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Charlie Gard 15

999 replies

cjt110 · 24/07/2017 12:59

This is a thread following the legal and ethical questions raised by the recent court case involving Charlie Gard.

Please could we refrain from insulting or otherwise "bashing" his parents. It isn't in the spirit of Mumsnet and will get the threads removed.

Please could we also remember that at the heart of this case is a terminally ill baby and his heartbroken parents. There are those participating in and watching this thread for whom these issues are painful. Please let's try and be mindful of them when we post. This isn't a place for name calling or trivialising the very real pain they feel. Many parents of severely disabled children are on here.

Lastly, here are some hopefully useful reference points of facts surrounding the case.

13 July GOSH position statement on latest hearing (includes update on Charlie's condition):
www.gosh.nhs.uk/file/23611/download?token=aTPZchww

7 July GOSH statement on Charlie:
www.gosh.nhs.uk/news/latest-press-releases/latest-statement-charlie-gard

June 2017 Supreme Court decision:
www.youtube.com/watch?v=P6rPmvGlNhA&app=desktop

May 2017 Court of Appeal Decision:
www.bailii.org/ew/cases/EWCA/Civ/2017/410.html

April 2017 High Court Decision:
www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

GOSH FAQ page on Charlie:
www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Timeline so far

August 4, 2016 Charlie born 8lb 3oz to Connie Yates and Chris Gard.

October 2016 Tests reveal mitochondrial depletion syndrome.
Believed to be only 16th sufferer in the world of rare strain.

Autumn 2016 Miss Yates finds specialist in US testing nucleoside therapy, but it has never been tried on Charlie’s rare type.

January Gosh doctors say drug would be futile because of irreversible brain damage. Parents contact US doctor.

March Gosh asks High Court to let Charlie die. Mr Justice Francis gives parents a month to make case for treatment. Daily Mail readers help raise £197,000 in days to help fly Charlie to US.

April Doctors say he is likely to be in pain. Judge rules Gosh should let him die.

May Court of Appeal upholds ruling. Parents appeal to Supreme Court.

June Supreme Court rejects appeal. On June 27, European judges back decision. Gosh gives parents more time with Charlie. Pope Francis intervenes, followed by Donald Trump on July 3.

July 7 Seven scientists hand Gosh fresh evidence showing higher survival chances.

July 10 Mr Justice Francis gives parents 48 hours to produce new evidence in case.

July 13 US specialist Dr Michio Hirano invited to London by High Court

July 17 Dr Hirano examines Charlie.

July 21 Court told scan results ‘very sad’.

Today, 24 July, High Court due to rule on the case, ten days before Charlie’s birthday.

OP posts:
CotswoldStrife · 24/07/2017 14:04

Will start any minute now, I expect. I hope that it runs non-stop though, no pauses for any reason - it just need to conclude.

LapinR0se · 24/07/2017 14:04

Press not admitted

smilingmind · 24/07/2017 14:05

Should work oak I have them open on my browser and am not logged in to twitter. I have an account but can't even remember what my password is.

cjt110 · 24/07/2017 14:05

*uture
Live updates from the High Court as a judge decides whether the terminally ill child should be treated by a specialist in the US.
13:34, UK,
Monday 24 July 2017
The parents of Charlie Gard have lost their appeal against a ruling which would allow doctors to withdraw life-support treatment.
Image:
Great Ormond Street Hospital says Charlie's life support treatment should stop

@JoshuaRozenberg
2m
Gard: press still held outside court.
Reply on TwitterRetweetLike
@JoshuaRozenberg
3m
Gard: problem seems to be with video link to overflow courtroom.
Reply on TwitterRetweetLike
@skyrobcatherall
4m
Court unlocked - family being ushered in
Reply on TwitterRetweetLike
@JoshuaRozenberg
4m
Gard: family now enter courtroom.
Reply on TwitterRetweetLike
@JoshuaRozenberg
5m
Gard: lawyers not being allowed into court either. Not clear why.
Reply on TwitterRetweetLike
@JoshuaRozenberg
7m
Gard: not clear why court usher has not opened the courtroom.*

OP posts:
Gobbolinothewitchscat · 24/07/2017 14:05

Agree accrual - our priest who is a lovely man but not the most modern has been very clear that he feels this is in God's hands and he will do what is right for Charlie

Whilst I appreciate this doesn't take into account the specific medical issues, at no stage has he said that Charlie is being "murdered" etc etc

GinSoakedTwitchyPony · 24/07/2017 14:05

Going to take a wee break.

Whatever the outcome, please let it be the best for Charlie.

Sirzy · 24/07/2017 14:06

I agree it needs to conclude. However it needs to be done as thoroughly as possible to make sure that there is no room for any appeal afterwards. Better that this stage takes a few hours longer and makes sure it as as watertight as possible.

CotswoldStrife · 24/07/2017 14:06

I'm also on a laptop

GabsAlot · 24/07/2017 14:06

hirano going to hav to say on way or anothr if hs still preppard to treat charlie

oakleaffy · 24/07/2017 14:07

Ginsoaked Pony I'm not logged in, but my latest 'tweet' says ''3m Gard: Press still held outside court''
Are others seeing more recent tweets from @Rosenburg?

QuizteamBleakley · 24/07/2017 14:07

Media being allowed in four or five at a time. Chris Gard studying sheet of notes closely and making notes with biro

CotswoldStrife · 24/07/2017 14:08

There seems to be a problem with the video link, and it seems that they are trying to squash everyone into one room.

QuizteamBleakley · 24/07/2017 14:08

The Sky News live feed is live retweeting from their 3 reporters. Even if you don't have Twitter, you can get real-time updates there.

Puzzledandpissedoff · 24/07/2017 14:09

oakleaffy

Here you go ... I'm watching it on a laptop myself: news.sky.com/story/live-judge-considers-charlie-gards-future-10959647

GinSoakedTwitchyPony · 24/07/2017 14:09

Thanks leaffy. Could be something to do with my cache on work laptop. Will clear it so it thinks I don't have a Twitter account and see what happens!
Back soon.

cjt110 · 24/07/2017 14:11

@skyrobcatherall
3m
Media being allowed in four or five at a time. Chris Gard studying sheet of notes closely and making notes with biro
Reply on TwitterRetweetLike
@JoshuaRozenberg
4m
Gard: press now in court. Seems to be problem with link to overflow courtroom so public have now been brought to main courtroom. But no room

OP posts:
TheFairyCaravan · 24/07/2017 14:11

The woman reporting on the TV for Sky just said the ruling is likely to be Wednesday now.

Maryz · 24/07/2017 14:11

This reply has been deleted

Message withdrawn at poster's request.

Lissette · 24/07/2017 14:11

Another Catholic here agreeing with accrual and Gobbolino.

GabsAlot · 24/07/2017 14:12

wondr if we'll find out what the delay was from starting at 10 now 2

Maryz · 24/07/2017 14:12

This reply has been deleted

Message withdrawn at poster's request.

Maryz · 24/07/2017 14:13

This reply has been deleted

Message withdrawn at poster's request.

cjt110 · 24/07/2017 14:13

@JoshuaRozenberg 1m Gard: some public now being allowed into court. Proceedings have not yet started.

OP posts:
Gobbolinothewitchscat · 24/07/2017 14:14

maryz - I really cannot give the slightest bit of brain space to any awful cretins acting like this today

Fancythat69 · 24/07/2017 14:14

It's disgraceful Maryz