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Not a good day. leukaemia diagnosis.

975 replies

biscuitsandbandages · 14/04/2014 03:44

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

OP posts:
OverlookedConfection · 19/04/2014 08:24

So sorry to hear this, Biscuits. Hope he is feeling better by tomorrow.

If you were to give us an idea of where you were, we can organise for a book / magazine / craft bundle to be dropped off. Might help the hours of sitting around, especially if you are feeling OK but having to sit still to receive your treatment.

I am near Kings / St Thomas's in S London if that is any use and am happy to drop something off over the weekend.

Thinking of you and sending love X

goofygoober · 19/04/2014 08:53

Morning Biscuits, just checking in and hoping your DS will be well again so that you can all be together for a visit again. Hope you enjoy visit from DB. We are all thinking of you Thanks

BehindLockNumberNine · 19/04/2014 09:21

Still here, in the corner by the window. Looking forward to seeing brother later ;)

Hope your little boy feels better soon so visits can resume. Hang in there, we have a saying in Holland (am Dutch) which translates into "stay tough" but when translated literally actually means "stay stale". Always makes me chuckle. Stay stale dear biscuits, stay stale xxxx

biscuitsandbandages · 19/04/2014 11:06

Lol I would be be a chocolate hobnob. Messy, not very good for you but impossible to resist another ;-)

Today just lying on my bed contemplating my mortaloty. I need to try and sort a wifi dongle or something as I keep running out of mobile data using my phone as a hot spot. X

OP posts:
pootlebug · 19/04/2014 11:11

just popping by to say I'm thinking of you. I hope your little boy is better very soon so you can have them all visit

BehindLockNumberNine · 19/04/2014 11:27

Chocolate hobnobs rock!! They are still awesome when slightly stale, especially when dunked in coffee!

Definitely a good idea to sort out an unlimited internet type package so you can access internet as much as you like!

Hope today is as good as it can be. How often are you having chemo?

Hang in there today, stay stale xx

Rosa · 19/04/2014 11:33

Love the stay stale quote.... Wishing you a positive day can your bro bring in something to help your wifi?

Burmahere · 19/04/2014 11:54

Morning biscuits! I'm still with you (skinny and smiley, can't do much but talk and listen). Hope that your brother's visit is nice and that your children can get in to see you tomorrow Easter Smile

HappySmileyFace · 19/04/2014 12:12

Hope today brings with it some rest and brings you a step closer to wellness.

You have probably thought of this but would skyping with your little ones be possible if you feel up to it?

SweepTheHalls · 19/04/2014 12:50

Hi Biscuit, thinking of you and your family today, I hope your brother can come in. Could you Skype so you can see your beautiful girl even if you can't kiss her today?

TinyDiamond · 19/04/2014 13:17

Hi biscuits. I read your thread when you first started it but was unable to reply.

Really sorry about what a shocker of a time you're having. I can't imagine.

In terms of internet connection does the hospital have a wifi signal you can pay for? If you open the browser on your phone it may go straight to the page. I know our local hospitals do this. You could pay for 24 hours, 3 days, 1 week etc at a time via any card payment.

Could someone bring you in a laptop and some dvds, if you fancied it. My Dad recently did a long hospital stay for cancer surgery and used his ipad to watch iplayer etc via the hospital wifi.

Are you able to eat the food there? What is it like? I am not local at all but maybe one of the local mumsnetters could bring you in some nice food if you have a craving for a particular thing. I know you hear terrible things about hospital food.

How are your boobs? I remember when my baby went on a strike I had terrible engorgment and it was awful. I was told to reduce the supply down then gentle hand expressing can work, just enough to release the pressure as and when you need to. Also standing under a hot shower and letting the water do the work usually makes the excess milk come out. I am so, so sorry your breastfeeding relationship has come to such an abrupt end. Good advice earlier about getting the hospital's feeding coordinator to come and visit you in your room.

Please say if you need anything, look at all the people nearby willing to help and visit you.

Lots of love x

allisgood1 · 19/04/2014 15:02

Biscuits, I have a dongle you can have. Will PM you.

nicename · 19/04/2014 15:51

You're young, so that's in your favour for starters. Don't look at stats for remission, recovery etc - remember that older patients aren't able to go through some treatments. Dr Google is an idiot, so please avoid!

You are in the right place (I know it doesn't exactly seem like that now) and in good hands.

Ask lots of questions - learn about 'the enemy'. Ask about the treatment plan and what alternatives are at every stage (don't forget the question 'if I were your sister/daughter, what would you recommend/suggest?).

The treatment sucks - you will be tired and feek sickly. Do whatever you need to help yourself feel better. Hospital food is generally awful, so get family/friends/mumsnetters to do a rota of meal deliveries.

Do your nails, read trashy novels, learn a new language, gossip with the nurses... Keep busy, keep your mind positively active. Plan what you will be doing next month, christmas, birthday - don't allow yourself to even think negatively.

So many of us lot here have such experiences - first, second or third hand of this sort of thing, so ask away. You can, of course also swear, moan, cry or bitch as much as you need to. Theres always someone about for you.

Good luck - best of British - stay strong.

ParkingFred · 19/04/2014 17:13

Just popping in to say I'm still thinking of you and hoping you're felling ok.

ParkingFred · 19/04/2014 17:13

*feeling, aargh.

Swex · 19/04/2014 19:45

Happy Easter for tomorrow biscuit. Hope you son gets better quickly. Thinking of you and sending prayers. Hope your brother was great today

storytopper · 19/04/2014 19:58

Just read your thread biscuits. Wishing you the very best of luck with your treatment. Hope your DS is better soon.

Will be thinking of you.

antimatter · 19/04/2014 20:02

Happy Easter!

silkknickers · 19/04/2014 20:07

Couldn't read and run. Wishing you a speedy, speedy recovery.

tinypumpkin · 19/04/2014 20:11

Just popping in to say that we are here and listening.

LackaDAISYcal · 19/04/2014 20:21

Just seen this biscuits; thinking of you and hoping for a successful outcome from the chemo

TenMinutesEarly · 19/04/2014 20:24

Thinking of you OP

Panicmode1 · 19/04/2014 20:50

I hope your DB came and managed to make you laugh today.....my youngest has just gone down with chicken pox, so no walks for us for the next few days, so will have it withdraw that offer for the time being! I hope your DS is better soon, that you can hold your baby tomorrow, and that you are feeling buoyed by knowing you have a whole group of MNetters willing you better. Thinking of you and hoping you manage some restful sleep.

Panicmode1 · 19/04/2014 20:51

'Have to withdraw....' obviously!

FruitbatAuntie · 19/04/2014 20:57

I don't often post on MN, but I wanted you to know that I am here too, joining the arm linking and thinking of you. I'm the one short, harassed looking woman with the ridiculous, way too short, self cut fringe!

I can second the advice about hot showers for engorgement. I found that helped a lot. Try to express the minimum to ease the discomfort, you don't want to encourage more mil to be produced.

I'm so sorry your DS is ill. It's awful being separated from your children when seeing them would bring you such comfort. I'm thinking of you on your hospital bed tonight and wishing you a Happy Easter x