Recurrent Buns - Miscarriage Testing and Beyond! Part three..!

[Julezboo]

Not so imaginative as lunatic !

Part One HERE

Part Two HERE

There are a mixture of Pg ladies, new BFP's (YAY) and new ladies who have sadly had to join us and are going through testing. Lots of OMW's and hand holding here!

Sit down, grab a cushion and a hot choc and get comfortable.

Hi all, and thanks for all the support. As so often before, don't know where I'd be without this thread.

brook is always good to 'see' you and thanks for the lovely message. Wish hospitals would include some sort of basic info on conditions they mention in their ruddy letters - is yet another one I haven't heard of, but I'm sure someone here will be way more clued up than I am.

digital thanks to you too - and I am definitely thinking of getting a monitor that checks motion. Only thing putting me off is DH has pointed out it's one more thing to obsess about...

coconuts I did try temping for a few days once, but it was so difficult - like you say, have to sleep with mouth closed, not drink, not test too late or early... in the end I concluded wasn't for me and went on best guess/physical signals as given in TCOYF. Which seemed to work OK. BBT does seem more exact, though - how ill is your DH exactly? Could you ply him with Lemsip and persude him to DTD...?

Mummyabroad Bloody hell that HSG sounds appalling. Much sympathy to you, hope you're tucked up and relaxing now.

justmee I think you were right about not wanting the scan, drat your doctor. The spotting could be an implantation bleed, I think, at only four weeks? And lots of us have had spotting and stayed pg so take care of yourself and we'll all keep fingers crossed for you.

Julez, wow, 36 weeks - well done you! It will be OK, I'm sure of it - all the scans have been so positive, and you're being watched. Can't wait to read your announcement.

LAF77 So feel for you. My worst moment was the day after the umpteenth pg announcement, when I ended up in the maternity section at Debenhams by mistake. But as you didn't say but should have - you're smart, you're clued up and you're motivated. You WILL get your referral, and then with any luck at all, some answers and proper help.

Had a much better day today - DS1 only had one accident and declared he didn't like me once, rest of time seemed very happy. Finn hasn't had any more apnoea (caffeine doing the trick), is on increased milk, and nurse said I could put him to the breast and see what he did . Mostly what he did was try to suck a little bit, then fall asleep before trying again. But you've got to start somewhere...

Mummy X post. Glad you're okay. Glad it's not just me who found it a tad traumatic! Tbh, your experience may have been slightly more arduous because they may have found it a little harder to get the dye through carefully and easily after your recent surgery. They may have injected it more slowly (less pressure) or there may well have been a tiny bit of debris/ scar tissue in your tubes/womb, which will have caused further discomfort and prevented the dye from moving through your pipes as swiftly.

The reason for them getting you to turn onto your side will have been so that they could get detailed and accurate X-Ray pictures of your innards at different angles to see all of your bits and pieces and make sure they didn't miss anything. Horrible though it was for you, I think you can be fairly secure in the knowledge that they've been thorough.

Did you get to watch it on screen? It does sound as though you had a slightly more painful and bloody experience than mine! I even forgot to take decent painkillers and thought it was rather horrible, so I'll know better for next time - not that I fancy the prospect of a next time!!!! I don't know if I mentioned it after mine, but I was told that the vast majority of women faint on the table because of the intense pressure. Clearly we are hardcore!!!!

Yey for getting the green light for TTC though! You probably didn't get your results straightaway because, let's face it, they aren't going to take any risks and chance missing something on the results of a woman who has just been told her Ashermans is now cured. Quite a lot resting on their diagnosis and I reckon they will have taken a lot of images that they had to look through.

So, you now have 3 months of enhanced fertility according to the medics. Get busy lady!

Little wave to BB too. So sorry I forgot to say a hello in my previous post. Can't help with your question I'm afraid, although it sounds like the others are onto it!

Glittery Feinting? Now I feel better, at least I didnt do that! Hope they arent going to spend too long pouring over the scans - I am going to ignore whatever they say anyway tee hee! As non AS specialists they wouldnt know what scar tissue looks like if it jumped up and bit them, so I have to send the slides to my AS experts and its their opinion I will be following. I am very confident that I will get the all clear though, as Dr Lower did tell me he removed all the scar tissue. If any has grown back it should in theory, as you say, have been washed away by the dye as at this stage it would be quite filmy and cobwebby. Getting the "jet wash" is really more important to me than the results themselves.

The screen was next to me, and I saw a black splodge growing on it as the dye went in, but honestly it was so painful I kept screwing up my eyes! They did tell me that my tubes were open (I think they thought it would cheer me up) but I already knew this as I had an HSG done after the hysteroscopy while under GA)

I think I might need one more dildocam scan to check the lining growth before I will feel really confident about TTC. 5mm is too thin, but that was Day 9, I am hoping if I got scanned nearer day 13 it might be bigger. I am at increased risk of placenta increta, acreta and previa with AS, which apparently is all about the lining. Some AS doctors say the risk is greater depending on the initial damage that was caused to the endometrium and some say it depends on how thick the lining is at the time of implantation. Ooops, I am back to worrying again, better save that for later, and spend a bit of time celebrating the end of nasty tests at least

xxxx

PS Oh, I love the name Glittery, dont change it!

I keep wanting to come on and update and catch up and just am wanting to fall asleep at the moment.
Anyway, the short story is that after a very long and difficult day I DID get the prescription for aspirin and clexane. The appointment was at 4+6, and that's what the sac measured when they scanned me but they couldn't see the fetal pole yet. Everyone said that was to be expected, but it still worried me until I could get home and visit Dr Google for some reassurance
I'm now waiting for appointment to be taught how to do the clexane injections - should be next week which is fine. Then will have a follow up appt with consultant the week after, probably re-scanned. So that's it. Just to got to pray that everything develops as it should, that aspirin does it's job and that we see good things on the next scan.
Simple

Sorry, all about me...but am thinking of you all and reading as much as possible.

Hi ladyB dont worry about not being able to post much - I will use up your share of space cant keep off the internet at the mo. Horray for scoring the drugs! hope you are able to get some good sleep and more rest, sounds like you really need it. Good luck with your injection course. I had to give myself antibiotics once, DH was supposed to do it but got the jitters at the last minute so I had to do it - t'was v. scary!

Hi all
rung doctor yesturday and asked himbut he said im worrying to much and not to be silly eveything looks ok he said he cant start me on the injections untill they can see the sac as if it is in the tube or sac doesnt show up i can put myself in danger so anyway i said what about starting on asprin and he said theres no need as ill be starting heprain hopefully by next week and tht heparin is more efective well iv read people on asprin and heporine i really want to take asprin but im scared to as doc said no need so im on nothing at the mnute just folic acid i wish i was a doctor then id know what to do hehe i also have flu and cannot stop coughing and eveytime i do i keep thinking ll push it out lol mc totally messes with the brain ill never be relaxed bu i am trying my hardest if it going to happen i cant stop it :(

havnt had no bleeding as yet touch wood hopefully it going ok i have had backche if m doing alot i get it but lay down and it eases off i have also tried not checking my knickers evey 5 minutes i make mysef stop also sleeping is helpng coz when im a sleep i cant worry :) hope your all ok

Hello all

frazzled it's reassuring no more breathing problems and and that he was trying to suck. How much time are you getting to spend with him?

lunatic glad the visitors are keeping you busy so you don't get bored. Must be lovely to have such supportive mw's around you, especially when they say you look 10 years younger

justmee sorry you're going through such a hard time, it's awful the way mc makes you feel in early pregnancy. But no bleeding is a very good sign. Are you being scanned again next week?

MummyAbroad I cringed, winced and ouched reading your post, that sounds like agony. How long do you think you have to wait for the slides? Hopefully next months ttc will work a treat for you having had a good flush out.

ladybee glad it went well, no fetal pole when still so early is fine as far as everything I've ever read on Dr Google (love that term {grin]). So have you started on the aspirin now?

Glittery I agree keep name, suits you much more than your old one. 11 weeks is great! Sorry you're feeling crap though. And as someone who gets the odd bout of sciatica a big ouch and a hug for that all the way through with DS!

Coco good luck with temping, I temped for a year after first mc and found it relatively easy and my results easy to interpret as I remember. FertilityFriend certainly helped with that. If anyone needs a copy of the taking charge of your fertility book I'd be happy to stick mine in the post, haven't looked at it for a couple of years so wouldn't miss it. It has an ace picture of an oozing cervix that once seen can never be forgotten.

LAF that's truly rubbish about the parking spot, I would feel just as crap walking past it too. It really hurts. I've had a few pregnancy announcements from people who know about the recurrent mc thing, one is being sensitive the other less so (every opportunity to mention the baby gets taken) but earable because I just switch off. Good luck with getting that referral.

Anyone got an update on Julez?

I was going to type a message to everyone but have to go out now, will just send you all a big wave instead!

Hello there,

I just had my 3rd MMC confirmed last night at 8wks. I'm in a bit of a daze really and cannot believe it has happened again - two in a row after DD who is 3 - and one before that.

I know I'm not officially classed as a "recurrent miscarrier" according to the NHS as not all 3 were consecutive but I have been offered some tests through private medical care.

I'm just starting out on this journey as I don't really know what I will get tested for at this stage. I tried so hard this time - didn't get stressed, ate 5 a day, took Aspirin and supplements.

For all of you out there who have spent the last few weeks boob/knicker checking and know the Early Pregnancy Unit telephone number by heart I wish you all the best. Pregnancy after miscarriage can be a horrible rollercoaster but I have heard lots of success stories after many unexplained MCs so I'm not giving up hope.

Hello Panda welcome to the thread. I am so sorry for your losses. I am not officially a recurrent miscarrier either - I have "only" had one mmc, I started testing because my periods never returned afterwards. I have been diagnosed and am being treated for Ashermans Syndrome.
It took me 7 months to get a diagnosis - I hope yours is quicker - AS is pretty rare and hard to diagnose. One thing that helped me get my head round all the tests was Lesley Regan's book "Miscarriage, what every woman needs to know" Its quite thorough, and you might need to put it down and take a deep breath sometimes because reading about ALL the possible conditions you could have is even scarier than googling , but its a good place to start. Hope you are able to recover from this mmc quickly. Have you decided how to manage it?

xxx

Panda sorry to hear what your going through i know many on here no how your feeling including myself hopefull the tests will give you a reason and soon youll be able to move on and try again

claire
well he asked me to go next week so im guessing wednesday but ill ring him to make sure i just want to be able to start on these injections asap before i state to blead its worryng hopefully wont be long nd he scan goes ok

Hello Panda, I'm very sorry you've had to join us.

I'm reasonably new to the thread in that although I had 3rd mc last summer we're only just starting the testing process. not sure what I'll get tested for either but have had lovely advice on here. I started to read the Lesley Regan book but put it down as emotionally I couldn't cope with it at the time.

Take care of yourself, it's an awful shock when it happens a third time and it dawns on you that you might need help.

mummy Glad you got your HSG done ok but sorry it was so uncomfortable. It sounds positively hellish. It takes a brave soul to go through that! I've never even had a smear so I dread to think...! How long will they take to let you know the results? You have been doing a wonderful job raising awareness, before I "met" you I'd never heard of it.

glittery I think I am just going to stop trying with my mum. I know she's my mum and all that and I'm sure her ignorance is misplaced but she shouldn't pretend to be interested and make rude comments. Sorry to hear you are bunged up and congested. So many flu and cold things about at the mo and there is hardly anything you can take when pregnant is there?

lady good luck with all your forthcoming appointments :)

lunatic glad I'm not the only one who has no idea of a woman's basic anatomy glad you're getting rested and getting plenty of visitors :)

frazzled he was really ill but he is getting better now. He just has this annoying cough and cold leftover now. We managed to get some SWI on Wednesday but now DD is super poorly it's hard to switch off. This cycle is doomed from the outset!

claire Ooh having a copy of that would be great. PM me with your email address and i will paypal you some money :)

panda welcome and sorry for your losses :( I am also not classed as a recurrent mc-er. I have had two. One natural and one mmc, managed with ERPC. I have a DD, 2.9 and have recently been diagnosed with PCOS after TTC #2 for 10 months.

DD has got poorlier. Her temp spiked at 41 last night. Called OOH who said she might have croup. Went doctor this morning and all clear. No infection, no croup so just viral. Poor thing can't sleep for her cough and just wants cuddles all the time. I'm the only one who isn't ill yet so I guess I'll get it worse than everyone once they're all better.

panda welcome to the thread, so sorry for your losses. There's a few women on here who've been tested for rmc causes after 2 consecutive mc's.

I'm currently waiting for results on my clotting and karyotyping tests after my third mc in November. I had my hormones tested after my second mc and they came back normal. I've also had various scans to check my womb for any abnormalities and it's normal too. My dh has had a sperm analysis which has come back below par, but have been told to repeat the test and also not to worry too much about it.

Having a bit of a WTF cycle. Have apparently ovulated much earlier than I normally do (cd12 as opposed to cd23), and have been feeling very very premenstrual for the last couple of days even though I'm only 5dpo. So hormones clearly haven't settled down yet, despite acupuncture and yoga (and cleansing chakras or whatever).

DS is trying to wrestle phone off me so will post more name checks later.

Thanks for your kind words everyone. I'm so sorry that we are all in this predicament but it helps so much not to feel alone. Only one of my close friends has had a MC so its hard not to feel a bit of a freak, having racked up 3 .

MummyAbroad This time the fetal pole only measures 6.1mm so I have decided to let nature take its course unless it takes too long then I'll take the Mefipristone. The sonographer could detect bleeding inside my uterus but I've not seen any sign of it yet because my cervix is still closed. I guess the hormones will come down and then things will start to happen. I managed to cope naturally last time and it was 2cm which hurt quite a bit and had a mini-labour type pattern to it with contractions etc. but nothing that couldn't be resolved with some industrial-strength Codeine.

I have never heard of Asherman's syndrome so will Google it and will definitely read Lesley Regan's book. Thanks for your advice.

Digitalgirl thanks for info on tests I think we are getting clotting, karyotyping and hormone levels but not sure what else. My womb has no abnormalities as i've been operated on numerous times for endometriosis by the same consultant that is treating me now and he is convinced this has no link to the MCs. I think he mentioned Natural Killer cells test as well but that went over my head so I will JFGI! Sorry to hear your cycle's gone off on one a bit - mine was all over the place after previous MMC in Aug but settled down after 3 months.

Coconuts - hope DD is better. My colleague has PCOS and has managed to have 3 children after being diagnosed and given Progesterone. Hope they looking after you well.

Hi panda if you have had 3 miscarriages, I thought you were deemed to be a recurrent case. I have had 3 in a row, with the last one last month. It is awful and I do feel like a freak show. Apparently, 1% of couples go through this. I'd rather apply my odds to the lottery. I'm still in shock about it nearly 1 month on. You will get good support from this thread, so feel free to vent and ask questions, as there are people here who are at various stages of testing, diagnosis, etc. X

way too much going on with you lot to catch up properly.

digital no, we didn't increase swi the month i had a bfp. iirc we only did it once or twice. I always got pg first or second month of trying.

panda sorry that yo have had to join us. lots of hands to hold here!

have my first night alone with new baby, dp is a friends birthday do. i plan on snuggling her all night. (smile)

Hello. Just popping by to catch up. I am
not pregnant this month. Feeling everso everso sad tonight. My poor baby, and poor me. I am so sad I lost "her". And I am so afraid. I have the consultant on Tuesday to follow up after the mmc. And I had day 21 tests done yesterday. Sorry for wallowing but just wanted to come somewhwere I know people will understand.

hairy wallow away my love, you are allowed. it is utter shit that you lost your lo. no words can make it better but we are all here to hold your hand.

when will you get the results of the day 21 tests?

Just a quick post! Baby boy was born at 7:30pm last night.

Was a slight worry at first as his apgar scores were 4, 9 and then 10!

They almost whisked him off to neonatal but he stablised quickly so has been able to stay with me.

He weighed a whopping 7lbs 3oz! He is so cute and gorgeous I can't quite believe he's here! X

huge congrats to you all julez

can't wait to see a pic.

any names yet?

Aw, lovely julez. huge comgratulations!

Epic catch-up needed I think...

Julez Congratulations!!! Brilliant news!!

Lunatic How are you? Lovely that you have your own room :)

Hairy So sorry my love. Hope you are feeling slightly brighter this morning.

Mumatron Hope you enjoyed your cuddles last night :)

Panda Sorry you have had to join us :( Hopefully you can get a referral to a RMC asap.

coconuts Hope DD is feeling better and you stay clear of the dreaded bug :(

Digitalgirl My recent cycle was a bit weird too (2nd since mc), I knew exactly when I ovulated and was VERY premenustral as well. I took this as a good sign though as when it is time to SWI I will know what I am doing.

Justmee Hope the bleeding stays away and you get your meds asap!

Waves to Mummy Glittery LAF and anyone else I missed!

I'm having a bit of a wobble about getting pg again. I have managed to convince myself it will result in another mc already, which I am sure is not the best state of mind to be in. I feel really stressed that DD is 2 (3 in Sept.) and I am not pg yet. I am worried about a huge age gap, the fact that we want 4 kids and the fact that DD may be our only one. Also, I read on Dr. Shetata's website that 50% of secondary miscarriages are down to chromosomal abnormalities. No idea what that means but is making me convinced (again) that we have some sort of undiagnosed translocation issue. Sigh

J U L E Z Well done! Congratulations!!!! Reading that little babies are making it into the world is so fab!! Hope mum and baby are being well looked after xxxxx

Hairy moan away Hairy, its really better out than in. (I think of my lost one as a "her" too. )

banana I am in the same boat as you, wobbling like mad in fact. I just cant quite bring myself to TTC because the fear keeps taking over. Yesterday I spent all day reading trying to find some "evidence" that it is OK for me to proceed (my worry isnt chromosones, but being at increased risk of placenta accreta/increta/percreta and previa - but the only conclusion I have come to is that each doctors opinion is different and I would get different answers depending on who I talked to

Lunatic are you still comfy?

mumatron very of your snuggles! I had DS in hospital at night and then when DH was sent home to sleep I had him all to myself that first night! Lovely memories

Panda How are you? Has your bleeding started? Hope you didnt freak yourself out by reading about Ashermans, there is a lot of scary websites out there and because it is rare, even most doctors are misinformed. AS is treatable, as I am determined to prove

So I have heard on the grapevine that my AS doctor in London has had a bad back and is now on holiday. I hope this is the reason he hasnt replied to me. I have sent my HSG results off to the leading expert in the states and am looking forward to his opinion. Local doctors here have given me the all clear, but I know that my lining is still on the thin side. Spent ages trying to work out if this really makes a difference and the answer is: depends who you ask.