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Archie Battersbee - Thread 3

1000 replies

BongoJim · 31/07/2022 22:06

Follow on from previous full thread

www.mumsnet.com/talk/in_the_news/4596573-archie-battersebee-case-thread-2?page=1

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8
Eeksteek · 02/08/2022 17:46

nolongersurprised · 02/08/2022 09:53

don't think it is 1% - it's more like 0.001%.

I agree. Most parents can see what the outcome/prognosis is. Hollie is finding movement, eye responses, signs of life where there is none

She also being brainwashed by a cult with an agenda. THAT’S the problem here. The system isn’t broken - it’s working perfectly. It’s just being tested to it’s absolute limits by the CLC. And the courts have rightly and repeatedly refused to engage with them on this ‘legally dead’ nonsense they want to get through, and gone down the best interests route (which is the right thing to do anyway)

Eventually even they will exhaust all the options. There are no winners here, but they have not furthered their anti-choice cause, which is very important.

Sadless · 02/08/2022 17:47

Wonder if the Dr's and nurses are actually being able to have proper conversation with the family. If not who is and why would they need 8 security guards at the door the family can't be paying for them and surely if the hospital was why.
Most be a really bad situation in there and other families with sick children will be seeing it all.

Sal

BongoJim · 02/08/2022 17:50

It's obvious with the rhetoric still coming from her that she isn't done appealing yet. There's more to come.

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LetsGoFlyAKiteee · 02/08/2022 17:50

The sky imterview is sad but it'd clear he isn't going to be disabled and even if other countries have different treatments you can't treat this.

Sadly she doesn't believe he is brain dead and that's what's making it harder..

1blossomtree · 02/08/2022 17:53

AGH in the sky interview - claiming his brain is making 95% vasopressin.

So many HCPs must have explained what 5% vasopressin means, and that he isn't making any of his own as he is brain stem dead which sadly means his pituitary gland is non functional.

MrsLargeEmbodied · 02/08/2022 17:54

if they are pushing for a hospice it sounds like they are heading in the right direction

Katyaadlerscoat · 02/08/2022 17:54

Sky news describing Archie as "brain damaged" in their current article.

1blossomtree · 02/08/2022 17:55

JuneOsborne · 02/08/2022 17:09

I can't see the moral issue with moving him to a hospice. There may be practical issues (space, media presence etc) but not a moral one. Clearly the relationship with the hospital has broken down.

At least if HD gets this wish, she'll have won something and I think that seems to be very important to her right now. At the end of the day, this a mother watching her son pass away, and I think any kindness that can be offered ought to be, even if she hasn't been rational or kind to the medical staff. She may well regret that later, but right now, I can't imagine what she's going through at the prospect of the next few hours and days.

Peacefulness all round is what's needed now.

It isn't possible for him to be moved to a hospice - he's not stable enough.

To avoid an unplanned catastrophic death, he needs to have life support withdrawn whilst in the ICU.

I am certain the hospital would support him passing away in a hospice if this was feasible.

LetsGoFlyAKiteee · 02/08/2022 17:55

And again with the execution comments. This why don't think she'll fade when he is gone. She strongly believes the hopsital have done wrong and just wanted him gone. There may have been mistakes which guess come out but don't think to the extent and wanting him dead she believes.

EmeraldShamrock1 · 02/08/2022 17:56

I wonder if Hospice staff could go to the hospital instead and at least assist at the end to help the family, given the breakdown in the relationship between the family and the hospital staff.
That would be nice for the family an outside palliative care team.

I'd imagine things are okay on the ground for the nursing staff- they're not giving her the bad news but who knows.

I really pity her and I hope she will recover from the trauma once he is gone. 😔

I hope she and the public let it go.

Rinoachicken · 02/08/2022 17:56

if I were a hospice - I would be asking ‘is there a risk that, once here, the family then refuse to allow the discontinuation of care…and where would that leave us and the other patients and families we are caring for? ‘

saltedcaramel1 · 02/08/2022 17:58

Rinoachicken · 02/08/2022 17:56

if I were a hospice - I would be asking ‘is there a risk that, once here, the family then refuse to allow the discontinuation of care…and where would that leave us and the other patients and families we are caring for? ‘

Unfortunately a hospice would be unable to provide the level of care Archie needs, so this wouldn't be an issue.

Rinoachicken · 02/08/2022 17:59

I truly hope she doesn’t continue with this combative narrative when it comes to the coroner’s court - right now I can see her demanding to get ‘murdered by the NHS’ listed as his cause of death.

Reallyreallyborednow · 02/08/2022 18:00

So many HCPs must have explained what 5% vasopressin means, and that he isn't making any of his own as he is brain stem dead which sadly means his pituitary gland is non functional

she thinks his pituitary gland is responsible for making saliva- more evidence he’s alive when he drools. Not the fact his swallow reflex is gone….

Pemba · 02/08/2022 18:07

Hospice places are in short supply, my relative had to wait for a place to become available. By the time it was he was too ill to make the journey and died in the hospital. Hospital were very considerate and gave him his own room for the last few days. It would have been nice if he had been able to get to the hospice though. And my relative was conscious. Archie is completely unaware, it will make no difference to him.

Added to that the amount of intervention and equipment needed might make caring for him impossible for the hospice. He might die in transit as pps have said, that would be awful. No hospice is forced to take a patient and honestly it would be in their own interests not to take him. They have to consider their other dying patients, their staff, and logistics.

BongoJim · 02/08/2022 18:09

According to sky news on the hour they will give details this evening when treatment will be withdrawn.

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BongoJim · 02/08/2022 18:10

Of when treatment will be withdrawn that is

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nightshade · 02/08/2022 18:14

I see in one of the court documents it said the family knew he wasn't going to recover but they wanted him to go in his own time, as per God's will and as per the child's own wishes...

It is evident by her recent interviews that is not the case and that she truely believes he is going to wake up....Incredibly sad...

I hope the courts don't have to intervene and insist he stays where he is...😪

Eeksteek · 02/08/2022 18:19

WiddlinDiddlin · 02/08/2022 16:36

I really don't think much can be done to alter the system - although with each case that occurs, further tweaks can be made, but nothing hugely dramatic really.

Some people have a good support network, they have sufficient education/intelligence/something else I can't think of the word for to know that they're not experts in what is happening but that they ought to listen to those who are, they don't have any underlying reason to crave attention or fear authority (or experts, some people are really really scared of and angered by, experts or highly educated specialist knowledge)...

And so such decisions are made relatively quickly and without much in the way of denial or fight-back.

There will always be some people who are not like that - it is hard to imagine but there are people who are, for whatever reason and most of them not remotely 'their fault', really offended, angry at, enraged by, scared of... people who know more than them, authority figures, experts, officialdom.

Some of it comes from upbringing, some of it lack of education, some of it personality - but I can absolutely believe that some people will HONESTLY feel like they're being deceived, that theres a hidden agenda somewhere, no matter HOW kindly or compassionately they're told something they don't want to hear, or control is taken from them.

It must be awful to live like that, constantly frightened, constantly feeling you have to fight 'them', 'the system' etc. Never fully understanding what you're told or what you read.

Insight, I think is the word you are looking for?

I’ve wondered if Hollie is ND. If Archie was and had challenging behaviour, isn’t there something like a 25 percent chance she has too? I’m assuming she’s a similar age to me (my kiddo is 12) and ADHD was barely heard of when I was at school, certainly not for girls. It would go some way to explaining a lot of her behaviour, if she did have ADHD and oppositional problems, wouldn’t it? Especially if she didn’t engage well with education. Oversharing online, impulsive decisions, trouble prioritising, difficulty taking in information, railing against authority. They’re quite common ADHD traits, aren’t they? It’s completely inappropriate to diagnose, obviously, but I mean it to be a charitable suggestion only. If she is, she’s even more vulnerable to exploitation to those CLC bastards. They must think she’s an absolute gift, poor woman. (I know she has made unwise decisions, but they’ve exploited her mercilessly)

PomRuns · 02/08/2022 18:22

@EmeraldShamrock1 the nursing staff and all the team will be very distressed - likely only very senior staff involved in the care. In a previous case- parents would make comments such ‘bet you’re glad he’s worse today’ calling staff murderers, it was truly awful and many staff stopped working in healthcare.

Rinoachicken · 02/08/2022 18:22

The interview she just did with Sky News was very telling. She must have used the word execute about 3 or 4 times. Talking about how our system needs reform, that other countries do so much more but over here we just execute children who might have a disability.

Theres just no reasoning with or talking to her at all. I can’t imagine she even lets the Drs even finish a sentence before she just blocks out what they are saying.

Is it genuine denial? Does she genuinely believe he ‘just’ has a brain injury and could/should be kept alive indefinitely?

Soubriquet · 02/08/2022 18:23

It makes it very hard to be sympathetic to her when she throws the word execute around

BongoJim · 02/08/2022 18:24

Rinoachicken · 02/08/2022 18:22

The interview she just did with Sky News was very telling. She must have used the word execute about 3 or 4 times. Talking about how our system needs reform, that other countries do so much more but over here we just execute children who might have a disability.

Theres just no reasoning with or talking to her at all. I can’t imagine she even lets the Drs even finish a sentence before she just blocks out what they are saying.

Is it genuine denial? Does she genuinely believe he ‘just’ has a brain injury and could/should be kept alive indefinitely?

I think you're right. There really is no reasoning with her. There's so e sort of genuine blockage with rationalisation and comprehension going on I think.

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XenoBitch · 02/08/2022 18:25

Why do they have so many security guards at their door? Is it is because they have been kicking off?

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