Pamela thread 3 - Bile Duct Cancer, off to London!

[WilsonMilson]

Just starting a new thread.

@Lougle

Excellent, thoughtful post.

Hi Pamela,
All the best to you (and Kerr). I am on the move today so did you a prayer card in York minster this morning (for their prayers tonight) and Durham Cathedral this afternoon. I'm off to Escomb tomorrow at 9am which has a wonderful ancient church, so I'll say prayers for you there. Much love from a stranger.

I disagree. Given the emotional posts OP had already shared and the level of detail about her medical journey, I think their response was insensitive. So many times they've just given a vague one line 'we've checked this person out and can't see any cause for concern' but this time they went into chapter and verse about how they can't be 100% certain etc etc. It was a disparaging response given the circumstances.

Yes excellent post @Lougle.

And now can we please just all go back to making this thread a supportive and safe place for @WilsonMilson.

If posters do want to feel they want to do something more then they can donate to pancreatic cancer research or similar.

I apologise Pamela, I think I was one of the first to suggest donating money to get you to London and I’m fairly new to MN and didn’t realise it would trigger a response from them. I’m so sorry if this has added to your stress in any way, I understand they have the interests of all posters at heart and have to cover themselves but think it read coldly and a bit ambiguously.

I also send my love and prayers to you. My DH and I have just missed a flight due to a nasty accident on an autobahn in Germany (I think everyone involved was okay but cars and lorries were involved). Usually I would be so uptight and panicky but honestly, because of you, I just let it all go and let the stress wash over me. Life is too precious.

I’m so pleased you are in competent, caring hands. God bless to you and your family. Caroline x

Ignore the MNHQ message - as someone else said, it's just an auto response to a report.

Just take all the positives you can from this - so many people are rooting for you.

Right here for you Pamela, with prayers, hopes and love.

You’re really doing so brilliantly - I can’t believe how pleased I was to read of your decision to go to London, it was so brave and exactly the right thing to do. I feel proper hope for you.

I know lots of people have experience and knowledge of cancer but those in my life have been very unwilling to express how they feel both physically and mentally which is completely understandable but reading your posts has informed me so much and I’m really grateful for this. The insight is really rare and valuable, to me, certainly. Loads of people know so much more than I do and laying bare your experience has been very raw to read but fundamentally useful.

fuck the Antrim stuff. Really, fuck it and them. Looking forwards to good treatment and good doctors and everyone busting a gut to fix this.

I've been reading all your messages and you are constantly in mine and my families thoughts. Wishing you all the best tomorrow for stenting and what follows. As others have echoed please let us know if there is ANYTHING you need! You can do this!!!

You are brilliant, Pamela and beautiful. Very happy birthday for tomorrow.

Very best wishes for a good outcome tomorrow. We’re all with you Pamela xxx

Sweetheart please keep posting and keep fighting you are an absolute star - I for one will keep checking all the time to see how
you are doing ❤️ you are going through everyones worst nightmare and doing it with grace and dignity - I hope with all my heart you feel better after your op and your treatment can start so you can make more memories with your beautiful family ❤️ totally ignore the negativity Pamela
and thank you so much for keeping us updated - we are all behInd you with gentle hugs xx

Yes amazing positivity coming from you Pamela at this shall we say challenging...time! Positive thoughts from me to you ✨️ Hope you get some sleep tonight xx

Positive thoughts for a successful stenting tomorrow Pamela, and I hope your birthday is the best it can be. ❤

I’ve been sharing this thread with the doctor husband over the last few days and he his astounded but, sadly, not surprised at how you’ve been treated. I know that you don’t want people to ‘give’ anything, but one thing people can give is their attention.

Please read what has happened here and know that the state of the health system in N Ireland is what is headed our way in England if the NHS continues to be run down to the extent it currently is. Every day my husband is speaking to people who are waiting far too many weeks for cancer referrals, or chasing up hospital departments. It’s only getting worse, not better. Don’t let this happen.

Delurking to say there are loads and loads of us following along in the background and we all believe you and are rooting for you and your lovely family.

You are brave and eloquent and I'm over the moon you're being looked after properly now.

Keep posting if it helps, we're all here.

Hi Pamela. I have been following your threads and thinking of you all the time! I just want to say as ill as you are you are still as beautiful as ever! Good luck to you sweetheart xx

You're incredibly brave, Pamela, and I'm so glad you made it to London. I hope you have a comfortable night, and I'll be thinking of you tomorrow.

Love, light and peace, Liz in South London

So good to see you in your comfy room in London Pamela! So happy that you are there ☺️ everything crossed on going and thinking of you loads xxx 💕

Thinking of you Pamela, you are doing amazing & so pleased to hear you are now being properly looked after 🩷

Thank you, thank you, thank you.

And I don’t want Mumsnet HQ or anyone else to get a bashing here, I just want to draw a line under it, don’t want to hear anything more about fundraising etc - I know it was meant so well meaningly. I am just here for support, your wonderful messages (latest church pic was wonderful) your prayers by the sea, your flower pics, animal pics, candles, words of cheerful and hopeful anything.

I just want a loving community, sounds soppy but that’s all. I also actually want something for my family to read if I’m not here anymore and take some comfort in if. I want to be able journal my story, actually I want to try to help in any way I can too, because I’m by far the only person going through this or caring for someone going through this, and if I can make sense of anything to anyone while I still have the intellect and the ability to tap on my phone, I will do that. I just want to get back to the spirit of my thread and move onwards. Big day tomorrow.

Wishing you so much love, luck and strength for tomorrow.

You’re gorgeous. 💕

Keep on keeping on Pamela and I hope your birthday tomorrow is a turning point for you! Xxx

He is talking about you Pamela, in this instance:

Happy date night.

Sending love from Italy Pamela, you are a strong person x