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Life-limiting illness

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Original poster

Not a good day. leukaemia diagnosis.

975 replies

biscuitsandbandages · 14/04/2014 03:44

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

OP posts:
yegodsandlittlefishes · 20/04/2014 07:07

Sorrybto here about your daughter imip Flowers ((((imip))))

Biscuits, glad to read that you have things to potter around doing in the day and it is bearable. Glad that the expressing and that side of things is going well and that you're seeing a a professional about the emotional/thinking side of things. That should really help. Glad that Mumsnet is here for you in the wee small hours.

olympicsrock · 20/04/2014 07:26

Another person who will cheer on the sidelines . I'll say a prayer for Biscuits and the crumbs at church today. I love stay stale,how funny.
I think they'll have to rename 'MN team biscuit as we will be your backup crew as long as you need us.

RockPaperScissorsLizardSpock · 20/04/2014 07:39

Morning Biscuits (((((gentle hug))))) xxx

Aboyandabunny · 20/04/2014 07:40

Hi Biscuits, Happy Easter to you and yours. I hope your little one is a bit better today.
I am glad to hear a psychologist is coming to speak with you to perhaps help you cope during this time.
Sending love, good wishes and a virtual chocolate bunny.

Only1scoop · 20/04/2014 08:25

Morning Biscuits. Have you got a visitor today? Hope ds on mend and can visit soon xx

notapizzaeater · 20/04/2014 09:11

Your bound to be having really lows, after all,last week you were "ok" it's a shock to anyone, without a newborn on top and all the hormones that entails. ((Hugs))

Spinaroo · 20/04/2014 09:25

Morning, biscuits- how are you today? Saying a prayer and thinking of all of you today x

nicename · 20/04/2014 09:32

Thinking of you and yours today. Adding you to my prayers.

fidelineish · 20/04/2014 11:27

I'm not surprised the evenings are hard in isolation; it must be so very quiet, apart from anything else. Glad you will be getting palliative Easter chocolate to go with your curative treatment plan Smile

nicename · 20/04/2014 11:38

My dad managed to get onto a small 4-bed ward when he was having his chemo. He was in a single room but was bored witless so they moved him.

It was nice to have other people around if he fancied a chat. The staff were great too - any time of the day or night, they would be there to chat/listen/make a cuppa.

Can someone bring in a blanket and pillow from home? I swear they use potato sacks and sandbags in hospital.

imip · 20/04/2014 11:52

Thanks biscuits and yego ((xx))

There was a thread here last week about websites to look at when bored. I looked at one, text from dog, I pissed myself laughing!

If you have unfettered Internet access, perhaps some really naff websites.

I've only spent three days in hosp in isolation. I was climbing the was, you are doing ever so well...

tinypumpkin · 20/04/2014 12:04

Glad that the palliative care psychologist is coming in to talk to you. It's important to be able to talk this through. It is such a huge thing to deal with and so suddenly.

Hope you get the dongle sorted.

Another one in your cheerleading support team.

yegodsandlittlefishes · 20/04/2014 12:12

Imip good suggestion! My go-to place is the funny pages on pinterest, or twitter. I liked the 50 sheds of grey and all the philosphical cat blogs for a good laugh. I must look up the text from a dog one. DH likes 9Gag and keeps sending me funnies from there.

fidelineish · 20/04/2014 12:22

There was a thread here last week about websites to look at when bored.

Got a link Imip? I can't find it...

imip · 20/04/2014 14:40

Sorry, I've tried looking through it also... Looked on chat, where I thought it was...

Searched bored and all manner of swear word to find it...

I thinks the actual site was called text from your dog...

fidelineish · 20/04/2014 15:06

Searched bored and all manner of swear word to find it..

Grin
storytopper · 20/04/2014 15:18

Text from dog Facebook:

www.facebook.com/TextFromDog

Thinking of you today, biscuits. I'm not close enough to offer any practical help but I'm sending good wishes and vibes. If the collective goodwill of Mumsnet could do it, you would be well on the way to recovery already.

catsrus · 20/04/2014 18:09

I can't imagine how terrifying this must be for you biscuits thinking of you today.

Original poster
biscuitsandbandages · 20/04/2014 19:45

Thank you. Im trying to sort out some wifi. My mum is going to bring a dongle up next weekend. Internet access makes such a difference.

Felt really strong this morning. Consultant had a chat and said cure is possible. ... lots of hurdles along the way though and its hard getting my head round that I will always be a cancer patient. Blood tests drugs and fear will be part of my life until I die now.

My eldest ds who is 6 is very sad today and is struggling. Im not there to make it better.

OP posts:
MrsDeVere · 20/04/2014 20:03

This reply has been deleted

Message withdrawn at poster's request.

RhinosAreFatUnicorns · 20/04/2014 20:17

I have lurked until now. I cannot imagine what you are going through but I wanted to let you know that we are here, thinking of you and here to support you through this.

ThistledownAndCobweb · 20/04/2014 20:26

Biscuits, I've been reading your thread and am another one who has lurked as I didn't know what to say, like so many people have said you are very much in my thoughts.

Fivemoreminutesmummy · 20/04/2014 20:48

Hi, I've only just seen this and wanted to say how sorry I am that you are in this shitty horrible situation.
I think people have already given you good advice but I think taking each day at a time is important and remembering it's still early days, you're in shock and things will get easier.
Ignore stats- they are general, not related to you as an individual. You are young, normally fit and those things are on your side.
I'll be rooting for you, reading your updates and cheering you on as you undertake this journey.

janey68 · 20/04/2014 21:05

I haven't been in your situation, but close family have. I understand what you mean about fear will always be part of your life now. The way I've tried to explain and accept this myself, is to remind myself that it could be any one of us walking in your shoes. I feel the same when I hear about other tragedies and awful happenings in people's lives... In a sense we're all living with those 'what ifs' and 'it could be me' and 'I don't know what's round the corner'. I hope that makes sense, and I'm not minimising what you are going through at all: the fear must seem so alive to you because of what's happening. But I remind myself on a daily basis that we are all just one step away from who knows what.

I'm glad you're feeling a little stronger today. This is a tough call, and your life will never feel exactly the same again, but it can be good, there can be many happy and positive times ahead for you and your family. Hang on in there, we are all rooting for you.

riskit4abiskit · 20/04/2014 21:14

Shedding a tear for you here at the sheer unfairness of it all. Glad to hear that you are feeling more positive though.

fancy some ideas to fill your time?

  1. Make wish lists on amazon of books you are going to read with all your children (I did this with books I was trying to remember/find from my childhood).
  1. Do you have the energy for one of those origami a day calendars? I was thinking it might be cool to show your kids when they visit?

Sorry my ideas are a bit shit! Hope you are feeling not too rough with the chemo and love to all your family.