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Original poster

Charlie Gard 17 re started

999 replies

muckypup73 · 25/07/2017 20:39

Ok guys, we have been very lucky to discuss this, please lets not give anyone anything to complain about, Mhq have been more than accomodating.

OP posts:
LovelyBath77 · 25/07/2017 21:56

I didn't think talking about future chances of people having babies with mito was a problem? Or prenatal testing? I thought it might me of interest. Other people have inherited genetic diseases, also. Sorry if have caused offence with my links. I was trying to bring hope.

Original poster
muckypup73 · 25/07/2017 21:56

Sostenueto, I agree.

OP posts:
Original poster
muckypup73 · 25/07/2017 21:58

Keep posting guys, keep posting, dont let the negativity draw you in, thats what they want so it will be deleted, just keep posting.

OP posts:
AnOccasionalDelurker · 25/07/2017 21:58

@WeDoNotSow

I've read some heartbreaking posts in the past from women who lost unborn babies before the point of viability - materially
earlier than any baby has been recorded to survive - who were convinced that they'd failed as mums because they didn't "fight" harder for their babies and that, if they'd badgered the doctors into put the poor little thing on a ventilator, there would have been a miracle and they'd have a healthy child now. Heck, I've come across women online who, bolstered by material they'd seen on hardline Catholic websites, thought that a good mother would "fight" to save an ectopic pregnancy rather than letting it be treated. So yes, I think the "good parents never give up" narrative is psychologically, and sometimes even physically dangerous.

ShatnersWig · 25/07/2017 21:58

Funny. When several high profile actors were taken to court over allegations of historical abuse claims and found innocent, there were posters basically saying they disagreed with the verdicts, that there was no smoke without fire, these people were guilty etc. I never saw one of those posts get deleted. There were constant threads of the "so who is Kitty?" with people giving clues to their supposed identity by sing titles. And people staying he was obviously guilty. They weren't deleted either.

Those were far, far more damaging and offensive and we're left to stand. And at least two of them were/also parents. "In the spirit of MN"? When it suits, it seems.

I'm out.

alcibiades · 25/07/2017 21:58

SadGuru - I'm not doubting any mention here about what the BBC said that the parents' lawyers said - I'm doubting the veracity of that BBC report. It could be a case of Chinese whispers. Or it could be a case of selective mention to selected news organisations.

But in the latter case, that must be worst thing to have done at the present time, because it would do the parents' case no good at all. Hence why I can't be sure that even the BBC have got it right.

MillieMoodle · 25/07/2017 21:59

JaneEyre Flowers I am so very sorry for your loss.

GinSoakedTwitchyPony · 25/07/2017 21:59

Writer I completely agree with you.

PyongyangKipperbang · 25/07/2017 21:59

The BBC have a head line on their main page 'Hospice "best option" for Charlie' and then underneath 'Judge will rule......whether his parent can take Charlie home to die' Why? Its been made very clear that going home isnt a viable option so why put the headline like that?

Original poster
muckypup73 · 25/07/2017 22:02

PyongyangKipperbang, the press do not give a shit,it makes news for them, the only paper belive it or not that has been on the level has been the Daily Fail, can you imagine that??? the Daily Fail??? lol

OP posts:
LovelyBath77 · 25/07/2017 22:02

Maybe it's a mistake, they already ruled out that option.

LovelyBath77 · 25/07/2017 22:03

Yes, and it makes news and stirs thing up. Would have thought better of the BBC though (possibly)

GabsAlot · 25/07/2017 22:03

i also ask abot why judge hasnt ruled already if home isnt a viable option

did thy really say thy want to reclaim all thir funds from nhs of thy pay privatly?

Original poster
muckypup73 · 25/07/2017 22:04

LovelyBath77,the Bbc are usually ok,its sad to say the Daily Fail have done better than the Bbc when it has come to this case,that is saying something!!!!!

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Butterymuffin · 25/07/2017 22:06

The Daily Mail has been much more balanced than the Guardian on this. That has really surprised me.

Puzzledandpissedoff · 25/07/2017 22:07

I see the deletions have started on this thread too - which genuinely surprised me as I honestly thought posters were being especially careful in what they said to avoid censorship

It seems to me unavoidable that some kind of concerted reporting has come into play, so before this too is deleted and it becomes impossible to discuss the case on MN at all, can I end a massive thank you to the vast number of knowledgeable and experienced posters from whom I've learned so very much Flowers

Cheby · 25/07/2017 22:07

I missed the last thread, didn't get chance to read before it was deleted. Obviously I don't want anyone to repeat what got it deleted, but can anyone give the the gist?

I have read JR's tweets today so I am up to speed on what happened in court.

AnOccasionalDelurker · 25/07/2017 22:07

I think the Mail eventually cottoned on to the fact that its initial stance on this case was really pissing its readers off!

Maryz · 25/07/2017 22:09

This reply has been deleted

Message withdrawn at poster's request.

MyPatronusIsAUnicorn · 25/07/2017 22:09

I didn't know they had been back in court again today.

Surely they can't let him home as the parent want a few days, what happens then? I can't imagine they will let the nurse or whoever it is do anything, I think they will keep arguing. Other family will possibly be there and we have seen how they act. Surely it would be possibly dangerous for the nurse.

Writerwannabe83 · 25/07/2017 22:09

I see the deletions have started on this thread too....

Seriously?! Bloody hell.

Tequilamockinbird · 25/07/2017 22:09

I've just had a breaking news notification from Sky but clicked it and it's disappeared. Something along the lines of 'CG's parents appeal for urgent help to take him home.'

Anyone else had it? Can't see anything on the app.

alcibiades · 25/07/2017 22:10

TheCraicDealer - thanks for your 21:53 post. I'm a "facts" person, and I don't find it easy to read the nuances. I guess if there's a psychological need to blame (which is a pretty natural reaction when things go so horribly wrong) then really there's only one possible target.

SadGuru · 25/07/2017 22:10

alcibiades
I won't disagree with you on that actually. Having seen how all the papers and news channels are reporting this over last few weeks, I think you are right not to trust anything that is quoted by any of them!

BoreOfWhabylon · 25/07/2017 22:10

Also, registered nurses have to abide by their professional code, which puts the patient at the centre of everything.

If I were a PICU nurse (I'm not, adults only), apart from any other considerations - and there are many - I would have to take the view that the proposed course of action is not in the patient's best interest, so it would be unethical to facilitate it.