PGD treatment

[Pharaohhoundbek]

Hello

I’m 29 and have just started PGD treatment. Both myself and my partner are fertile so we are hoping this works in our favour with the treatment. He has a genetic mutation which creates tumours so we are going down this road to prevent our children having the same gene. I wondered if anyone here has had this treatment? 3rd day in and I’m very nauseous! Hot sweats at night and general poorly feeling. Has anyone else experienced this?

Would love to hear from anyone who has had successful births with PGD too :-)

Thanks in advance,
Bek x

[Parkandride]

Gin - were you writing a diary on fertilityfriends? Your story sounds familiar

I'm also pgd, about 3 years in and finally due to start next month, drugs arriving on Friday.

Purple I'm at leeds but had huge delays with licenses and funding, and actually started somewhere else but moved house so that all slows stuff down, hopefully you'll be much quicker. The genetics bit hasn't seemed too bad, they've got all mine and my family stuff from when I was tested for the condition, so just need blood from DH a month ago. I think it depends on how common a condition it is and what testing you've had as to how quick it is to build the probe.

[ThePurpleFairy]

@Parkandride only just saw your message, have you started now? We went to our appointment on Wednesday, had baseline scan and paid for AMH blood test. I’ve got another list of tests I need to get done at my GP but need to wait for period for one of them so got a couple of weeks yet before I can do that. Apparently we go back in 8-12 weeks but I’m not sure what happens after that!

[Ginandtonic31]

@Hoppy1985 just wondered how you were getting on and how your appointment went?

[Rebecca2326]

Hi All,
Wondering if I could join in?
I am 26 and my partner has Marfans, so a 50% chance of passing onto our child.
We have been referred to the Birmingham women’s hospital for PGD and currently waiting to hear back for first appointment there (we have been referred by a generics counsellor who gave us this option)
Has anyone had any experience with the Birmingham clinic at all please ? Reading all the threads makes me a little anxious about it all!

Thank you

[ElphiasDoge]

Hi Rebecca,

I’ve just found this thread too. I posted on conception the other day

[ElphiasDoge]

Sorry, hadn’t quite finished there! We had a DS born with CF earlier this year. Neither of us knew we were carriers. We’re not ready to try again quite yet but have asked for a referral to genetics already in case we do want to as understand waits can be quite long. I think we do want to but quite a few mixed feelings. Anyway we’d rather pull out than decide we’re ready and want it and wait ages.

[wendy2017]

I had done a successful PGS abroad three years ago. We returned back for FET, but unfortunately we didn't make it . We were informed, though, for the bad quality of our eggs. Me and my husband are thinking of trying once again.

[Bridj99]

Hello. Guys are trying to get one treatment of PGD before im 40(my local fertility did not tell me about it sooner). Im just wondering If anyone has has any luck of a similar age - the more I read the more im swaying towards normal IVF. Any comments would be grateful x

[MiniPlod]

@grumpycat2019 I have NF1 and am doing PGD to try and avoid passing it on to my children. I was a random gene mutation so no one else in my family bar my twin has it. Luckily we are quite mild. I totally understand how worrying it must be for you regarding your son. Don’t ever blame yourself, it’s not your fault you have a genetic condition! Lots of people with NF1 live perfectly healthy lives.

The process for my husband and I to get to start the PGD was long and I’ve only just started injections. I’m on 450 of Gonal F. It’s been a really long road so far and there is still a way to go but I just keep reminding myself why I am doing this. It’s very overwhelming but don’t let that put you off.

I wish you so much luck in the PGD Process. Xx

Is anyone else on such a high dose of Gonal f from the start? I already feel like a whale!