Assisted conception after recurrent miscarriage part 5

[Mel3062]

Hope this is right ladies ...

Hi SWlondonnanny think it all depends on what you have wrong on who to go to. I know some of the ladies started off at new life clinic but then have gone to see dr gorgy and had additional tests done that then show additional problems. Unfortunately it is a bit of a lottery, if you try with NLC and hope that it is just NK cells. Welcome to the thread and one of the most amazing bunch of women you could ever meet (I am talking about the others not myself)

Hope everyone is doing OK.

Hi all - has been so quiet on here lately.

Ari so sorry to hear about your DS, hope she is doing ok. I think you definitely made the right decision to postpone your trip to Greece for a little while.

I start second round of ivf tomorrow, but am just finishing antibiotics for cystitis which have now given me thrush - sorry for tmi, just not feeling in optimum health going in to this. On the plus side I had a cold for the first time in ages last week so perhaps the killer cells are under control. Think this may be the last roll of the dice for us before moving on to other options. Hoping for a miracle (as always!)

Duggs and Pebbles hope you are both getting on ok.

Waves to everyone else

Hey belly D where are you having the IVF? Best of luck to you. Breezy thank you for the info v useful.
I'm ok. Thinking about next IVF round really don't want to even go there but just want to experience motherhood even just once so have no choice. Good luck sue and team dozie x

Thank you lemonsherbet , I am really just looking for sperm tests for DH and hycosy for myself. We went to see Dr Gorgy back in May but found the amount of test he suggested too much. Also the doctor we saw at NHS RMC and my DH really liked works privately from NLC so maybe we'll just go there.
And yes you are all amazing women and thank you for the welcome.
brownstag yes remember your friend LJ71, kind of envy them being able to stop with TTC. Also remember the blond lady who was having IVF but can't remember her name - wonder how she is doing.
During my appointment for the uterine biopsy I was told if I don't get pregnant in next 6 months I should start the IVF. Well not exactly what I wanted to hear....

Not great news from me as only measuring at 6+2. They thought they could initially see a heartbeat but then couldnt find it when they tried to do the measurements. So I was told it was inconclusive and to go back next Monday. Very worried as my missed miscarriage started this way - was measuring behind for the dates. George did say that as I don't know when I ovulated it might still be ok but I'm not too hopeful. I am so used to bad news!

Said it on the other thread but big hugs sue, and crossing fingers that all is well at the next scan next Monday.

Sorry, also meant to say welcome (or welcome back :-) ) swlondonnanny.

Aw sue fingers crossed for you x

Sue so sorry to hear about your scan and will be hoping for you it is just a case of wrong dates. Big hugs.

Hope you are feeling better Mel

Welcome to swlondonnanny, I have been at NLC for over a year and recently had ivf with them and have been really happy with them .

Sorry to hear something is wrong with your dd *Ari, what happened??

Belly wishing you lots and lots of luck with your ivf, fingers crossed!!

Duggs will you be doing your ivf on the nhs?

I saw Mr G today for follow up consultation, we have one frostie to try with which is a good grade blast. He has put me on hydroxy( yay!!) and once I have had one af we can start frozen cycle treatment. Will be doing it naturally and they time putting embryo back with ovulation. Just need this mc to hurry up and finish now!
I asked about further testing but he said he wouldn't advise to do it as most things have the same treatment anyway. We don't really have the money for it anyway!Think if frozen cycle doesnt work we may give donor eggs a try.

Where do you ladies who take hydroxy find it is the cheapest? Have had a google but couldn't find any prices.

Sorry pebbles got mine from mr s. good luck hun.
I'm gettng better thanks so is hubby it was pretty rubbish!
Going for repeat biopsy on Monday so hope there's a change without 3 weeks of meds. Going to see mr gorgy in 3 weeks too so that will be interesting. Might as well rule out what we can but think my uterus has been the prob!Hope my results are fastest than 6 weeks this time awful ovulating and not being able to act but must get this uterus sorted or itd be a death sentence :( waves to All x

Mel good luck with the next biopsy results, hopefully they will be much better. Can I ask if the last biopsy affected the time of the ovulation in the cycle straight aftewards? I normally ovulate day 14 - 16, now on day 16 and still no positive OPK nor EWCM! Also for some reason I got the results in 2 weeks time ( so am now worried they sent me someone elses, didn't do it properly etc...)
Pebbles thank you for your info obout NLC, sorry about your miscarriage and good luck with hydroxy. Who do you normally see at NLC? Is it Mr G?
Sue sorry about your scan yesterday, it must be quite impossible not to worry especially if it is the stage when you are used to things going wrong. Hopefully next weeks scan will be perfect.
Ari hope your DD is better now? Also did you say you have psoriasis? If yes are you on hydroxy? I was diagnosed with psoriasis a few months ago and was told I can't have hydroxy anymore ? As it can cause loads of problems for people with psoriasis? Did you ever hear anything like that?

pebbles Sounding hopeful for your next cycle, I love it when there's a definite plan.

nanny My DD isn't going to be better for a long time, unfortunately, but thanks for asking. Yes I have psoriasis and eczema, and yes I was on hydroxy but it wasn't enough unfortunately - but as well as having an overactive immune system I have DQa problems which rockets my immune attack even higher, and it looks like pretty much no combination of meds however strong (I've been on stronger than hydroxy this last cycle) will overcome. I was never told that hydroxy causes problems for people with psoriasis - unless Mr S forgot I had psoriasis, but he shouldn't have done as that is the main evidence of my autoimmune issues (I have both nail and skin psoriasis). Has Mr S told you this? Bear in mind though that I think I was only the second person Mr S put on hydroxy after free, so perhaps it wasn't known then? I don't know.

pebbles Long story about DD, don't want to bore everyone silly but the short version is that she was diagnosed last week with a rare autoimmune issue where her immune system has started attacking her red blood cells as well as her stomach, with a 50% chance that it will attack her kidneys and bowel too. There's no treatment for it, it apparently eventually sorts itself out - unless it starts damaging the kidneys or bowel, and then they treat that (primarily with prednisolone, would you believe). It's very nasty and she's in a good deal of stomach pain almost all the time :(

Ari, you're not boring us with your DD. No one tries to conceive in isolation from the rest of their lives; this thread is to support people on this journey and it's all relevant.
Mr S should have known about your psoriasis and that hydroxy shouldn't be used with it, assuming that's true in all cases; after all, it's not a new drug and has been used in arthritis for ages. I do find, not just privately, but with the NHS too, that sometimes you are responsible for knowing everything! I once got prescribed the wrong stuff by Mr S, and even bought it, but queried it at the last minute. Brilliant though they are, they're all just so busy.

ari sorry to hear about your DD

pebbles I just used to get them from either Tesco or Superdrug, Shehata charges £20 a box but I don't recall it being very expensive

bellyd fingers crossed for you this cycle

swlondon hello :)

sue still thinking of you

Aw ari :(
The biopsy made my Af come early by 3 days Ish so my ovulation was earlier than usual x

Remember my first biopsy was August- hol time so there was a delay so 5 weeks. I've heard several people get their results in 2 weeks so I wouldn't worry x

Ari hope I didn't upset you about your DD I genuinely thought that it can improve fairly quickly, sorry to hear that it can not.
I actually went to see a dermatologist when I was in Slovakia ( where I am from) as I was really in agony about my scalp, also knees, legs etc and she kept asking what medication I use etc. and was told to not use hydroxy ( after she consulted with a few other doctors ) as it can make psoriasis much worse/cause flare ups etc. Actually looking back I always ever since high school I had bits on my knees, elbows, legs and it always got worse with stress but never went to see a doctor about it. Didn't surprise me though, one more thing on my autoimmune list. Guess if it doesn't cause you any problems than it is good to keep taking it. Oh and was also told that high doses of Omega 3 are good for psoriasis...
I don't actually even want to know what DQa is...
Thank you Mel for reassurance and fingers crossed for much better resuls this time. Also I took paracetamol and ibuprofen an hour before the appointment and it wasn't that painful, actually.

Good luck for Monday Mel!

Nanny I was initially seeing Mr S after never having a natural pregnancy and miscarrying and having chemical pregnancies after ivf on the nhs. I was diagnosed with high nkc's and did 6mths of super ov which didn't work for me. I was then tested for high tnf-alpha which also came back high and had humira. We then moved back to ivf and started seeing Mr G as that's his department.

Ari. so sorry about your dd, you must be worried sick! I hope she starts recovering soon.

Phoned Tesco today and the hydroxy is only £2.89 which was a pleasant surprise after all the money have had to spend on drugs recently!

Thanks ladies hoping so and ill rememember to take pills this time! Wow the mark up on drugs is scandalous!

Sue - from what I've read if a fetal pole measures 6+4 then there should be a visible heartbeat. So there is time for it to become visible.. However would you up the pred to 40mg for example if 25mg doesn't seem to be strong enough? Just a thought as it is all about getting enough nutrients to the fetus according to prof quenby? It is just so unfair because you have had success before at this stage so you know it can be beaten. Thinking of you.

mel Try Asda, if it's for medications you could always fib a little and say it's for IVF, then they sell them at cost price. I don't remember hydroxy being particularly expensive, but any cost saving is good in this game!

nanny No no, you didn't upset me at all, and I appreciate the wishes from everyone! Fortunately I haven't taken hydroxy in several months now, but I'm rather shocked to hear that the issues with psoriasis are well known. That makes me wonder whether Mr S ever really did read my medical notes?! Hmmmm. Funny you should say you never went to see a doctor, neither did I - in fact for a very long time I thought everyone had itchy slightly flaky elbows and pits in their nails.. ! It was only after DD was born and I got crippling joint pains as well as new psoriasis patches on my knees that I went to see the doctor and despite blood tests they never suggested anything other than hydrocortisone cream, which I tried for a while but was leery of because it can thin the skin where it's applied. So I stopped using it and just put up with it! I do actually take 3 grams of omega oil (3 grams active EPA/DHA, I actually take 6 capsules a day) to help with the old immune system suppression.

Interestingly I emailed John Bowen (I mentioned him before, Chinese herbalist that Serum recommend) to ask if he could recommend anything to help my DD, and he has suggested the same herb that he suggested to calm down my own immune system for DD, but obviously in smaller doses. So after he's answered a few questions that I've fired at him I'm going to get her taking these, I'll be extremely interested to see what happens as I plan to take these myself whenever she's better and I can start thinking about another IVF cycle.

Crossing fingers for everyone, and most especially sue right now.

Thanks duggs that reassures me a bit that it might have been too early at 6+2. There was def some kind of pulsing so I am praying that it's developed into a heartbeat now. Even so I still think its measuring too small for the dates even if I did ovulate a week later on cd21. If that was the case, I got my first bfp at 6dpo on 9th sep which seems impossible to me???

It was confirmed that I had food poisoning last week - campylobacteria which can apparently cause miscarriages. If its imperative that the developing baby needs nutrients then this pregnancy looks doomed as I could only eat dry toast for three days. Its typical as I was the only one who got it. There's nothing more I can do now but wait until next Monday at my next scan but I am already expecting the worst.

Forgot to say I am already on 40mg pred.

Oh sue. I think this is similar to my last pregnancy. At 6wks there was only a fetal pole - I couldn't face the 7 wks scan so I had a scan at 7+3 or something and although there was a hb looking back it was too weak and I think I knew it deep down. ESP when choccy wrote about her 156bpm at 6+5 and I also got a bfp at 10dpo so I would also have had a positive at 6dpo or something silly I really don't understand this sue as you are on the same treatment protocol as last time? Could it really be chromosonal? I know I'm jumping the gun and hopefully the little hb has developed as there are lots of stories about slow developing fetus' in v early pregnancy as am sure you've read. If there isn't a hb I suppose you will want to establish if there were any chromosonal issues as this would mean you need to get pg again. (And you are pretty good at that sue). It just seems so unlikely to be nk cells do you think sue??

Sue, the nutrients would be taken from the supply in your body, not necessarily what you're eating day to day, so a few days of toast wouldn't make any difference, I'm sure. I also wouldn't worry about measuring small early on as both my last miscarriage and my DS measured small early on, to have caught up later on. I think they just can't see properly at this point. I've personally had heart beats at 6 plus 1 (DS), 6 plus 2 (mc) and 6 plus 4 (mc), but for me they are meaningless and not the good sign they are meant to be as it all goes wrong around 8 plus 4 generally. Really hoping this one sticks, Sue.