere else to go. I hope we can all move forward and end this painful journey with a healthy baby. Big hugs to you x

Hope all the pg ladies are hanging in there. Think about you all lots.

Love to everyone.

Thank You luckyfor2 You've bought a tear to my eye :( You've hit the nail on the head I think for how all the women here are feeling. I too hope that we all can move forward x
I have also been told to take aspirin in the next pregnancy - I am also on high dose folic acid and have self prescribed myself selenium, magnesium and co enzyme Q - will start vit D when I get my blood results back. I feel like I need to try and do everything I can possible to make myself "healthy".

iggi I just had a due date pass me, for the baby I miscarried at the start of July :( You are right, you can't move forward without looking back

I thought I'd share with you all - I emailed my recurrent miscarriage consultant about 3 weeks ago and asked if I could take part in his trials for NK cells and reproductive failure. His secretary got back in touch with me last week, and on Saturday I was sent an appointment for the Gynae clinic in my hospital for 7th April, unfortunately I'll be on holiday then, so need to postpone it a few weeks. I think the appointment is to see him - need to confirm this tomorrow. I am hopeful that I will at least get a blood test for NK cell count.

lucky didn't want to post and run. It's flipping hard isn't it :(

Thank you girls, I wish none of us were in this horrendeous situation.

milky I know exactly what you mean about getting yourself healthy. I haven't drank any alcohol for a year now (not a drop!) nor caffein and trying not to eat anything unhealthy. Have you had tests for the vitamins you're taking, I'd love to know whether I'm low in certain vits. I wonder if you can get tested anywhere. Are they testing you for Vit D? Like you say anything that might help has to be worth doing.

How do you feel about taking the aspirin? I'd love to think it would help but its so hard to be positive.

Hi all, my good intentions about keeping in touch (with everyone, not just MN) have really gone for a burton lately, sorry about that.

I've skim read through the several pages since I last posted (can't believe how many recurrent buns there are now, and how much is happening) and I can see the rollercoaster's still running at full speed.

Really happy for everyone who's had good news or making progress, and huge sympathies to everyone having a difficult time. FWIW I think it's totally normal, too - I don't think I will ever forget the feeling of utter hopelessness and that I would never be truly happy again. The last year has been the most intense emotional experience of my life, bad and good.

F is gaining weight, if not as fast as I'd like, but I've started giving him the full dose of iron drops (mistakenly was giving 0.1ml instead of 1ml ) and he's horribly uncomfortable and constipated and spending half the night sleeping on me. I don't know if it's entirely the drops (is miraculous how quickly being picked up cures him ) but I don't think I can face doing this to him every day till he starts solids...

waves to everyone.

we are battling with Colic and now possibly reflux this end. I am so tired.

Will be back on form shortly xxxxx

Hi lucky I am not sure about testing for other vitamins, but my GP and pre pregnancy counsellor recommended getting my vitamin D level checked, as apparantly it has been known to play a part in miscarriages. I am still waiting for test results. Just go to your GP and ask for a vitamin D blood test - they won't deny you it, and ask about the other vitamins too. Also ask to be put on high dose folic acid - anything is worth a shot right?

I just did a bit of research on the other vits and found they are needed for a healthy pregnancy and that the multivitamins like "pregnacare" aren't good, as you should take neat vitamins. My pre-pregnancy counsellor was impressed I was taking them, so I have been taking them everyday after food for about 2 weeks now - and I am already feeling less drained and more active.

Although there is some debate about the aspirin, I am still going to give it a try. I don't really have anything else to give me some hope, and taking the aspirin will at least make me feel like I am doing something to help IYSWIM.

Missed miscarriage at 8 weeks . Am booked in for an erpc on Thursday. Can't believe this has happened again. And can't see myself going through this anymore. It's just so so painful.

digi girl so sorry :(( Give yourself time and look after yourself the early days are the hardest :(

sending lots of hugs xxx