Sorry, I just got upset thinking of how much all of this has affected everyone. I will leave the thread(s) now. I just wanted to say that User1471 your experience touched me deeply and I hope sharing what happened has helped you find some peace in some way. Your love for Phil shines through, you seem like such a lovely person.
And the lady from yesterday's thread, I can't remember her name but she'd been called names for switching off her child's life support - I have thought of you a lot and feel so angry on your behalf.
Lots of respect for other parents who have shared such moving stories of their lives. It's been so humbling to read.
I read something a few days ago - might have been on the Alder Hey page but can't remember, which said all of the children dealing with illnesses are as important and valuable as each other, and that "Every child is facing their own unique battle". It really struck a nerve and is something to remember.