Please or to access all these features

Life-limiting illness

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

My DH has just been diagnosed with AIDS

126 replies

Thisorthatwhoknows · 19/02/2019 22:18

I need some hand holding. It's been a really tough few years as a family. My DH was raped by 2 men on a stag do just before our 2nd DC was born. He didn't tell me for sometime but did and we've been trying to work through it together. But after 2 years of feeling ill he was admitted to hospital with pneumonia and subsequently diagnosed with AIDS. This is devastating. The form of pneumonia is also very serious. I'm scared he's going to die...

OP posts:
Sleepthiefismyfavourite · 19/02/2019 23:04

Your poor husband, I also recommend your thread Sad

Sending you lots of love and support

Sleepthiefismyfavourite · 19/02/2019 23:04

*remember

QOD · 19/02/2019 23:04

💐

Nat6999 · 19/02/2019 23:06

I'm so sorry for you both having to go through this, as a rape victim I know that being raped is bad enough but to find out this when you are trying to live with the horror of rape must be horrific. Have they ever caught your husband's attackers?

TortoiseLettuce · 19/02/2019 23:14

So sorry, this is awful. Is DC2 being tested? If you had sex while pregnant he/she could have it.

SheldonandMama · 19/02/2019 23:20

I'm so very, very sorry OP. This is truly awful. You and your two children are in my thoughts. It's incredibly unfair on you all. I hope something positive is on the horizon for you. FlowersFlowers

cudbywestrangers · 19/02/2019 23:21

Your poor dh and poor you, sounds like you've both been through the mill. I've worked within HIV for years and people can make amazing recoveries and live normal lives even after serious aids defining illnesses. I hope this is the case for your dh. Once the virus is under control it cannot be passed on, so once the pneumonia is treated the antivirals can start on that path. As others have said, accessing as much support as you can is a good idea. Your unit may have access to specialist counselling and there are various organisations like tht who can also help. I'd recommend this for both of you- a safe space to work through all your emotions is invaluable.

CoffeeRunner · 19/02/2019 23:27

I also remember your thread when DH opened up to you about the attack.

As if that wasn’t bad enough - now this. I am so, so sorry for you both.

I am also hoping & praying that your DH can recover well enough to be the one of the many people now living full & happy lives with HIV, thanks to the wonders of modern medicine.

Dextrodependant · 19/02/2019 23:27

So sorry you are going through this, it must feel like a never ending nightmare.

Make sure you get proper support to work through your feelings.

TheEndofIt · 19/02/2019 23:33

I remember your thread too Thanks

KennDodd · 19/02/2019 23:38

This is so sad op, I really, really hope this go well for you all. Life is so not fair. Did your husband get some justice after the attack?

Pinkyyy · 19/02/2019 23:56

Oh OP I am so sorry Flowers things will get better, for your whole family. Stay strong and remember that you need to help yourself so you can be there to help him too x

HIVpos · 19/02/2019 23:59

Hi OP, I’m so sorry to hear everything that you and your husband are going through atm - what a tremendous shock. I’m sorry, I didn’t read your previous post.

I can confirm what some other posters have said - someone who is diagnosed with late stage HIV with a CD4 of

SophiaLovesSummer · 20/02/2019 23:39

Oh OP, I can't read and run. My heart is breaking for you and your DH and my rage is deep. How is DH doing today, is he responding to treatment/stable?

I ask this gently and with no expectation, did he report the attack to the Police? I've been party to investigations years after the event so please know that it's not too late to report if nt already done so. My experience is that survivors are treated with the UTMOST dignity and that, to a man and a woman, every Police Officer I've ever worked with has had both compassion and also a desire to find and build a case against attackers where possible. I'm not pretending it's easy but I myself worked with many people who found some kind of help, some kind of closure, with successful prosecution of their attackers. Patently though that is a hugely personal decision but I wanted to offer what reassurance I can that reporting is not in vain.

I'm sending you gentle hugs and urging you to please ensure you access support services as well as DH as it's hard to imagine much that is more traumatic than what you have been through and are going through now.

This may sound so very little, but as well as commending specific services specialising in male sexual assault can I also point you in the direction of a truly brilliant book on Trauma - and processing and surviving trauma - by Bessel Van Der Kolk. He is regarded as a leader in the field of trauma and I personally know of survivors who have been helped by his work. His seminal book is called 'The Body Keeps The Score' and I can only suggest it as a tiny offering to try and help in some way.

I am so so sorry you are both enduring this and I'm desperately hoping DH makes a full recovery and start anti-virals soon. The only other thing of use I can add is that, like PPs, I know many people who are HIV+ but live full lives with viral load undetectable - I hope that is the case for DH once stabilised.

FlowersFlowersFlowers

Dohee · 20/02/2019 23:47

What a massive shock. I haven't seen your other thread. Was it guys on the stag do ie his friends who did this to him? I'm actually appalled that such an unfortunate set of circumstances could fall on anyone. Your poor DH.

Wakk · 20/02/2019 23:51

I remember you too OP. Sending you lots of love Thanks

InglouriousBasterd · 21/02/2019 00:04

I remember your thread about this OP. I’m so sorry you’re going through this.

A very similar situation with a friend of mine happened a few years ago. She found out her DP had HIV and had developed an AIDs related sarcoma. He was incredibly ill. They couldn’t start chemotherapy as he was neutropenic - that unwell.

Firstly - After initiating therapy his viral load was undetectable within a couple of months. Currently a keen cyclist and living life to the full.

Secondly - she did not contract it, despite having had a child with him etc.

Hope this gives you some comfort. Flowers

Steeve · 21/02/2019 00:06

Hi OP. I've also been raped (am male), sadly to present day it's something so many men feel unable to disclose. Societal stigma (amongst men) is extremely strong, sadly.

Bowchicawowow · 21/02/2019 00:07

I remember your story and I am so sorry to hear this news.

Steeve · 21/02/2019 00:08

Good luck for your results, and I'm filled with anguish for your husband, will be following and thinking of you both.

AdoraBell · 21/02/2019 00:19

What a horrible shock This, I don’t know much about HIV and AIDS treatment but my understanding is that it is amazing now. As SirVix mentioned, it can work miracles.

I hope your DH gets treated and recovers, has he had support for the psychological side of things?

Thisorthatwhoknows · 21/02/2019 07:23

Thank you everyone. I'm still waiting for my blood results. DH starts his anti viral treatment today and seems to be slowly responding to the antibiotics for the PCP.

He's not had any psychological support. He's found it very hard to disclose what's happened to him but recently confided in his parents and brother which is a huge step forward. I think he will get some counselling soon but I'm trying not to push him.

For those who asked. The attack happened abroad. It was 2 strangers that seemingly targeted him. He didn't want to report it and left the country the next day. It's awful to think they are still out there potentially doing this to others.Sad

OP posts:
Dohee · 21/02/2019 07:26

Is your DH at home or in hospital?

AlwaysSomethingThere · 21/02/2019 07:40

I am so sorry xxxx

Dohee · 21/02/2019 07:42

Is there any going back from an AIDS diagnosis to just being HIV positive?