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Charlie Gard 15

999 replies

cjt110 · 24/07/2017 12:59

This is a thread following the legal and ethical questions raised by the recent court case involving Charlie Gard.

Please could we refrain from insulting or otherwise "bashing" his parents. It isn't in the spirit of Mumsnet and will get the threads removed.

Please could we also remember that at the heart of this case is a terminally ill baby and his heartbroken parents. There are those participating in and watching this thread for whom these issues are painful. Please let's try and be mindful of them when we post. This isn't a place for name calling or trivialising the very real pain they feel. Many parents of severely disabled children are on here.

Lastly, here are some hopefully useful reference points of facts surrounding the case.

13 July GOSH position statement on latest hearing (includes update on Charlie's condition):
www.gosh.nhs.uk/file/23611/download?token=aTPZchww

7 July GOSH statement on Charlie:
www.gosh.nhs.uk/news/latest-press-releases/latest-statement-charlie-gard

June 2017 Supreme Court decision:
www.youtube.com/watch?v=P6rPmvGlNhA&app=desktop

May 2017 Court of Appeal Decision:
www.bailii.org/ew/cases/EWCA/Civ/2017/410.html

April 2017 High Court Decision:
www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

GOSH FAQ page on Charlie:
www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Timeline so far

August 4, 2016 Charlie born 8lb 3oz to Connie Yates and Chris Gard.

October 2016 Tests reveal mitochondrial depletion syndrome.
Believed to be only 16th sufferer in the world of rare strain.

Autumn 2016 Miss Yates finds specialist in US testing nucleoside therapy, but it has never been tried on Charlie’s rare type.

January Gosh doctors say drug would be futile because of irreversible brain damage. Parents contact US doctor.

March Gosh asks High Court to let Charlie die. Mr Justice Francis gives parents a month to make case for treatment. Daily Mail readers help raise £197,000 in days to help fly Charlie to US.

April Doctors say he is likely to be in pain. Judge rules Gosh should let him die.

May Court of Appeal upholds ruling. Parents appeal to Supreme Court.

June Supreme Court rejects appeal. On June 27, European judges back decision. Gosh gives parents more time with Charlie. Pope Francis intervenes, followed by Donald Trump on July 3.

July 7 Seven scientists hand Gosh fresh evidence showing higher survival chances.

July 10 Mr Justice Francis gives parents 48 hours to produce new evidence in case.

July 13 US specialist Dr Michio Hirano invited to London by High Court

July 17 Dr Hirano examines Charlie.

July 21 Court told scan results ‘very sad’.

Today, 24 July, High Court due to rule on the case, ten days before Charlie’s birthday.

OP posts:
cjt110 · 24/07/2017 13:57

@JR Gard: family waiting to enter court with their lawyers and supporters. Courtroom not yet open.

@skyrobcatherall Charlie's parents Connie Yates and Chris Gard being embraced by family members outside the courtroom.

@JR Gard: court still locked. Family in adjacent room.

OP posts:
AmyGMumsnet · 24/07/2017 13:57

Hi all

We've posted on the previous thread clarifying HQ's position with these threads - here's a link to that post.

GinSoakedTwitchyPony · 24/07/2017 13:57

leaffy you can follow JR's live tweets on a laptop - I'm using one - but I'm fairly certain that you will need a Twitter account to view more than a couple of them. It will keep asking you to login.

Try this link though :

twitter.com/JoshuaRozenberg

MaudGonneMad · 24/07/2017 13:58

Weird - it says MNHQ have commented on the thread, but I can't see their comment. Can anyone else?

Gobbolinothewitchscat · 24/07/2017 13:58

I wish the pastor could be arrested for a public disorder offence

MaudGonneMad · 24/07/2017 13:58

Ah there it is. As you were.

Jedbartletforpresident · 24/07/2017 13:58

oak I posted links to 3 Sky reporters twitter pages on the last page (or maybe page 2 - thread is moving so fast!) - if you click on it you should be able to follow along without needing to be logged in. Alternatively, the sky live feed CJT posted seems to be posting tweets from all the Sky reporters (I think)

GinSoakedTwitchyPony · 24/07/2017 13:58

posted too soon! cjt will be updating on the thread

11122aa · 24/07/2017 13:59

Has the pastor done something today.

GinSoakedTwitchyPony · 24/07/2017 13:59

yy Gobbolino

BeyondDrinksAndKnowsThings · 24/07/2017 13:59

Gobbolino, I think it's a very fair point to make, not OT as it's related to the loopy pastor!

TheFairyCaravan · 24/07/2017 13:59

I've never understood why any of the protesters have used their children and babies. It seems so wrong to me dragging them into something that they really don't understand

smilingmind · 24/07/2017 14:00

oak the sky links posted above should open in a laptop browser.

Ellie56 · 24/07/2017 14:00

Is it possible for a luddite without a smartphone to follow Joshua Rosenburg's live tweets?? [eg, on laptop] It's what I'm doing oakleaffy

WeDoNotSow · 24/07/2017 14:00

Court not open yet, and lawyers not being admitted either for some reason?

oakleaffy · 24/07/2017 14:00

Jedbartlet Thankyou.

unbuckle · 24/07/2017 14:01

What a horrific day. The suffering of the whole family does not bear thinking of.

GinSoakedTwitchyPony · 24/07/2017 14:01

IMO it's very unpleasant Fairy, and could have awful repercussions for some of the children in years to come.

Sostenueto · 24/07/2017 14:01

Live feed now on sky news sit press yellow box to follow can't paste link. Family there but court not open?

WeDoNotSow · 24/07/2017 14:01

Court unlocked just as I posted.

AccrualIntentions · 24/07/2017 14:02

You can add me to this list too Gobbolino. It's really disappointed me the way some catholic commentators have reported on and reacted to this case, since it's entirely in keeping with the church's teachings to start with! I'm not personally against euthanasia, in conflict with the official church position - but this isn't euthanasia. There are no catholic teachings which go against palliative care for the terminally ill.

GabsAlot · 24/07/2017 14:02

thyr going to try and cross xamin hirano arnt they

oakleaffy · 24/07/2017 14:02

Ellie..Ok, thanks, I have a bricky Nokia..will look for links now on laptop

GinSoakedTwitchyPony · 24/07/2017 14:03

Curious to know how are those of you on a laptop seeing more than one tweet on Twitter without being logged in? Sometimes I try to use my work laptop to follow a Twitter feed without logging in but it will only ever let me view one or two before insisting I login.

oakleaffy · 24/07/2017 14:04

Got Joshua Rosenburg..many thanks all.
Court still shut, prob with video-link to press room?