Made it to 46! Well, that’s something.
Pretty crap night. Sweats and feeling awful, pain not too bad thankfully but just feel so ill, more than when I got here, I know I couldn’t make that trip now.
Oxygen levels low, really tachycardic and low BP. Which isn’t unusual but was a bit worse than it has been. On bags and bags of fluid still and I’ve puffed up a lot - don’t know if it’s that.
In the last day, I’ve developed really painful ascites in my abdomen and now look honestly like I’m about to give birth to a fluid baby. Making it almost impossible to eat more than soup. Those are going to be drained during the op.
Surgeon came last night and told us more - was a bit upsetting actually as I hadn’t really understood the limitations of what they can do here, it’s not a simple stent and go. They are putting in drains only today to see if it helps - no guarantees as they can’t go through main biliary tree as that’s apparently just not going to work as tributary branches are blocked, so they are doing a subsidiary one at the back of my liver which is still a bit functional. So it’s not going to clear ALL the jaundice and may not work at all. But I have zero other options. If the drains do work, then they will stent on Monday - which he said is an easy thing after the drains, won’t be as big an op. So, it’s all on whether these drains work over the weekend. If they don’t - what do I do? I just don’t know. I’m not fit enough to go back home. Do we fly in mum and Jacob just to see me go?! Sorry, I don’t want to be so negative but I’m in a lot of anxiety this morning, a lot of sweats and zero energy and extreme tiredness. Feeling at my lowest point so far.
On to more positive things - your pics are fantastic. The prayer that is being said for me in someone’s church is just beautiful, your animals are adorable - Teddy especially is a doll. Thank you for those, they keep me going in the more desperate moments.
I’ll see if Kerr can take my phone and update you later - he’s not really familiar with how mumsnet works, but I’m sure he’ll manage.