Hello everyone, We’re currenlty TTC and did also last year with no success but had to have a break as one of my children was diagnosed with a life limiting condition.
I went to the gynaecologist yesterday about light periods and constant brown spotting and after an internal scan he said it’s “Niche Syndrome” where my c-section scar has a defect and is trapping menstrual blood and causing it’s slow release.
I’m going to be booked in for a Hysteroscopy where he says he’s going to have a good look and clear it out, then do some tests to see if I’m ovulating.
I’m trying so hard to stay positive and whenever I google about this condition it’s quite hard to find any information apart from journal articles. I asked him if this was going to have any effect on TTC and he said it wasn’t going to help and he’d be able to tell me more after the procedure.
Yesterday I felt relief that I’d finally been given an explanation, but this morning I feel angry. This spotting started pretty much straight after my C-Section and I’ve been to the doctors so many times about it. I even saw another gynaecologist two years ago who said it was because I had a lot of blood vessels on my uterus(!) and put me on the pill to stop it when I’d already said that we wanted another child. If this had been diagnosed at the time we’d have had an extra two/three years to TTC or at least try and sort it out. I knew there was a problem and kept on getting pushed away.
I’m sorry if this is the wrong place to put this but I don’t feel I have anyone to talk to. I feel awful because I already have two children, but apart from the genuine desire for another child (I knew I wasn’t finished and have always wanted three), because one of my children has a life limiting condition, my other child won’t have any family once we’re gone.
The big frustrating thing I can see about this condition is that it’s not something that can be sorted out with hormones/medication as it’s not hormonal/stress related which was another thing I was told, but an actual physical problem that I cannot do anything about 