Active discussions

Please or to access all these features

Talk
Life-limiting illness

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Original poster

Pamela - Bile Duct Cancer (last thread pancreatic and liver)

1000 replies

WilsonMilson · 30/06/2023 18:19

Hi everyone, I’ve created a new thread as I am overwhelmed to see that the last one is full. You have all filled me up with your hope and encouragement. I’m keeping going as long as I possibly can!!

OP posts:
Thread gallery
16
lucylulululu · 04/07/2023 22:48

So so pleased you've decided to go. Just relax and rest as much as possible on the journey so it doesn't feel as exhausting if possible.
There is hope yet, and you ARE brave, you are a true inspiration and I wish I had even an ounce of your bravery and strength.
Look forward to further updates on your progress once you've met with this fabulous oncologist and sending all of my love ❤️
Lucy, from Darlington

on a side note I think it would be fun and positive to annotate a little map (be it a real one or on an app) with little dots of where all of us are in the world (those who are comfortable sharing of course), so that you can physically see how far our support and love to you has travelled xxx

Vetoncall · 04/07/2023 22:49

I'm so glad you have the chance to go to London and you're taking it. Wishing you a smooth journey and all the luck in the world once you are there.

CrotchetyQuaver · 04/07/2023 22:49

Just catching up

I AM SO GLAD YOU'RE GOING TO LONDON!!

Bon Voyage, you're 100% doing the right thing giving yourself this chance so there can be no what ifs afterwards xxx

capricorn12 · 04/07/2023 22:49

Pamela, I'm not a praying type of person but I'm willing your recovery with every fibre of my being xx

marmaladeslade · 04/07/2023 22:50

I hope the trip goes quickly, take some headphones and a pillow and blanket. Maybe a cardigan - they are good for hospital too.
From Fi Australia x

Soundsthesame · 04/07/2023 22:50

I’ve followed along silently but just wanted to send my love and best wishes your way. Safe travels.

loobylou10 · 04/07/2023 22:51

Pamela - wishing you a safe swift journey tomorrow and love and strength for what the next few days will hold. Love also to your wonderful boys xxx

blackpear · 04/07/2023 22:51

I haven’t commented but have been following. Your family must be so bloody proud of you, you brave, wonderful woman. Thinking of you and hoping so much you get the time you all deserve so much.

girlswillbegirls · 04/07/2023 22:52

Pamela, I think you are really doing the best thing and it's so admirable :)
I hope you have a good enough journey. Will keep thinking of you every day, every hour. Sending you hope x

EachandEveryone · 04/07/2023 22:52

Have a safe journey and good luck with the op xx

Sugargliderwombat · 04/07/2023 22:53

WilsonMilson · 04/07/2023 21:03

I have a massive decision to make by tomorrow morning.

Spoke to Prof Bridgewater tonight on teams. He is just the most wonderful oncologist, honestly the only person who has given me any hope at all in this utter farce.

He has said if I stay here it’s basically a death sentence, maybe a few weeks, probably less. They have clearly decided I’m not for chemo and perhaps I might find I need to accept that and maybe that’s best because I get to be comfortable at home with my family. He also disagrees with their mode of stenting.

Alternative, I go to London tomorrow. Get bed in Harley Street. His surgeon stents me on Friday and all being ok, chemo starts next week. Absolutely no guarantees as he agrees the latest CT scan is really really bad. But it’s a chance. It’s more than I have here.

So it’s a peaceful(ish) death at home or a chance or perhaps life and time (or also maybe death) in London.

My friend has said we can stay with her, well Kerr will as I will be in hospital although he’ll be with me mostly I imagine. I would just have to try to fly commercial as it’s too much juggling to organise private flights by tomorrow and would ask for wheelchair assistance and get a car to and from airport of course.

I just do not know what to do. Hardest decision of my life. Should I just go? Would my family always wonder what if? Jacob’s gut feeling is to go, but he just wants me to live, my mum is on the fence as she see’s how ill I am. Kerr is for going as he just can’t bear the futility of the situation here. I’m in a total flummox.

Op I feel for the choice you have to make, but I just have to say I know someone personally who I attended her vowel renewal once she had been given a few months to live. She had taken part in a trial treatment, it worked and she is still here with us 4 years later, happily working back with us all. It would not be crazy to go to London. There is always some hope ❤️

Northernsoul72 · 04/07/2023 22:53

Thinking of you and your family Pamela. Praying for a comfortable journey and some positive news in London

EvenLess · 04/07/2023 22:53

I've been following your posts ♥️ wishing you as easy a journey as possible tomorrow and crossing everything that you get more time with your family xx

StartupRepair · 04/07/2023 22:53

Pamela you are extraordinary. Go well to London. Sending love and clunky old agnostic prayers.

Mars27 · 04/07/2023 22:54

I've been following since the other thread and I'm happy you decided to go. Wishing you all the best in the world, I'll be praying for you x

Justwingingit2005 · 04/07/2023 22:54

I have just seen your posts and read them all.....

You are an amazing woman. I wish you all the best for Friday.

When you have cancer time is like winning the lottery. Grab any chance offered.

dancingdaisies · 04/07/2023 22:55

This reply has been withdrawn

This has been withdrawn at the request of the poster.

Edders71 · 04/07/2023 22:55

What an amazing woman and family. Following your story with every ounce of hope I have x

adriftabroad · 04/07/2023 22:56

Thank God you are going.
Thank God for Prof Bridgewater.
Tomorrow, you are going to be on my mind all day. Every bit of me is wishing you well. As someone said above (Kate?)

Lift to airport
Airport assistance
Flight
Airport assistance
Taxi to Hospital

You will do it xxxxxxxxxx You CAN do it.❤

Dibbydoos · 04/07/2023 22:59

Sending strength and best wishes. 💕

ChubbyChinook · 04/07/2023 23:00

De-lurking to wish you well with your trip to London. Make sure Kerr stays with you while using airport assistance, you are allowed him to accompany you on the airport golf buggy as your carer. He can also come in the wheelchair lift to the aircraft so you are not on your own. You got this! xxx

Theloosegoose · 04/07/2023 23:03

You can do this Pamela. We all believe in you and will be thinking of you as you make this difficult journey. I'm sure you won't regret it. Xx

Tootyfilou · 04/07/2023 23:03

I have been following your thread but not posted before. Wishing you all the luck in the world for tomorrow and your treatment in London. Sending all my love to you and your family. xx

everythingissoexpensivenow · 04/07/2023 23:04

Have been following your journey, what a powerful thread - You are incredibly brave and amazing and it's wonderful that so many are surrounding you with their support and positive wishes.

Praying for comfort for the journey and strength for you and your family and wishing you all the very best for Friday, it sounds like you'll be in safe hands.

xx

JackieQueen · 04/07/2023 23:05

Wishing you good luck for the next few days, Pamela, you are so brave! 💖

Please create an account

To comment on this thread you need to create a Mumsnet account.

Join Mumsnet Log In
This thread is not accepting new messages.