Please or to access all these features

Life-limiting illness

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Not a good day. leukaemia diagnosis.

975 replies

biscuitsandbandages · 14/04/2014 03:44

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

OP posts:
Mama1980 · 23/04/2014 22:35

Just checking in to say goodnight biscuits.
Happy to join in and bring a hosepipe if it's rain you want we will all make sure you get rain Grin
Sleep sweet

Burmahere · 23/04/2014 22:47

Goodnight and enjoy the crocheting!! Smile xx

Spinaroo · 23/04/2014 22:49

Just catching up with how things are going for you today. Lovely posts from you today, will make sure I give my babies a hug when I go up to bed. Really looking forward to reading your yellow crotchet birthday post next February xx

storytopper · 23/04/2014 22:54

Hope you sleep well, biscuits and I hope all of your treatments go smoothly. Great to read you sounding so positive - here's to next February, raining or not.

Swex · 23/04/2014 22:55

Good evening biscuits. Well done karyotype (I'm a bit behind on the thread!) and I shall pray and do a rain dance for you at the appropriate moment. Your chemo and meds sound fabulously colourful! You've already done the first week of chemo - you are doing amazingly.

My heart broke for you that you can't have your husband and children with you. I've had a few too many operations and my husband always tells me that if I close my eyes, he will be right there next to me. And in my relaxation practice, he's always in the picture. So may be in your breathing homework you can include your partner in your imagery ?

Good luck for tomorrow and we shall all be thinking of you

phoebeflangey · 23/04/2014 22:57

Biscuits you are amazing! You can kick this cancers butt and will be soon home with your beautiful children and hubby of course :)
Strength, hugs and love coming your way, hoping the night is easier tonight xx

summer111 · 23/04/2014 23:35

Biscuits, just read your thread and had to respond. Dh was diagnosed with a blood cancer over two years ago, out of the blue. It was such a shock - suddenly he was in hospital with a head spinning diagnosis, having chemo and dialysis (his cancer also affected his kidneys)...it was a rough first few weeks. However the way we coped and still cope, is by focusing on what we can do, what is going well and not ruminating too much. We were advised from the start to not focus on internet statistics regarding mortality rates etc as most are out of date and in dh' s cancer, relate to older patients who haven't the strength to cope with vigorous treatment. He responded really quickly to chemo and has had a stem cell transplant using his own stem cells that has also been successful. Coincidentally, dh' s friend was diagnosed with ALL last summer and had chemo and a stem cell transplant using donated stem cells around the same as dh. He's doing brilliantly and I believe this can be a cure for ALL.
Remember to keep focusing on every step forward - it's a much better alternative than thinking on the negative.

Will be following your progress, any help we can offer, just ask.

PS. dh was so impressed with all his treatment he actually wrote to the hospital on initial discharge praising everyone who treated him...believe me, there were ALOT of specialists involved!

biscuitsandbandages · 24/04/2014 07:04

Morning everyone :-)

Im so sorry to hear about your husbands diagnosis summer but pleased he is doing so well. They have aent my tissue to the national bone marrow databaae to look for a match so hoping to hear back as if they can get me into remission the plan would be to transplant asap. (The longer they have to give me chemo for the nore chance o will die from the treatment not the disease).

Its the first morning today that I havent woken up cryijg. I can feel its not far away but can focus awqy from it.

Nervously waiting for the results of the blood tests they took this morning. My children really want to see me and have been crying a lot. If my blood count can take the risk dh is going to try and bring them in for an hour after school.

Hope everyone has a great day xxx

OP posts:
ISpyPlumPie · 24/04/2014 07:12

Morning Biscuits. Will be keeping fingers crossed that you get to see your DC this afternoon and that a match is found quickly for you.

IwishIwasmoreorganised · 24/04/2014 07:36

Fingers crossed that your blood results are what's needed to see your dc later today.

How long is it likely to be before you know if there is a match for you?

Stuffofawesome · 24/04/2014 07:44

hope the kids can come. also hope I match your tissue as I am on the register!

biscuitsandbandages · 24/04/2014 08:05

Ooh how cool would that be stuff!
Thank you from all of us waiters for being on the register on the first place. It is my only hope and I am so grateful to everyone who has ever registered.

A few weeks they think.
Im hoping.
They want to speak to my brother too and he has been so kind to me I know he would want to help if he could. But there is only 1/4chance he would match me and our previously fragile relationship is so precious to me now... I know I have to talk to him but am scared it will damage that. He has been amazing these past couple of weeks he really has.

OP posts:
AWombWithoutARoof · 24/04/2014 08:27

There was a thread on here about bone marrow transplants recently, and a couple of posters on there had donated. I'll see if I can find it.

AWombWithoutARoof · 24/04/2014 08:39

Hhm, can't find it, maybe it was in Chat. There are lots of others, but the reason I wanted to link to that one was because the donors on that thread definitely said that physically it really wasn't bad.

pigsinmud · 24/04/2014 08:42

Stuff - that's what I said to dh earlier....imagine if I was a match for biscuits.

Here's to a good day biscuits. Hope you get to see your dc later.

nicename · 24/04/2014 09:08

Ah, the daily blood 'weigh ins'. I hope the count is good today.

The lumbar puncture isn't sore. Dad got told off for squirming as he really wanted to see what they were doing, so a nurse brought him a mirror in the end to keep him still. He had the flourescent limeaid drip.

Some patients give their cancer a name. May I suggest Bill, Sid or David Cameron? Can you give him a punch on the nose from me?

NationMcKinley · 24/04/2014 09:57

Or Jeremy Rhymes-With? He's trying to shaft our fabulous NHS good and proper the total twatbastard. I'm on the bone marrow register too so fingers crossed for a match. Still sending you love, light and a hand to hold xx

BehindLockNumberNine · 24/04/2014 12:42

I am on the register too, fingers crossed a match will be found swiftly Smile

Hope counts are good and a visit is on the cards, stay stale xxx

Aboyandabunny · 24/04/2014 12:52

Hi Biscuits, Everything is crossed for your bloods today so your DCs can come in.
Crossed too,of course, for a match for you.

biscuitsandbandages · 24/04/2014 16:04

Hopefully kiddies winging their way to my door.

Slight downer by the consultant that was on today being a lot less positive than last weeks (they change over on thursday)

Trying not to read too much into it

OP posts:
honeybeeridiculous · 24/04/2014 16:09

Just read your thread biscuits I'm so sorry you are going through this, has anyone mentioned the tamoxifen thread? There are some lovely, helpful ladies on there, it's not just for breast cancer, I'm often on there as DF has vocal cord cancer, it's good to have someone to chat to who knows how you feel,
Thanks Thanks
PS I'm on the register too, hope you get good news

fidelineish · 24/04/2014 16:14

Don't let a change of consutant or one converation knock your mood. He may just be one of those miserable cautious types. (Or had a row with his wife Wink)

Glad to hear your bloods were good enough for a visit from DC. I suppose it will be an after school surprise for them? x

Theonlyoneiknow · 24/04/2014 16:32

DP & I are both on the register biscuits xx

If anyone isn't already signed up it is so easy! they just send you a swab for your cheek and you post it back

ajandjjmum · 24/04/2014 16:49

Hope you can enjoy some snuggles with your DC.

Aethelfleda · 24/04/2014 16:51

Hope you have a lovely time and hugs with your DC biscuits. And really hope your DBro (or someone on the register) is a match.

Just checked the Anthony Nolan register and I'm too old to go on there! Will sit at the side with virtual instead.