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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Assisted conception after recurrent miscarriage part 5

999 replies

Mel3062 · 14/09/2013 19:37

Hope this is right ladies ...

OP posts:
suemays · 25/09/2013 19:08

pebbles how about having intrallipids before - have you tried that before an ivf round? I remember Louise at nlc telling me it worked with some ladies who couldn't conceive as the nk cells stopped implantation.

BellyD · 25/09/2013 22:40

Thinking of you today Sue - I can't believe it has been a year.

Arianrhod · 26/09/2013 08:29

Serum always does IL 7-10 days before ET and on ET as well, if that's of any interest. It's such a minefield, knowing what to do for the best.

Pebbles73 · 26/09/2013 08:57

Thanks lafies but yes I had intralipids three days before egg collection and then again at bfp.

Really feeling quite depressed about the whole thing at the mo, how is everyone else feeling?

lemonsherbet · 26/09/2013 09:51

mel I am surprised louise said that. I had high nk cells initially. Anyway I had them retested 8-9 months later and they were then very high and right at the top of what mr s sees. If you want I can try and find the results and post them for you.

duggs i had started to look at surrogacy. there are 2 main agencies in the uk. It is very expensive though. There are other expenses such has a parental order afterwards. Like all these things it was cheaper abroad but I am not sure if you would consider that.

pebbles sorry you are feeling low. I think it is only natural. Hope you got to enjoy your birthday

duggs1976 · 27/09/2013 08:43

Lemon when they went very high what did dr s prescribe ?

duggs1976 · 27/09/2013 08:47

Oh and btw pebbles depressed too at wedding in new forest got food poisoning at hen spa party on Wednesday from fish, was supposed to be 12 weeks and brides sister 10 wks pg glowing like the sun. Seeing old friends looking at us wondering what we've been doing for past 4 and a bit yrs or pitying us... Snuck off when evening guests arrived and went to bed in hotel at 8.30pm rock n roll. Can't be arsed with it all. Change the record someone Confusedps if you want to meet up and get some of my sunshine and positivity just shout !

lemonsherbet · 27/09/2013 09:19

duggs that was when he said increase pred, take hydroxychloroquine, have intralipids on BFP and 4x in preg and do SO. But obviously we did not do that. It was that consultation that made us push for an NHS referral. He did not seem to understand why I was upset at that appointment and suggested I stopped discussing my condition with other people. When I mentioned that people had said that the pred could stop ovulation. The fact that whilst I had been taking it I had only had one BFP and that was a chemical where previously I could get pregnant fairly easily. What I found interesting was that Mel NK went up on treatment and prof q said to stop to see what the baseline is. That her body is reacting to something in the cocktail.

Pebbles73 · 27/09/2013 13:32

Oh Duggs. you poor thing as if you haven't enough to deal with!! We could cheer each other up with out joyful selves or just have a good cry together?!

Well miscarriage has suddenly gone up a gear and have had terrible cramp for two days and back to bright red bleeding! Think wedding us going to be a long day and no doubt the bride will be pregnant in a few weeks as I know she wants to start for a family straight away...

lemonsherbet · 27/09/2013 13:57

I know and hate those grooms speeches where it is like oh and we are also pregnant. Everyone else just makes it seem so easy. But I console myself with the fact that you don't know what struggles they have had. Big hugs to you pebbles and duggs

Mel3062 · 27/09/2013 16:26

Thanks lemon I really don't know what to think obviously I didn't have my uterine cells tested before so only have them now and the blood ones from April 2012 so I think the uterine ones are the ones to go with. I would of stuck to high pred and hydroxy otherwise but this has scared me to death. It may be the dhea or restravatol that's done it who knows!
Pebbles and duggs hugs x

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duggs1976 · 03/10/2013 12:20

Hello ladies... Where is everyone? Very quiet on here.
Any updates from anyone?
I'm still waiting on AF after ERPC 3 weeks ago so nothing much happening. How is pebbles?

Pebbles73 · 03/10/2013 13:18

Hey Duggs is certainly v quite! Had awful cramping early last sat and thought would have to miss wedding and go to A&E but it calmed down. Still bkeeding but finished steriods yesterday, hooray! Feeling pretty fed up though, how are you feeling?x

Arianrhod · 03/10/2013 14:19

Bizarre, I just logged in here to ask the same thing, it's v quiet, hope everyone's ok?

suemays · 04/10/2013 10:34

Hi all, think I have got a gastric bug so worried about the effect on the pregnancy. Trust me to catch something at a critical point!! How's everyone else??

Arianrhod · 04/10/2013 11:29

Oh lord, poor you sue ... are you having probiotics to help settle it down? It shouldn't have any effect on your pregnancy, I would hope, but it may make you feel rubbish for a while :(

suemays · 04/10/2013 13:33

No just trying to stay hydrated and eat plain food! Dont want to take probiotics as again have read they can increase killer cells. If I wasn't pregnant it would be a different matter!!

Arianrhod · 04/10/2013 14:18

Oh crikey, can they? I didn't know that one!!!

Mel3062 · 04/10/2013 17:55

Hi all I know first royal jelly now probiotics :/ I though all that was good :/
Sorry to hear that pebbles :(
Sue hope your ok, I've just had awful tummy bug lasting a week. It was like flu with sickness and diarrhoea. Apparently it's a good sign being ill when pregnant.hubby has it now along with kidney stones.
Duggs sorry to hear your news about ds.
My Daughter has now left for uni so big case of empty nest, it wasn't ment to be like this :(
I'm waiting to ovulate then getting biopsy redone. Just don't know if to get mine and hubby's bloods tested with mr gorgy too what do you reckon ladies??

OP posts:
swlondonnanny · 04/10/2013 20:09

Hi everyone,
Hope I can join you?
Have been following your thread for a while but never got to posting.
Find you all amazing with all you knowledge and support.
It will be 3 years in december since we started TTC, had 9 chemical / early pregnancy losses in that time - that is up till february and no BFP since than! After getting pregnant in no longer than 3 cycles every single time I am panicking quite a bit now.
Had all the NHS tests done, was put on aspirin, cyclogest and fragmin injections and possibly prednisolone from BFP - no idea if that is going to work as haven't been pregnant since than.
Also had uterine biopsy done a few weeks ago in Coventry - had quite an unpleasant surprise when I was told during the scan that I have a possible polyp and need hysteroscopy and also heartshaped uterus!!! which noone noticed so far on all the scans I had done in past.
Scared myself properly when I googled it , took me a couple of weeks to calm down.
Got the uterineNKCells results today and they are 8,89% which seems to be only a bit higher that normal ( up to 5%). Somehow feel more optimistic about the whole TTC business again.
Decided to have my tubes tested again ( thinking of HyCoSy) and also my DH sperm DNA fragmentation.
Was looking at few clinics online and think Newlife in Epsom is the one we'll go with - anyone goes there/ finds them good?
Oh and we are both 38 and have no children so far

duggs1976 · 04/10/2013 21:07

Hello swlondonanny I think I met you a few years ago or maybe last year at south bank meet up is that so?

swlondonnanny · 04/10/2013 21:32

Hi Duggs,
Yes last year at south bank, was really good to actually meet real people in real life with similar problems. Made me realise that there is a problem, actually.

duggs1976 · 04/10/2013 21:55

Did we get the train back together? I think so... You met brown stag too then....

swlondonnanny · 04/10/2013 22:16

Yes that is me. And here we are, one year and a few miscarriages later, still no baby, trying to figure out what to do and how to make our bodies work the way there are meant to work, hey?
Having all the tests done, deciding which protocol to follow as they do contradict each other, which supplements are the best, which acupuncturist is specializing in fertility and recurrent loss - all this while pretending at work and with friends that we are having time of our life and making sure there will be enough money after all the test and vitamins to pay the rent!
Sometimes I wonder how long to carry on like this...
Actually friends who know about all this started to have dreams about me having a baby!!! Crazy, isn't it?

brownstag · 05/10/2013 09:04

Good to hear from you, SWLondonnanny. Sorry I hadn't replied to your text about the NK cells yet; mad rush all the time until DS goes full-time at school. Your results sound very encouraging; you've been given a concrete reason and yet one that is presumably eminently treatable. And yes, here we all are a year on, still no babies. What was the other blonde lady called, who had had IVF? You met my friend LJ71 too; they've given up trying now (though they have 4 children between them already).
Talking of dreams, I had a weird one last night, that I actually had a secret child stashed away somewhere (who looked identical to my sister's daughter) that I'd forgotten about. And I said to my mum, 'I've forgotten her name even; and all this time I've been trying to conceive and I didn't need to!' Then I woke up and remembered that I very much did. Sigh.
Sorry about your DD's condition, Ari. The whole business of having children is one anxiety to the next. But I think it's great that she was diagnosed so easily; you'd think those initial symptoms could have been easily mistaken for something more mundane.