Not a good day. leukaemia diagnosis.

[biscuitsandbandages]

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

Hang onto the consultant telling you a cure is possible, because if it wasn't, believe me they mince no words telling you. That chat is a huge beam of light at the end of what must feel like a dark, dark tunnel.

Getting your head around a diagnosis is HARD, but the sooner you can do it, the sooner you can work with the docs to deal with the awfulness.

When my DH was diagnosed - and for all of his treatment (we knew he was terminal from day one - they left us with no doubt) he had access to free wifi in all the hospitals were went to. It is a stupid question, but are you sure you can't get an access code from the admin person at the nurses station? Oncology wards are usually really well set up for that sort of thing. And parking. Has someone asked about parking concessions for oncology patients? There are often some available.

Just wanted to say I am so sorry to hear what you are going through.
I do latch hook rugs, you can get some good ones off Amazon or EBay, you could make them for your children's bedrooms. They are so easy to do and I just find they fill time and don't use up too much brain energy x

(((((Hug)))) biscuits from another lurker who wishes you the very best of luck with your journey.

A small suggestion for something to do for the DC: make a list for them of fifty books you have always really enjoyed and want them to enjoy too, and for each, tell them why you remember liking it, who was your favourite character, and a little story about what was happening in your life when you read it. Start with little-kid books and go up to teen/adult fiction by the end of the list. That way, they will have your personal memories down on paper and when you have finished your chemo you can buy each book for them on Amazon and read them together....

Hi biscuits, still thinking of you here up north. Hope you have a good nights sleep and tomorrow brings strength and sustenance.

So glad to hear that a cure is achievable. That is fantastic news.

I hope the psychologist will be able to help you with some strategies for the journey.

Another Northener thinking of you and delurling to squeeze your hand. So sorry that this is happening you and your family. Wishing you much strength x

*delurking

Pleased to hear the positive news your consultant has given you but I know it must be bittersweet as your child isn't coping well today.

Your children will be a constant reminder that although your life has turned upside down, you are very much still the mum of three, including an eight week old. The other definition of cancer patient does not negate that. Very hopeful that soon you can change that definition to cancer survivor- and whilst, yes, it will always be a part of who you are, it will not define you.

Sending positive thoughts and prayers x

Hi Biscuits, just read your thread and wanted to post to offer another hand to hold. Sorry this has happened and you've been taken away from your babies. Just remember each day is a day closer to being back to them. My friends kids were supported by Winstons Wish when she was diagnosed with breast cancer. I wonder if they might be able to help your 6 year old? They have booklets they send out. Hope you sleep tonight

Hi biscuits just wanted to say I'm still here following along and hoping that it works out for you. Daisy's right, they don't usually mention cures and treatments unless they think it's worth a shot. So hang in there!

I know there's not much anyone can really say, I wish there was something I could say that would make a difference, but if the collective will of Mumsnet could help you'd be on your way home by now.

Thinking of you.

Hi Biscuits,
Just wanted to check in and add that I am also thinking of you and your family daily and really, really looking forward to reading your thread getting increasingly positive as you start to get better.
We shall have a collective cyber glass or two when you get home, until then xxx
Hope you get some sleep

Really hope that you are sleeping and not awake reading MN but still thinking of you and your family and sending more hugs and strength xx

De-lurking for hand holding

Rooting for you Biscuit

I had a convo with a friend just last week who has came through it. He's older than you, 2 years ago he was in heavy chemo. He's back at work now. Hope hope hope.

My heart is aching for you, I hope you get to see your dc's soon.

For those on this thread, and I'll be posting everywhere, sadly I'm too old but I will ask my dc's to do bone marrow donation on my behalf:

www.nhsbt.nhs.uk/bonemarrow/qa/index.asp#howdo

Hello Biscuits, still thinking of you, hoping you are getting some sleep. I am in NZ so I am awake if you need to talk.

Nice to hear you had some positive news and hope your DS is feeling better.

Keep staying strong and good luck

Thank you everyone for all the kindness and auggeations. We have a form for parking but even thr consultant yesterday couldn't see a way around the wifi issue.

I love the book idea. I need to make the babys birth scrapbook and might ask dh tp bring the stuff in but there is so little room to store anything.

I think the biggest problem is my emotions. O have the laptop and tried to start editing and aorting video clips for the children as I always meant to do buy watching them utterly utterly breaks me and I end up howling for hours and useless for anything.

Its almost like I have to choose to fight for good news or prepare for bad but i dont have the e emotional reserves to do both.

And apart from heartburn last night due to the tablets I still feel physically my normal self.

Let it out! No good bottling it all up.

Try to stay as active and healthy as you can - eat and eat well, meditate, do puzzles, keep up your interests... It really will help you be in the best shape to cope with the treatment. Its rough, but you can't tickle it into submission. But it is worth it, yes it it.

You have been told that cure is possible, and believe me, these guys don't mince their words or lie to you.

Have a good day today. Its going to be a Good Day today.

Oh my -those activities get me emotional at the best of times! (Just getting rid of DCs clothes the other night had me in tears!)

How about doing some sudoku puzzles to take your mind away from things every so often?

Hello Biscuits, hope you get visitors today. Are you allowed left over Easter eggs?

I can't even imagine how awful it must be to be side-swiped by all of this, and I'm afraid I have no knowledge or advice on your illness, but I wonder whether you might be able to change your phone to another plan?

I'm with 3, and I get limitless data for about £40 a month, last time I looked they were the only provider who did that, so it might be worth a check?

Glad they've sorted your parking, that's one less thing to worry about.

Another one checking in to say hello this morning. Hoping you get some visitors this morning.

Morning biscuits. Still rooting for you here, you're in my thoughts often. I'm sure somehow you'll find the strength to deal with this. The raw emotional time at the moment is a natural reaction, it's still such early days.

have only just found and read your thread.
i am in the south west and able to help in any way.
south Devon.

surprised the hospital doesn't have wifi.

how is your son today?

Morning! Hope today brings more positives x