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Recurrent Buns - Miscarriage Testing and Beyond! Part three..!

953 replies

Julezboo · 23/11/2010 12:52

Not so imaginative as lunatic !

Part One HERE

Part Two HERE

There are a mixture of Pg ladies, new BFP's (YAY) and new ladies who have sadly had to join us and are going through testing. Lots of OMW's and hand holding here!

Sit down, grab a cushion and a hot choc and get comfortable.

OP posts:
hairyfairylights · 12/01/2011 20:35

Coco fwiw I get agonising pain on ov sometimes and lots of discharge.

lunatic good to "see " you!

I won't be testing til Monday earliest!!

stillfrazzled · 12/01/2011 20:44

Hi all,

Fairly crappy day here. Finn gained another ounce and is now on only breast milk, BUT has had an episode of apnoea (failing to breathe for at least 20 seconds).

Is apparently more common than not in preemies, and we're assured he will grow out of it, but being told my baby has forgotten to take another breath sent me into a total spin and I'm not out of it yet. How am I going to be brave enough to bring him home?

Also, DS1 has, after a year totally dry, wet himself three times in two days and told me he doesn't like me several times, too. I don't know what to do, he obv needs reassurance but is too small to talk about it properly and I'm clearly not saying the right things.

Have been on verge of tears all day and may have to go off and snivel now.

Sorry for self-involved post, just needed to write it down. Hope you all had a better day.

x

notsobarrenmorebrokenbrook · 12/01/2011 20:59

Hello all, sorry for my absence again, I don't get much of a chance to post that regularly so sorry if miss anything important as I try to catch up as best I can.

lunatic so pleased you are comfy and are doing ok in hospital and they are looking after you. Look after yourself and relax as best you can for now x

julez have you called and got yourself checked? Hope so. Don't worry about making a fuss (if you are) I know I'd be exactly the same. Hope you're doing ok and not worrying yourself silly. Thinking of you.

glittery no name change, it's good to have a little sparkle going on in dull cold January Smile Hope you're doing ok after your Mum didn't help much. She probably doesn't even realise she upset you!

bee hope appointment went ok for you today

mumatron I bow to you and your giving birth, amazing! And huge congratulations to you and DP, lots of love. Can't wait to see pics x

hairy I agree with the others that it was brave of you to post that on FB. No way I would ever have the guts to do that. Feeling sicky are we?! When will you test??

Quick question from me; had a letter from St Marys today saying the internal scan with dildocam had shown suggestions of adenomyosis (whatever the feck that is!) Anyone have any experience of it? I think fro
a quick google search it's a form of endometriosis. Hmm. Hmm

notsobarrenmorebrokenbrook · 12/01/2011 21:08

frazzled crossed posts. Honey, so sorry you are feeling crappy and that you've not had a good day. My best friend had two prem babies, both about 26 weeks. It's normal for them to forget to take a breath and struggle a wee bit early on, they do learn eventually, it's almost like practise makes perfect, I promise you it will get better and bringing him home wont seem so daunting. I don't have any advice about your ds1, although I'm guessing it's a big emotional upheaval for him too and I'm sure you're doing everything right, try not to beat yourself up too much. Big hugs xxx

digitalgirl · 12/01/2011 21:11

coconuts you can google 'checking cervix position', but I really recommend reading 'Taking Charge of your Fertility' by Toni Weschler. It tells you everything you need to know about how to tell when you're ovulating and how to confirm you've ovulated by taking your temps. It's fascinating stuff and I'm really surprised we're not taught this stuff at school. That extra discharge you're getting is fertile cervical mucus (also known on the conception boards as EWCM - the EW stands for egg White as it can resemble the raw stuff). EWCM is sperm food and keeps the little swimmers nourished for their long journey ahead! You definitely want to be shagging when you see that stuff.
Temping can't predict ovulation but it can help confirm it - so you at least know when af will be due. Saves poas when you've not even ovulated.

frazzled exclusively on bm is fantastic news. I think you can get baby monitors that can also monitor for apnoea. But hopefully Finn will have grown out of it soon. I've also read that co-sleeping can reduce it, as the baby's breathing is stimulated by being near you. But am no expert so you may want to research that. Sorry ds1 seems to have regressed a little. He's probably just picking up on all the worry, but will definitely bounce back once you're feeling more confident yourself.

ALovelyBunchOfCoconuts · 12/01/2011 21:32

Thanks digi and hairy have been googling like mad. I had a feel last night before my bath to see if I knew what I was feeling for and I felt something that I presumed was my cervix and it was soft and relatively open as far as i know however I have never felt one firm or closed so nothing to compare to. I think I may actually be ovulating for real Grin Damn DH having the flu! We should definitely be taught at least some of this stuff at school, it's fascinating. Off to amazon to buy a BBT. I sleep with my mouth open, my googling tells me I should therefore temp vaginally? Do I just put the tip in or put it right in? It's a learning curve isn't it!

frazzled Glad to hear Finn is gaining weight steadily. I'm sure he will grow out of the sleep apnoea, as barren says it's just a matter of practise for him. He is in the right place. How old is your DS1? Maybe you could buy him a present from Finn and explain that Finn is really pleased to have a big brother like him and try and involve him in lots of things. Maybe he could draw you a picture to explain how he is feeling? I've heard the regression is common and I'm sure he will just be sensing the tension and anguish, lots of cuddles from mummy when you aren't at hospital will be the cure I'm sure. Although I guess you've probably already thought of everything I just said Grin Take care of yourself too xxx

brook I think the adenomyosis is an internal form of endometriosis. I may be wrong but it doesn't necessarily have anything to do with endometriosis. I think endo is external to the uterus but adenomyosis is internal, on the wall of the uterus IYSWIM. Do you have any symptoms of it? I'm tempted to google it for you but don't want to link you to something unreliable.

notsobarrenmorebrokenbrook · 12/01/2011 21:54

coconuts I think you are right. I don't have any symptoms apart from my periods being painful but they always have been so I'm used to it now after 20 odd years of periods! From what I've read there's nothing that can be done unless I have a hysterectomy! Ha! That's not an option so hopefully it's something they can deal with at St Marys if when we fall pregnant again.

I've never gone down the route of temping so I can't help, although I can't see how sleeping with your mouth open will make a difference? You'll have the thermometer under your tongue in your mouth which will be closed for the duration of you taking the temp so I can't see how it would be a problem. I could of course be wrong!

ALovelyBunchOfCoconuts · 12/01/2011 22:06

I did google but didn't link as I didn't want something to tell you it needed an hysterectomy. Shock that nothing else can be done. On the plus side you are under a fab hospital that know more about it than me and hopefully when you get a BFP it shouldn't make too much difference.

I wish I didn't sleep with my mouth open, it makes me dribble Grin

notsobarrenmorebrokenbrook · 12/01/2011 22:17

Ha ha! I often wake up with my cheek covered in dribble and stuck to my pillow! You're not alone Grin

ALovelyBunchOfCoconuts · 12/01/2011 22:24

I get crusty bits too if I've changed sides and let the other one dry Blush Grin

MummyAbroad · 12/01/2011 22:50

coconuts hmmm Crusty bits eh? Nice place to join the conversation Grin

I'm a dribbler too and it doesnt seem to affect my temps. I found that after a couple of cycles I worked out roughly what my post ov temp is, so its quite easy to recognise and dismiss "odd" temps due to funny sleeping --massive boozing sessions-- etc

I have a tip for cervix checking too! stick your index finger up, and sweep around in small circles. You are looking for a small bump (especially in non ov state, its quite small) that is the very tip, if your fingers are long enough you can feel it spreading out larger behind the bump. Happy hunting Grin

nosobarren sorry I dont know about adenomyosis either. Have they told you what they plan to do about it yet?

stillfrazzled I can understand how not breathing would be a bit scary! I suppose if the people at the hospital arent worried about it, then you should try not to either. My DS regressed a bit last time I was pregnant and lounging around on the sofa instead of spending all day with him. I bought a book called "I'm a big brother now" and it was a good jumping off point to "talk" about it all and give him a bit of extra reassurance.

I had dildocam too today. Apparently endometrium is a "bit thin" 5mm, up from 3mm, BUT this is not the part of my cycle where it would be thickest anyway, so I have just decided not to worry about it for now. HSG is tomorrow - plenty more things to worry about after that instead Grin Also I have a "naboth" cyst in my cervix, which is apparently "nothing to worry about" I will add that one to my To Google list Grin

justmee · 13/01/2011 11:06

Lovely bunch
its not sunk in but iv been in bed for 2 days :( full of cold

Had a doctors app yesturday as i called and told him i had a possive he said well do a scan i did say no as im only 4 weeks and if i dont see anything i t will worry me but he said to have one anyway and no it didnt show nothing so i started to worry again iv had a bit of brown spotting not much but some and my boobs have never been sore maybe its just early :S i asked when i was going to start on heparin and he said we need to see the sac first as if its not there and we give u them it can put you in danger well that was it i totally freaked out and was asking so many questions and he was on about something where in recurrent mc my body might be flushing out the pregnancy even before its made the sac iv never herd of this and have been googling none stop but cant find it i have seen a sac in my before pregnancys has anyone else heard of this ??

i wish this pregnancy would run smoothcly iv had enough it feels like its never going to happen and its all heartbreak i walked alot yesturday and come home with a very bad back pain so that worried me but i layed down and it seems to have gone this morning
its like living the same thing over and over again :S:S

sorry for my raant i told you girls you wouldnt get rid of me :DDD xxxx

Julezboo · 13/01/2011 11:12

Just to update you all. It all stopped again last night. Tis very frustrating. I think I will make my section date after all...

Realisation just hit me that its all becoming very real now Shock I will turn 36 weeks on Monday. This baby will be out into the world very soon and I am vry scared of things going wrong :(

OP posts:
ALovelyBunchOfCoconuts · 13/01/2011 11:21

justmee did you have an internal scan? The sac doesn't generally appear until 4-5 weeks depending on the skill of your sonographer obviously. Did they take bloods to check your hCG levels? Don't panic, perhaps you ovulated a bit later than you thought. Have a look at this

mummy I googled, it doesn't sound serious, many women get them by the sounds of it. Thanks for the tip I'll have a hunt around later Grin What is that website where you input your temps? My memory is terrible!

Had a rough night last night. DH is slightly better but now DD is poorly again with the same as what she had before. Really bad cough to the point of gagging. The poor thing hardly slept so I put her in bed with us, she must have dropped off at some point but she didn't wake until 10.15 so no playschool today. Just wish we were all healthy again.

justmee · 13/01/2011 11:29

No bloods he told me to come back next week to have another look a week of worrying is horriblee he looked for a bit not really long but when i had told him how many weeks and that i didnt want a scan he said we probly wont see nothing but still look i thought the only reason for a mc where they can see a sac was ectopic but he said some other weird name and i was saying what is that iv never heard it but i think he realised i was getting scared and then said well thats not for you to worry about at the moment because its to soon

ALovelyBunchOfCoconuts · 13/01/2011 11:38

So was the scan internal or external? If it was external it wouldn't be very accurate. I'm not just saying this to make you feel better but I really think waiting is the best thing to do. Usually it isn't recommended to have the first scan until at least 6 weeks but even then if you have your ovulation dates wrong there is still room for discrepancy. I'm surprised no bloods were taken. Can you write a list of questions to ask when you go next week so you don't forget anything? It is nice to know the Crown to Rump length and the heart rate so you can come home and google if they don't explain things well. Was your sonographer's English good enough for you? If not take someone with you to help. Presumably, he would have scanned your ovaries and tubes as well to rule out ectopic. Please don't panic lovey.

justmee · 13/01/2011 11:55

no he didnt scan my ovaries or anything :S it was an internal scan but he thought last time it was eptopic but it wasnt i am worrying aswell because i mc 1st time at 7weeks then 2nd at 6 w4 days and then 3rd was 5 weeks 4 days so im thinking omg am i going to mc earlier now at like 4 weeks 4 days or somthing ..
i went on myself this time and i did ask so many things more than what i would have done when my partner was there and on the plus side my doctors english has inproved so much i dont know if it was because i was alone and therefore he had no choice he had to speak english where as before he alwasy spoke turkish and a bit of english as he mostly talked to my partner

i dont really know what to do at the minute in my head im thinking go next week and then once the sac is shown you can start injections then im thinking what if i go and its not there but if i dont go and leave it ill mc again and it will be my fault the doctors is a good hour away so its not like i can just run in there :(

ALovelyBunchOfCoconuts · 13/01/2011 12:17

Do you have to pay for your appointments? Is it private treatment in Turkey? Can you go to a different doctor for a second opinion? But even if you do, it is still a bit too early to see anything. What was the date of your LMP? Ideally I would say wait until 6 weeks.

"but if i dont go and leave it ill mc again and it will be my fault" - It will never be your fault if you mc.

justmee · 13/01/2011 12:32

yes i have to pay 50 pound each time i go i was seeing the a different doctor but things didnt go very well with her she treated me very bad so i was told to use him and iv been happy with him so far iv tucked myself into bed and am hoping this baby decides to stay there :) thank lovely bunch xxx

ALovelyBunchOfCoconuts · 13/01/2011 12:48

If I were you I would rearrange for 2 weeks time. But obviously it's up to you. Earlier up in the thread when glittery got her BFP she waited until 6 or 7 weeks for her scan I think to definitely ensure there was a heartbeat. I'm sure later on when everyone else pops online they will give you some more advice :)

Sending you sticky thoughts, stay positive :) xxx

MummyAbroad · 13/01/2011 13:34

coconuts its fertilityfriend.com If you sign up via my chart then we both get 5 free VIP days!

justme I really feel for you, I know how worried you are about getting treatment. coconuts has given you some good advice especially about the blood tests. If you ask to have your HCG level tested TWICE (do one and then do the second one 48 hours later) you can get a really good idea of how the pregnancy is progessing. The second number should be roughly double the first number. This might give you the reassurance you need, as coconuts said at the early stage scans cant really tell you much. Be strong and hang in there. xxx

ALovelyBunchOfCoconuts · 13/01/2011 13:38

Thanks mummy I did sign up before but have changed my email address since and forgotten all my logins. I will do it now :) I need to get on with stuff though not MN all day haha!

LAF77 · 13/01/2011 18:48

hope all is well with our new mums and soon to be mums.

frazzled how is finn, still gaining weight? Is DS1 more settled?
julez is your mum with you now? I can imagine it is so scary to realise that you will have a baby in about a month or so. Hopefully, you have good support in your hospital and they will keep a close watch on you.
lunatic glad that you have some access to the internet as ESH. When is your EDD, 9th Feb? I'm not due to go back to ESH until 15th Feb, but if you are especially bored, perhaps I could pop in and introduce myself in person.

justmee i know how agonising it is, waiting for each milestone to come around. If you have to pay each time to go to the GP, and in another language, that is even more of a challenge. According to Wiki, which is hardly the gospel, you wouldn't see a sac until 5 weeks. Who told you that you needed to get injections, a GP in the UK or TR? Can you ask them about it? I would have thought once the pg is confirmed, you can start.

hairy your fb message was great. I don't have the courage to post it to my profile.

However, it seems like it is just one announcement after another in my world. One of the ladies at work announced her pg and she is due around when I was the third time around. I had to blink away tears. They have created a little parking space for expectant mothers at our office which causes me to breathe in deeply when I walk by it.

I'm just trying to create a barrier in my mind that pg isn't something that is going to happen to me in the near future, so I won't feel disappointed as time goes by. I am waiting to hear if St Mary's will book me in based on my GP's notes or if I have to wait for ESH to see me. I am prepared to go absolutely bananas with the consultant if they suggest further testing on me before they refer me on to STM.

I have to say that the support from this thread has been incredible. There isn't a leaflet that they give you when you have multiple miscarriages, what you need to do next to have more investigations. I don't know what I would do without it. My GP didn't seem to know about St Mary's clinic, so that would not have been the first place I would have been referred to. I can't imagine what it was like a generation ago going through this without the internet.

waves to glittery coconuts digital lulu and anyone else who is lurking.

MummyAbroad · 13/01/2011 20:34

Just had my HSG done - owch! Glittery thanks so much for the advice about the drugs. I took 2 declofenac the night before and the 400mg of ibuprofen and paracetomol an hour before and it STILL hurt (only for a few seconds though, each time the dye went in) I think I would have been better on 800mg max dose of ibuprofen looking back, but I am SO glad that you told me to take something, that would have been agony otherwise. After the pictures were taken the doctor asked me to turn over 350 degrees three times (to move the dye around?) I did and ended up covered in dye and blood and then it got smeared all over the bed, me and the x ray machine! Is this some wierdo costa rican thing or did you have to do that too? she took a few pics after that and then it was over, the nurse gave me a blank stare afterwards, I presume it was her job to clean it all up.Hmm

I didnt get to pick up the results straight away, I suspect they wanted to show them around as Ashermans is massivley underdiagnosed very rare and therefore interesting, especially as I showed them my operation report from an AS specialist from the UK. All gyne's over here (and a large number in the UK) believe that AS is incurable, so they were surprised to see the end of the report says I can TTC. Lets hope I have at least spread a bit of awareness about the condition.

LAF my heart goes out to you. The reminders are everywhere, I too have got all emotional walking past a mother and baby parking space. I dont see how you can be denied the referral now, but I am glad you are prepared to go bananas if thats what it takesGrin

Glitterybits · 13/01/2011 20:50

Lunatic I'm so pleased they're looking after you. Have stopped howling now (tears...and occasional baying - but the latter is all my own work and I can't blame you for that one! Blush) I'm really thrilled that the midwife who delivered DD2 is there and remembers you. Of course no one who was there would think you were even remotely bonkers, which is why I am glad someone is with you who WAS there. Leads me to believe you'll get better care as a result. It certainly sounds like you have a nice little Travelodge to yourself, which is a good thing. I hope you managed to get a reasonable sleep last night too.

Coconuts It sounds suspiciously like your mother has not been reading those links you've been sending her. Sigh! I've had testosterone levels checked too. It's a pretty standard thing regardless of your problem. Whenever there's a hormonal imbalance they check to see if you've got too much of some things as well as a lack of others.

It was probably your Mum's attempt at a joke in an awkward moment, but you just expect more of them somehow, don't you? I honestly don't know why I still do actually. When I was a little girl, I thought mine was an angel. My view has become somewhat skewed the older I've become. This could be something to do with my life becoming ever more traumatic as the years have gone by, but even when I spell it out to her to try and show her how insensitive she's being, I get the feeling she finds any conversation about this a bit outdated and a nuisance. She also uses my DS as a means of distraction when I'm pouring my heart out, which really pees me off. I wish she'd just tell me I'm boring her tbh!

I was going to suggest joining Fertility Friend for all your charting/ cervix checking needs, but it seems Mummy has already pointed you in the right direction. You get about ten free charting lessons when you sign up and it's quite enlightening to learn about bits of your anatomy that you never even thought about, potentially even after giving birth!

I always sleep with my mouth open and always took my temp orally nevertheless. Never could quite get my head around waking up, smiling at my DH and then inserting a BBT where the sun don't shine (in either of the other two options!). Tbh, after a while you get used to discrepancies and there are always some. Your room might be too hot, your DH might have a slight temperature, you might have had a drink or two too many. It really can take over your life unless you let a few things go. I found the hardest thing was taking it at the same time every morning, particularly if I had to get up with DS in the night. Anyway, it gives you something else to focus on/ think about amidst all the worry, but it does tend to make you hopeful one minute and despondent the next if your temps misbehave.

frazzled you're on such a rollercoaster of emotions right now, not to mention the tiredness that comes with being a new Mum. The breathing thing must be a real worry, but I'm sure they wouldn't even think of sending Finn home until they are certain he's got the hang of it.

You already know this, but regression is pretty much standard for any older sibling when Mummy has a new baby. This becomes even more of an issue when the baby is prem and Mummy is 'away' looking after the baby because he can't come home yet. Your DS1 is presumably thinking you're running away with the new baby and he's bound to feel a bit usurped and unsure of where he fits now. I'd agree that it'd be a really good idea to buy him a special present from Finn and tell him how excited his new little brother is to have a grown up brother who can take care of him when he comes home. I'd refer to Finn as 'your baby brother' a lot, so your DS1 sees him as something he can share and not Mummy and Daddy's new baby who is making him an outsider. Just read that back and it sounds so condescending. Apologies if it comes across that way. I was just thinking as I typed. I'm sure you've thought of all this already. It's just so much harder when you're so tired and fraught!

Anyway, give yourself a bit of a break. It's really early days yet. You're knackered and emotional and desperate to have your family all together at home, and your DS1 is no doubt manipulating that situation in the only way he knows how by using the HATE word. Easy to say, but try not to let it hurt you too much. My niece (3.9) still wets herself for attention sometimes. It's her only way of reminding everyone she's one of several siblings and she prefers bad attention to none at all.

LAF Had a little snivel when I thought of your work parking space. Tbh, there were so many pg announcements that I was forced to hear this last year, that if it had happened at my work, women would have been fighting over it.

I fully hear you about the lack of support for multiple miscarriages, but then I was pretty underwhelmed by the leaflet I was given the first time around - in terms of telling me what to expect, both emtoionally and physically. Frankly, in hindsight, I was a bit appalled. Had I more of a medical background, I'd be tempted to suggest writing a slightly better version with the help of the ladies from this thread. The truth is, no one really knows what to expect or what to say, as everyone experiences all this very differently. I think we can safely assume that the experience will always be a lousy one, but I suppose there's a fine line between informing and scaremongering.

It must have been even worse in years gone by. Having said that, people didn't get their pregnancies confirmed until much later, nor did they have access to scans. In some ways, I wish I could be without the internet sometimes, as it's often as much of a hindrance as it is a help, but it does make you wonder what happened to women who had particularly bad miscarriages. Even periods were taboo, so I can only assume that they must have thought they were bleeding to death. Heaven knows how they coped mentally. Stiff upper lip and get on with it, I suppose. The way Brits were supposed to behave.

I'm so sorry that you had to endure yet another announcement. It becomes a cruel joke that the fates seem only to be playing on you, doesn't it? Unfortunately, that feeling was driven into me for so long, that I still feel angry when I hear announcements and imagine my pregnancy to be a fake. I suppose it's a defense mechanism. I refuse to believe it until I have something concrete to believe. Fingers crossed for a referral to ST Mary's very quickly. Huge hugs in the meantime. xx

Julez Sorry it's all stopped again, but at least your body is giving you signs. I imagine it's a very scary time right now. So near, yet still so far and all that. Take a deep breath, lady. We're all rooting for you. Won't be long now, even though I bet it seems like the longest pregnancy in living history.

Mummy How did it go? I'm not sure whether you'll have posted or not while I've been wittering away, but I realise you're in a different time zone, so good luck if you've not had the HSG yet.

Lady How did your appt go?

justmee I know it's terrifying, but I'd agree with the other ladies that you should wait until at least 6 weeks for a scan. Otherwise, it may be too early to confirm anything and you'll spend another week worrying if you'll see anything at the next scan. Even knowing my exact date of conception, I was still measuring a few days smaller than I should have been on my initial scan, so I'd hang fire for now. Blood tests for HCG levels is probably the best course of action to reassure you.

mumatron Hope you're getting some sleep.

Waves and hugs to everyone else. Hope everyone is okay.

I'm 11 weeks today and don't feel very pregnant, although I do feel very ill. Have had awful migraine headaches and nausea for the past two days and they make it virtually impossible to function. My poor DS has a very boring Mummy right now. Also, my nose has gone beyond the point of congestion to feeling totally blocked and sore. I remember having this problem with DS, though not to this extent. I'm also having horrible sciatic pain, which I had throughout my pg with DS last time. I suppose I should feel quite positive with these symptoms, but I'm in such denial, it's untrue. Just under 2 weeks to go until my scan. Wonder if I'll feel as numb as I did last time, even though it was good news!?

Other than that, I'm doing okay. Taking each day at a time and trying not to be too much of a whingebag to DH. Some days are harder than others, but I keep checking myself and reminding myself that I am very lucky until I know otherwise.