Pamela - Bile Duct Cancer (last thread pancreatic and liver)

[WilsonMilson]

Hi everyone, I’ve created a new thread as I am overwhelmed to see that the last one is full. You have all filled me up with your hope and encouragement. I’m keeping going as long as I possibly can!!

Please take this chance for treatment if you feel able to. You are a young woman who deserves a much better chance than you’ve had so far. Seize the opportunity with a doctor that actually wants to help you.

Whatever you and your husband decide I hope you can get some better pain management very quickly so that things are more bearable.

Take care.

Easy for us to say, I know, but I’m another one voting for go as it gives you at least a chance xxx

If you get even a little more time with your lovely family, I think it could be worth it despite the obvious difficulties. I wish you the very best of luck in making your decision.

All of you go.

Do it Sweetheart x

It sounds like Bridgewater has already got things in place ready for you Very easy for me to say but please please go.

It's so easy for me to say, but I think you should go and give yourself the best chance.

Whatever you decide though, you will decide for the right reasons. Much love to you, Kerr & Jacob xxx

I think on balance I'd give London a go. At this point you have nothing to lose, but hopefully something to gain. Even if its a few more months with your family, and hopefully having the pain managed better. I hope with my whole heart that there's some chink of hope ahead for you.

Go Pamela; please go to London.

I love that you’ve kept your sense of the ridiculous through all this. I have nothing to offer but prayers. You are magnificent, and surrounded by the love of strangers and your wonderful family. I don’t know what happens beyond our life here but I truly believe it’s beyond anything we can imagine.

You're right, I think they would always think what if, they know there is no guarantees but even a tiny chance of keeping you for longer is worth it. Go Pamela, go and fight, we're all behind you x

Please go. Don’t be in a situation in a few weeks where you’re wondering what would/could have happened.
Lots of good wishes from Banchory xx

Dear Pamela, I have sent you a pm. I am so sorry you are in this awful situation. I hope you are able to travel to London.

Go. Grab this chance with both hands and fight. You can do it.

Sending love, strength and hope from Devon xxx

Dear Pamela
Go to London please. Prof Bridgewater sounds amazing. I looked him up. He is your hope Pamela.
Yes you are tired and in pain but surely you can get some meds to carry you through a flight and transfer to hospital. I feel this is your best chance.
You have not been looked after by the doctors where you live. It is beyond barbaric.
You son and husband want you to have the best chance.
Take every ounce of strength you have and get to London.
<3

Hello Pamela, I would go - I hope you manage to get to London. Could Jacob come too...I think he should if possible. Hugs xx

Another one sending you love; and strength in making this decision. Imogen xx

Wishing you strength to be able to make such a hard decision!
If you do decide to go, it might be a good idea to ring the airline telling them why you have to travel and ask what they can do to make the journey more comfortable.
Whatever you decide we will be here behind you, and whatever you decide it’s the right one. 😘🌸

I felt the team in NI working on my df did not do enough, fast enough, for her (which included waiting ages for a stent as the only one who could do it was on holiday). I would say for your family's sake it is better to try everything. But I do realise that it might not be best for you.

I’ve decided to go.

I have no idea, apart from a lot of painkillers and even more willpower, how the hell I am going to manage it, but I bloody will.

We’ve been having a family meeting for the past hour and I have decided that need to know I’ve given it everything I can.

I can’t live with myself knowing I didn’t take every single chance, and I don’t want Jacob, my mum or Kerr to look back and wonder ‘what if’. Even if I die, I’d like to think I could be seen as brave and that I did everything I could - I would FAR rather be remembered that way.

Me and Kerr are going to go tomorrow. Mum and Jacob will follow in a couple of days depending how things are. Not sure my friend has room for them too, but we will cross that bridge.

It’s my 46th birthday on Friday, stent day. I hope that’s some sort of good omen as I’ve been absolutely dreading my birthday.

I think it would be a relief for you and your family to hand the future decision making over to Prof Bridgewater and his team. No more anguish and frustrations for you.

Go if you possibly can.

My heart leapt for you when I saw you might go to London, and I have tears in my eyes at this chance. Grab it. Just seen your update that you’re going for it. Well done. We are all rooting for you.

You need to go, lovely Pamela (or rather come as I’m in SE London).

You are getting no where where you are. Prof Bridgewater thinks he can give you a chance. Take it. You are 45.

If I can help AT ALL I will. Where I am is good transport links and I’m an NHS specialist nurse (not oncology tho). Can’t believe I’m saying this on MN but Kerr and Jacob can come here and stay. That’s the effect you’ve had on so many people on this thread!

Take the chance, love xx

Wishing you all the best of luck x

Good. I feel overwhelmingly that's the right decision. You WILL have the energy and determination to get there. Will be thinking of you all. x