Alfie Evans 6

[CamomileTeaShotofVodka]

Following on from the last thread. If there's one already please do delete this one.

Remember not to speculate or make negative comments about the family or discussions will be stopped.

Thoughts are with Alfie tonight

Such an important and sensitive topic.

Mr Evans said they would not be going to the Supreme Court today to pursue their Italian plan and said: 'We got rejected yesterday to go to Italy unfortunately. We could take it further, but would it be the right thing to do?

TE: 'So what we do today, we have a meeting with doctors at Alder Hey and now start asking to go home. Alfie doesn't need intensive care no more.'

goodbye I concur and it's something I said even last week. Too much slack is being given and the disruption to other patients and parents is simply not on. I don't care how desperate TE feels, it is not acceptable to allow his behaviour to cause disruption or upset to other people in that hospital, many of whom may be going through their own heartbreak. This is what annoys me with the Army; they are so absorbed about this one situation they don't give a thought or a care to anyone else.

To add to Keneft's post, the Polish line on this (as with so much at the moment) is driven by a questionable agenda. There's massive dislocation between the judiciary and the government over there, so it sits easily with that government to criticize our courts. Quite apart from cosying up to the Pope.

user1457017537
The Pope, the President of Poland, the Germans and the Italians not showing the UK in a very good light is it.

On the contrary, it's showing the UK in the very best light where the child is rightly prioritised above everything else.

On the other hand the Pope, President of Poland, the Germans and Italians have no idea what the hell they are talking about and frankly have made themselves look ridiculous.

My son had a rare metabolic disorder at birth and only lived for 17 days. We were told that despite extensive tests they could not be sure what exact name to give to the condition but the end result would be the same. On the day before his machines were switched off (please dont call me murderer or anything, i promise we did everything we could) we agreed to him having a muscle biopsy taken. It was 6 months after his death that we finally found the name of his condition. I guess what Im trying to say is you dont need a label to understand, the scans, EEGs, fMRIs etc will give you all the information necessary to make the right decision for your child

Additional from TE
'If the meeting doesn't go well today, well then I'll go back to court.'

He added: 'As I sit next to Alfie's bedside, every second of every day, it encourages me more and more that he will live for 'x' amount of months, possibly years.'

I feel for them. I really do. But i think this is a real refusal to accept the reality of the situation. I'm also really struggling with the idea of leaving a child like that that might be in pain but certainly knows no pleasure, being left in this situation.

Re taking him home. Didn't Judge Hayden say this should be considered? AH have rightly said he can't go home immediately. Not withstanding all the support that will need to be put in place (despite his dad thinking he doesn't need it), with all that's been going on around AH with the crazy mob that are AA, how can they get him home safely? So surely no more appeals are needed, just some calm and level headed behaviour from the family and their "supporters"

FreshTart, I am so sorry for your loss.

FreshTart

No one in their right mind would ever call you a murderer. Most people have the common sense to realise that switching off the life support machine is the very last resort after all other options have been exhausted

I'm very sorry for your loss

I don’t see how they can ensure the safety of staff if they take him home.

Nor Alfie’s best interests.

Can Alfie go home without nursing care being provided?

Quite silvery. The Italian and Polish governments appear to be having a competition to see which of them can be the biggest basket of buffoons. They're both winning.

(please dont call me murderer or anything, i promise we did everything we could) No sane minded person would dream of calling you anything of the sort

FreshTart i am so sorry you had to do that and nobody should ever call you a murderer for your brave actions

Hugs @FreshTart

And yes, @ShatnersWig I think this is the problem now. Taking him home would obviously be the ideal scenario. But I think the concern is that the family and the army's behaviour has made this very difficult to do in an appropriate manner. What's more, if the family are working so hard to physically get in the way of the EOL plans, does that put the hospital in the position where legally they wouldn't want to release him as it's again, not in his best interests.
Sorry that wasn't very eloquent. I haven't had my coffee yet!

I just read that TE said this morning:

"For three days there have been no problems with Alfie. He's still breathing on his own and going strong. The nurse came in this morning said 'wow'. He's proving everyone wrong'."

1. I would find it hard to believe a nurse said that under most circumstances but as TE has said things that are patently not accurate in the past, I find it even harder to believe
2. How on earth can any parent who has resuscitated their own child three times claim there have been no problems?

Thehodgeofthehedge
It's incredibly sad, there seems to a belief that any illness or disease is curable and it simply isn't true. Some conditions move so quickly that the medics cannot do anything about it. The hospital are cutting them slack because their child is dying and the parents are devastated, regardless of what is going on around them.

Queenaravisofarchenland: I did bring up the King case ONLY in the context of HOPE, it has given hope to some parents that the answers lie in another country, rightly or wrongly.

But how could they let him go home when neither parent is accepting of their son's impending death..............

Fresh tart, you did what any parent would that can see they need to put their child first. And that's not always going to be keeping the poor child with no chance of any kind of life alive because you can't face the horrible reality of a awful situation.

Well done for putting your sons welfare before your own emotions. I hope you have some comfort knowing the vast majority of folk think this.

It’s absolutely appalling that such is the level of hateful public discourse arising from this case, a bereaved mother has to appeal not to be called a murderer for switching off her infant child’s life support machine. Just appalling.

Deep sympathies for your loss FreshTart

They can apply to the court ask to go home assuming Alderhay refuses today, which it almost certainly will (and they'd need court ordered permission even if it agrees). That suggestion is bolstered by the judge in the High Court mooting the possibility. But the answer was that there needed to be a sea change in the parents' relationship with the medics and yesterday the Court of Appeal took time out to say that the opposite of a rapprochment had happened. So you reap what you sow kind of thing. I struggle to see how the parents can prove themselves fit and safe to take Alfie home quickly enough for it to happen. A change in such a soured relationship can't happen overnight.