IVF November 2022 - thread 2

[countrypunk]

Hello everyone, shiny new thread for us IVF warriors.

@Crystal88
@Jx3303
@LF82
@Hopewishprayer
@Foreverhoping33
@Cat89

@LF82 @Foreverhoping33 sending you both lots of love and positivity for your scans today. I really hope with everything that they both go well ❤️ thinking of you ladies xxx

Thanks for the good wishes. Scan didn’t go great again. Lining only at 5.8mm so doubt it Will get to where it needs to be. Think my next step has to be hysteroscopy and then waiting three months if they find scarring.

I’m so fed up with this whole journey it’s just heartbreaking sometimes I just want to give up completely.

@LF82 hope yours goes better. Xxx

I'm so sorry 😢 it's so utterly disappointing and heartbreaking when it seems that nothing goes right. Have they got you booked in for another scan before making any decision regarding this cycle?

It makes me so sad that IVF is so difficult for so many of us. People not going through it really don't and won't ever understand the hurdles we have to overcome. Sending you so much love. And I think we all know the feeling of wanting to give up, you are not alone xxx

@Foreverhoping33 I am sorry yours didn’t go well. I wish I could say something that can help but I know I can’t xx

I don’t think mine was great to be honest… just trying to get my head around it and not panic

in terms of my follicles - 12 growing, varying sizes

lining -4.3mm on day 5 and he said that was ok

whats worrying me - he said he ‘thinks’ I might have signs of endometriosis … no one has ever mentioned this to me before and I don’t have any classic symptoms but he started talking about maybe down reg is best and then doing a frozen transfer… Though first step is to get a private MRI scan done. Luckily it can be done this week whilst I am going through this round & he is sending me a referral letter for me to go to a private clinic that does them. not sure how I feel x

@LF82 I'm really sorry to hear that, it's a lot to take in when you're going through stims and trying to just get through each day and appointment. Sending love and strength. I'm glad that they are able to give you a referral for the MRI this week and you won't have to wait too long. I hope that all comes back ok and there isn't endometriosis and you can continue with a fresh transfer this round. I know it's very very hard, it sounds like the clinic are keen to do their very best for you, but we all know that the setbacks really hurt x

Thanks @Jx3303 I think it’s just thrown me. And hoping it’s not going to impact the whole process too much- I had a quick google (know I shouldn’t 😂) and I don’t have any of the tell tale symptoms of it so hopeful if I do it’s mild…. Not much I can do I guess but wait. Am still just taking this round one day at a time and seeing what happen.

How are you? I know your appointments at the EPU is tomorrow… sending you lots of strength x

@LF82 yeah completely understand that. You're right to take it one step and round at a time. I hope you get your MRI appointment through soon. In the meantime is it the same meds? And another scan in a few days? 13 follicles is a great number x

I was doing ok ish until I called my Mum. I'm finding it so hard to speak to anyone face to face without completely breaking down. And then my Dad popped up and I couldn't even look at him or hold it together, I hate that I'm worrying and upsetting them all too 😢 I did some work today and that will be it for a little while. I know I need to take whatever time the hospital advise. I've learnt the hard way if I don't deal with things there and then I end up being worse off later on. Feel terrible as it was June last year I was signed off for a bit after our NHS failures but I'm very lucky to have a very understanding boss xx

@Jx3303 yeah same meds and next scan on Wednesday. To be honest I am preparing myself for a freeze all cycle - I think that will be best case. I just hope I get something to freeze!

totally understandable that you don’t want to/can’t speak to anyone yet. I think that when you speak to people especially those close to you it makes it feel real. Definitely take all the time you need to recover and don’t rush back to work. Work can wait. Thinking of you x

@LF82 sorry your scan didn’t go well, sending you positive vibes

@Foreverhoping33 hopefully the lining improves, keep the faith

@Jx3303 good luck for tomorrow take all the time you need and we are here for you xx

@LF82 sorry you’ve had a curve ball at your scan today, this process is so trying! Just to offer some positivity my friend has endometriosis and it’s at the higher end, on her first transfer she has been successful and is 20+ weeks now. Fingers crossed you can still move forward with a transfer x
@Foreverhoping33 hope your lining improves, totally understand wanting to give up but hang in there x
@Jx3303 will be thinking of you tomorrow, hope goes as well as it can go xx

@Hopewishprayer thank you, that is beyond helpful. Honestly just knowing it has worked for someone gives me such positivity! How are you? X

@Jx3303 hope today went ok

Ive had my medication delivered it’s getting close now .
Just wondered when I had my first round I had some suppository metronidazole and Voltarol but not been given any this time in my meds has something changed does anyone know xx

@LF82 I absolutely have everything crossed you get some more embryos in the freezer. I hope stims are going ok. Any word on your MRI?

@Hopewishprayer @Crystal88 thank you ladies for your well wishes x

That is great news about your friend @Hopewishprayer I hope you've found some comfort @LF82 in a positive outcome x

I think it went ok. We got here at half 7 and I got taken through to theatre about half 10 so I'm glad it wasn't too long a wait. A few hours til I can get home. I cried the whole way from my ward to theatre until I was asleep. All of the staff have been amazing as has my OH xx

@Jx3303 been thinking of you all day. Hope you can get home soon and glad everyone has been so good. It’s little things like that which give comfort

I am ok, next scan tomorrow morning. Got the MRI booked on Friday eve of all times but it was the only slot they had so I took it!

@Crystal88 i haven’t heard of those meds before so can’t help 👎

xx

@LF82 thank you so much, your kindness is so appreciated. We are home now and I'm tucked up in a blanket with a hot water bottle and cup of tea. I'm a needy patient at home. We got a little memory box which I'll look in another day.

I have another scan in 2 weeks so I don't have to take an at home pregnancy test (which I'm glad of). The surgeon came and said they'd seen something unusual like the lining then something which could have been blood but they don't know. He asked if I'd ever been told of anything before and I haven't, even with the initial 3D scan at create. At my initial EPU scan the Dr had seen something making the sac a funny shape and thought it was maybe blood as I'd had pains the night before. Really not sure, as always it was a lot of information and I'll just have to wait.

I'm glad you've got your MRI through although sorry it's a Friday night 😞 will the results then be sent to the clinic?

@Crystal88 sorry I don't have any knowledge on those meds either, but definitely speak with your clinic if you have questions, they will be happy to help I'm sure xx

@Jx3303 glad you are home. Lots of rest of the next few days will be needed. What’s going to happen next in regards to what they think they may have seen? I was actually saying this to my husband earlier - no one ever mentioned endometriosis to me before this scan on Monday and I have had quite a few scans with Create - I guess what I am trying to say is how come no one saw it before? Which is similar to you now- no one picked up what this current doctor has mentioned until now and you will have had loads of scans with Create and also at your previous clinic? All very confusing!

they said they would send results to Create in around 48 hours - though not sure if the weekend and bank holiday will delay that. Am guessing it will xx

@LF82 I know it's strange. Maybe things just don't appear that clearly at certain times and scans. I have a friend who did ivf with our local NHS and didn't have any endo diagnosis but then went private in Spain and they diagnosed it. The NHS equipment is no way near as high tech as Creates though. They are actually in the process or building a whole new maternity hospital where I live which will cover fertility etc, they need it as lovely as they all are.

I'm really not sure, I'd maybe get referred to Gynaecology he said, depending on the next scan. I asked about a hysteroscopy and maybe Create will have to do some tests or scans going forward in treatment.

I hope your results are fast tracked and not delayed by the holiday. Xx

@Jx3303 Thank you 🤞 Look after yourself over the next few days x

Hi girls. I don't check this thread daily anymore but like to check in periodically to see how you're all getting on 😘. I send long replies to make up for lots of shorter ones hehe.

@Jx3303 Thinking of you love through this difficult time. I found the waiting for things to happen the hardest part, when we decided to take intervention it felt very final and with it came a lot of grief. I stayed away from groups of people and organized events for at least a month because I just couldn't face seeing them.. Even now, it's brings sadness looking back at that time of my life...
Little did I know that a year on I'd be in a very different situation with a happy, healthy pregnancy 🌈. Like @Foreverhoping33 said, it's a signal of what your body is capable of and your odds are improved for next time. You've come SO far and this cycle is a huuuge new milestone achieved based on your previous cycles. It's important to give yourselves credit too ❤️ , but I know it's not easy to see it this way right now and time and tears is a healer xx.

@LF82 I had a similar experience where it was found during surgery for a pregnancy loss that I have very mild endometriosis present. None of the scans had detected it previously and I was asymptomatic my whole life. Ultrasounds are not capable of diagnosing endo - a laparoscopy is usually the only way to "confirm" endo but naturally the NHS isn't going to put every patient through key hole surgery unless endo is a big problem for the patient (usually unmanageable pain impacting quality of life, or unexplained infertility). I've been signed off with no plans for further follow up now since luckily it doesn't seem to impact me and I later went on to achieve a successful pregnancy (so far, at least! 🤞). There are probably a lot more people out there with endo but will never know because it doesn't actually affect them so will not get picked up in the stats rates, we only hear about the extreme cases 🙂. It never became a barrier for me so don't panic and be put off by some of the stories 😘. Xx

@Foreverhoping33 Aw hun sorry to hear your lining is a little lower than they want. It's frustrating, but as these things go best to get it checked out and understood fully even if it means taking more time, your thinking sounds very sensible 😘 xx

@Crystal88 Exciting that your meds are being delivered and you'll be about to start soon 😀. Looking forward to following your next cycle 🤞 xx.

@Cat89 Thank you so much for taking the time to message! That’s really helpful. I definitely don’t think I have any symptoms but as soon as he said possible endometriosis my brain just remembered all the horror stories I have read about it in the past.

how are you getting on? How far along are you now 🥰

Day 7 scan update for me- follicles are growing but slowly … lining increased a little to 5.3mm. The dr just said we will have to wait and see what the next scan on Friday brings.

hope everyone is ok x

Hi all, sorry for not coming back to all your kind messages. I wasn’t in a great place over the last two days. I had my follow up scan today to see if lining had grown any more. It hasn’t on the last two cycles so I wasn’t expecting anything but it was amazingly at 7.1mm so we are booked in for a transfer on Tuesday next week. I can’t quite believe it!

really hope your scans go well too @LF82 sounds good that follicles are growing!

thanks for all the support it really does help. Xxxxxx

@Cat89 thank you so much for your kind words ❤️ and thank you for reminding me of how far we've come, and to not give up. It's hard to see a way forward just now but I hope that will come. Your story also gives me hope and I'm so happy that you are in a very different place now 🌈 how are you keeping?

@LF82 really glad to hear your follicles are growing and lining looking good! Are you still on same dose of stims? I hope for more good news on Friday xx

@Foreverhoping33 I am absolutely thrilled for you and your lining update 💕 I'm so sorry to hear you've not been in a great place, I understand that feeling. I am sure it will continue to grow as well over the next few days! I hope you can have a few days rest between transfer. Thinking of you xxx

@Foreverhoping33 that’s fabulous news! 🤞

@Jx3303 yes still on 200 gonal every day. I am hoping the follicles grow as think they are a bit slow… or ‘lazy’ as today’s consultant put it! how are you feeling today? X

@LF82 that's good the dose has remained the same though and sometimes they just take a little longer to get there. Sending all the positivity for some more good progress on Friday. Stay strong, you've got this and are doing amazing, how are you feeling?

I'm ok, I had a cry this morning reading about where we can go locally in the crematorium that's in remembrance of all babies sadly lost, and didn't sleep great last night even though I was exhausted. But went for two gentle dog walks today. Not as sore today, just tired and empty. It all just got taken away so quickly, it feels like within the blink of an eye. Xx

@Jx3303 Make sure you allow all those tears to flow whenever you need them too. I can only imagine how hard it is for you.

I am overall feeling ok, nervous about what the next scan will bring but I guess whatever happens it’s not really in my hands. All I can do is keep taking the injections for now I guess x