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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Starting the journey thread 3

978 replies

squirrelnutkins1 · 02/08/2019 20:02

Don't want to lose touch so new thread ready x

OP posts:
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BambiOnIce80 · 24/10/2019 07:52

Thinking of you today @2fingers22018 ❤️ Good luck!! 🤞🏻🍀🤞🏻🍀

2fingers22018 · 24/10/2019 07:54

@BambiOnIce80 thank you❤

FinallytakingtheplungewithIVF · 24/10/2019 08:55

@2fingers22018 have you not tested yet? I have everything crossed for you!! Xx

2fingers22018 · 24/10/2019 09:30

@FinallytakingtheplungewithIVF i had to wait a bit cause i had to pee at 3am couldnt hold it in lol ive done a cheap test and it looks like 2lines im in shock im too scared to believe it ive had this before and the nxt day it was negative..its goin to b s long day! Lol

FinallytakingtheplungewithIVF · 24/10/2019 09:44

Well tentative congratulations have you got an frer todo? Xx

2fingers22018 · 24/10/2019 10:06

@FinallytakingtheplungewithIVF im going to buy one lol im just goin to try and hold in a pee for half of the day before using it😂

Starting the journey thread 3
VenusStarr · 24/10/2019 11:20

@2fingers22018 brilliant news!! 😍 You'll get a good positive on a frer. Lovely news.

Been laying low for a few days, definitely feel a bit better this week. Thanks for the support last week. Had my rmc appointment yesterday, it went really well. Had lots of blood tests and will be going back in the new year. The doctor listened to my concerns and didnt fob me off. I believe it's something to do with sticky blood or clotting and these tests should give us a yes or no. Have to have more in the new year to compare. I'm also concerned about my thyroid from a fertility perspective as it was 2.3 last year. He said if it's over 2.8 I can ask to be medicated, so should get those results in the new year too. He said after the hysteroscopy we should ttc again and it's not an issue if I'm pregnant when I go back (but seeing as subfertility is an issue for us, can't see that happening!) Feel a bit more hopeful. Only 6 weeks til my op, then 6 weeks after that we're seeing the fertility consultant again and hopefully our rmc doctor. After that we'll possibly be discharged (depending on results) then we just contact them when I get pregnant for early scans and meds if needed. He did say they'd want to test the next embryo if were unfortunate to have another mc, but really hoping not.

@FinallytakingtheplungewithIVF how are you? I'm sorry you've not been feeling good either 💜

@squirrelnutkins1 got my fingers crossed tightly for you 💜 When's af due? Have you ever had an hsg dye test? Just thinking if they won't do a laparoscopy again that might be an option? It's not pleasant but might be worth asking?

@GreyC @BambiOnIce80 @CloudSway how's things with you guys?

Xx

BambiOnIce80 · 24/10/2019 12:43

Ooooh, this is very tentatively exciting @2fingers22018!! 🤩 Are you getting your beta hCG blood test today too? That'd certainly give you the definitive answer 🤞🏻🤞🏻🤞🏻

Soooo pleased you had a useful rmc appointment @VenusStarr ❤️ It really helps to have a plan of action and time scales, doesn't it? I might be able to help if you need interpretation of some of the blood test results (ie. coag 🤓), if you need any when you get them.x

Nowt to report at my end, really 😏 It's FW, but I'm pretty sure I'm coming down with an infection (the nice people at amazon are delivering me some canesten as we speak! 😳) and DP seems to have the beginnings of man flu, so don't think there'll be any chance of a miracle natural conception this month 🙄 I'm not all that bothered by it, to be honest - just quietly keeping my eye on the 'IVF in December' prize 🥚💉🎈🏆

How's the down-regging going @CloudSway? Did DP see the specialist to figure out what's going on? On the PJ front, my M&S online order was indeed grey and with stars (I bloody love stars! ✨), but not floor length - excellent idea on that front! Mine was way shorter than expected, thus the ongoing PJ hunt 🧐

I'm sorry you're feeling awful @squirrelnutkins1 💐 It's so damn hard, AF turning up every month 😔 Are you feeling better after getting it all out last night?x

VenusStarr · 24/10/2019 13:20

Oh @BambiOnIce80 yes please! that would be really helpful thank you. I'll keep you posted. I doubt I'll hear anything this side of Christmas

Sorry to hear you're got an infection and the dp has man flu 😔 hope you're both better soon xx

squirrelnutkins1 · 24/10/2019 15:48

Just popping on to say congrats!!! @2fingers22018
Will catch up later x

OP posts:
2fingers22018 · 24/10/2019 16:24

Thanks to you all you lovely ladies for ur support it means soo much! I was in 2minds on wether to post or not i didnt want to upset anyone i know how hard it is when ur struggling and you get bombarded with ppl postin PTs..ive been cramping all day still and it has been 2VERY faint positives so im still very nervous we ll see what happens x

VenusStarr · 24/10/2019 17:24

It's different to just seeing randoms on other threads @2fingers22018, you know the ones - 'I slept with 2 different people, took the map and now I'm unsure if this is a positive test (insert pic of a blazing positive)' 🙄 we've all been rooting for you 😊 you're pregnant 😘

What's the next step with your clinic?

2fingers22018 · 24/10/2019 17:35

@VenusStarr thanks your honestly soo kind! Ive to email them if i get a positive test then i ll get a scan in 4wks time fx if it sticks! Im really glad the doc listened to you and youve got a plan in place x @BambiOnIce80 they dnt offer a blood test lol must not be in the nhs budget they said ive to stop taking my progesterone after my test date which is scaring me a lot sorry you and ur OH arent feeling great sounds like a gd weekend for cuddling up on the sofa tho 🍋🍵(theres no lemsip emoji haha) @squirrelnutkins1 i know ur feeling down soo thanks for the support hugs @FinallytakingtheplungewithIVF i hope you feel better soon too take care x

CloudSway · 25/10/2019 08:25

@2fingers22018 Congratulations!! I'm going all in, looks like a line to me so screw it I'm going all out congrats lol. It's lovely of you to think of us but this great news is exactly what I needed to read to give me the will to jab myself this morning 😁 so you'll do another one tomorrow? I'm going to ask a stupid question, someone mentioned a FRER? What's that?

@BambiOnIce80 ha, great taste in pjs, I almost went for the shorter version but you're right it was way too short. Second stupid question, what is coag?! Oh no, sorry for all the infections in your household, fx for immaculate conception this month?! I'm so over ttc, we had to do protected this month and it's honestly like I've forgotten how to do it without a stick telling me to 😳

@squirrelnutkins1 definitely good to let it out, hope you feel a bit better for it ❤ and the baby neck fear is real, I am genuinely terrified of holding babies for this reason! (A fear I assume I'll over if I ever need to 😬)

@venusstarr your appointment sounds really positive, a sensitive doctor actually addressing your concerns can make a world of difference. I like your breakdown too - 6 weeks doesn't seem that long before the next step 🙂 Testing an embryo sounds like it would give a lot of answers, but also sounds pretty traumatic, hopefully not something you ever have to go through. It's really great that they are exploring so many avenues - do you need to organise the blood tests yourself or will they sort it and let you know? Glad you are having a better week xx

VenusStarr · 25/10/2019 08:36

Morning, hope I didn't offend anyone yesterday with my comment...

@CloudSway how are you getting on with your jabbing? How's it all going?
Frer is the first response early test, which I think are the best ones.

Yes, I'm still feeling more positive following my appointment. I had the blood test on Wednesday. I'm not sure if I'll get a letter or just have to wait until our next appointment in the new year (no idea when yet). He did give me the clinic email address and said contact anytime.... They might regret that! 🤣

@2fingers22018 how are you feeling today?

Hope everyone else is OK today xx

CloudSway · 25/10/2019 08:57

Ta for asking btw, I can't remember what my last update was but today is our second attempt at freezing DHs sample. The first sample was only 0.38million, and showed such a low rate of survival in defrost (then add on the poor morphology/motility) that for this round they will probably have to use it all, leaving us nothing for attempts 2 and 3 (We paid for 3 rounds). So back he goes.

We've had the referral through to Cambridge so they can start organising all the tests for him. Again, sorry if I've already said this but here's what they said they'll test for:

1.ultrasound for blockages/lumps. Least likely, but in a way easiest to fix. Hopefully nothing malignant, but if it's a vericoce she wasn't totally on board with doing a surgery, said there's mixed opinions on it (not what I've bloody read, but we'll cross that bridge if needed 🤔)

  1. Genetic testing. They can do a full range, but definitely cystic fibrosis as carrying that gene is known to lower sperm count. If he has it, I'll need testing as if we both carry the odds are high that our child would have it. Again, unlikely to be genetic as it his count has suddenly got lower. This was hard because she said it will be months before results of this test, and then will just be information about the odds of our child having disorders. She said if we wanted we could stop medication and wait for these results. After a lot of talking and thinking, we have carried on. She didn't think it was likely, and when we get the results it will all be percentages, no real answers anyway. Odds can be 2% and still happen, and we would never have known in the first place. This has been the hardest bit.
3.most likely, hormone change. Apparently when you don't regulate testosterone properly your brain sends a big chuck of hormone to try to kick start it, but this often has the opposite affect and causes sperm production to shut down. There is no cure to it, although much later she recommends having meds for the side affects, but her main concern is to act quickly in this case hence freezing as much as poss.

I'm still concerned about the genetic factor, but I believe we've made the right choice not to stop this round. She said in all cases she recommends speed and getting me pregnant as quick as possible so they can deal with whatever is going on with DH without that complication. It's bizarre, we've both said we find ourselves hoping for a blockage as it can likely be fixed, even though a blockage could be something sinister and the hormones would be no threat to him!! This infertility thing makes you nuts...

I'm so sorry for this massive post guys, but there's really no one I can tell about this - my parents were always pragmatic but they have obviously passed away so we can't tell them DHs parents are the opposite and panic about everything so we haven't given them detail, and my best friend has a 2 month old and is understandably off the grid at the no, and it's driving me crazy not to tell people!! So sorry, won't write a novel every time lol promise xx

CloudSway · 25/10/2019 09:06

@venusstarr not offended in the slightest. If you mean the obviously pregnant pics I am totally on board, that drives me bloody wild. 'I'm not sure, is this positive? Been trying 2 months' 😳😤🤬

Jabs are going... okay. It's like psychological warfare lol I hate doing them even though they don't really hurt or anything, nurse DH keeps offering but I know I'll have to do them at work certain days so I don't want to stop in case I'm then too scared to do them and freak out at work lol! 😂🤪 only cramps as a side affect so far 🤞🤞

VenusStarr · 25/10/2019 10:04

Gosh @CloudSway I hadn't realised. Totally understand you guys hoping for the blockage as there's an easy fix (although none of this is easy!) I'm glad you've decided to carry on, it definitely sounds like you've made the right decision for you both. Sounds like it's been a lot to think about.
If it helps to tell us here, then do it :) I find if you tell people who aren't in this world they don't really get it and then make stupid suggestions, 'have you tried...', 🙄🤬😑
Hope dh gets on OK today and that you then have enough 🤞
Glad the jabs are going well. I think my dh would be good if I ever need them. If my sticky blood theory is correct then I likely will.

Currently sitting at home waiting for a guy who's coming to rip our decking up and prep for some new ones and it's pouring down with rain ☔ he's running late anyway but I'm thinking he'll not come. Bit of a waste of a day off, oh well.

BambiOnIce80 · 25/10/2019 10:41

@2fingers22018 I completely agree with what @VenusStarr says - absolutely delighted for you, so please post as many pictures of pee sticks as you want! 😂 Agree that's it's entirely different seeing one from someone you 'know' and are rooting for, as opposed to the random ladies who jump in with the "I've been following the thread but never posted before, so you don't know me, but he's a photo bomb of my BFP anyway" 💣 🤯💣 🤯 WHHHHHYYYYY do some people do that!! Rant over 😬 It's crazy how differently clinics do things, isn't it?! Mine is NHS (although we're self funding) and it does the blood test, but others don't 🤷‍♀️ I like that you get the excitement of peeing on a stick though and seeing it go BFP 😉 And you can relax and enjoy the baby shower now too! 🙂

There are no daft questions in this TTC/infertility business @CloudSway 😉 I'm only up on the blood tests stuff because I'm a science geek 🤓 and it's my day job! Coag is short for coagulation, so tests for how well or not your blood clots. With rm's it's relatively common for women to have a problem where their blood is too keen to form clots, which doesn't normally cause them a problem, but when they're pregnant clots might form in the placenta and cut the blood supply off to the embryo/foetus/baby - thus the rm 😔 On the FRER front, like @VenusStarr says it's generally accepted to be the most sensitive on the market (can detect 6IU/ml of hCG in pee) compared to the other 'sensitive' PT's (which can detect about 25IU/ml of hCG). My clinic said with the blood test they expect our hCG to be about 50IU/ml 2 weeks after ET, so unless you're testing crazy early then there's not much point in taking out a second mortgage to buy a FRER! 💸 Right. I'm geek Ed-out now 😪 Moving on...

Don't apologise for a long post!! We wanted to know!! I think you're right with taking the approach of "common things are common, rare things are rare" 👍🏻 To try and be logical about worrying about the CF thing - has DH's family got a history of CF? If not, then surely that's less likely? I'd absolutely be thinking like you - a blockage would be easy to fix compared to the rest. Hopefully they'll get you some answers (and fix whatever the issue is) soon 🤞🏻 And good luck to DH for his 'donation' today 🍀🍀🍀

GreyC · 25/10/2019 21:28

Congratulations @2fingers22018 So pleasee for you! Just a flying visit at DP birthday.

Hope everyone is having a good Friday.

Update everyone tomorrow :)

2fingers22018 · 26/10/2019 06:41

Thanks @CloudSway 😘 sorry if u already said are you short protocol or long protocol? I hope ur OH is okay yous must b soo nervous and stressed @VenusStarr very nervous still im glad ur appt was positive and gave u sumthin to work towards x @BambiOnIce80 thanks hun how long is it until u go on holiday now?

CloudSway · 26/10/2019 08:43

Thanks guys, sometimes it just helps to write it all down

Funnily enough I was chatting to someone today and it came up that she had to thin her blood when pregnant - I'm guessing a case of sticky blood @venusstarr! If you become pregnant in the meantime, do you have to contact the clinic so you can get the medication? (Seeing as you can contact them "anytime"?! 😄)

@2fingers22018 I am long protocol so got the needles for a while yet. Just now had my first one with no rash though, and that makes a big difference, let's hope that's the end of the rash now!! DH is quiet but I think okay.

Yesterday's results came back, only 0.17 million and 1% survived defrosting, so on the plus side he won't have to keep going back in, think the stress of going in a cup 4 times in 2 weeks was getting to him! Asked him how he felt and he just shrugged but said there's nothing he can do so he doesn't want to get too obsessed with it. Sounds healthy but who knows what is going on underneath 🤔🤷‍♀️

@greyC Enjoy the party! Hope you are doing alright!

@bambionice80 Thanks for the info!! 👩‍🎓 you're not a geek , it's interesting! (Although I spose you could still be a geek 🤓😜) what's your day job? I've seen FRER written a lot before but never had a clue so thanks for that. Can't say the same for coag lol but now I know. Thought it was an acronym like Crappy Ovulation, Add Gin or something. 🤪 CF-wise yes it's a low level concern because no one has it on either side of our families. There are several twins on one side of his family, which I'm now wondering is it ivf and therefore low sperm in the family? (They are all male, all only a generation older) 🧐🧐 Poirot got nothing on me 😉😂

GreyC · 26/10/2019 09:40

@cloudsway - you are going through it aren’t you. You and DH are so strong. Glad he won’t have to return.
@VenusStarr - your appointment sounds like it went really well - so pleased for you.
@BambiOnIce80 good luck with your upcoming cycle - hope you are feeling ok about everything. I didn’t take pjs with me as they basically asked me to strip and put a gown on haha!

Me and DP has such a long chat over the last week about if we want to do another ivf cycle; considering my low AMH and the huge amount of drugs I was on and the implications for that as I have the ovarian/Breast cancer gene in my family and it worries me with regards to the drugs and the research out about that. So we have 80% decide to go back to trying naturally for 2 years (having this month off to get my body back into shape as the hormone headaches have been excruciating!) and then either start the adoption process or have a round of natural ivf. I think we are both leaning towards adoption at the minute but if it’s ok can I still hang out here ?

CloudSway · 26/10/2019 14:20

@greyC Of course you can hang out here! We've come this far you can't leave us now 🙂 I'm really glad you are closer to the decision that's right for you both, we've had some chats about adoption ourselves, with the risk involved with your genes I can see why that might be the best route for you 👍 how are you feeling about it? I imagine it must take a weight off to be close to a decision? X

GreyC · 26/10/2019 14:36

Hey @cloudsway
The implications of the drugs has always been a concern for us; plus the finance side of it. Ofcourse if we conceive and have a miracle baby over the next couple years that would be great; but it’s not all about being pregnant for me; it’s having that family unit and giving a little person without the same family upbringing I had.
Both roads are extremely hard and emotive; but it certainly is slowly taking the pressure of us in regards to saving every scrap we have; and the constant worry of what the drugs could do in the long run.
Luckily I have several people around me who have adopted and as a teacher I’m quite clued hope with adoptive children due to teaching quite a few.
It’s making me more at peace anyway with the chats we have been having and such forth. If anything the prospect quite excites us; if we are allowed to feel like that over a decision that is in reality a couple of years away!