Charlie Gard 15

[cjt110]

This is a thread following the legal and ethical questions raised by the recent court case involving Charlie Gard.

Please could we refrain from insulting or otherwise "bashing" his parents. It isn't in the spirit of Mumsnet and will get the threads removed.

Please could we also remember that at the heart of this case is a terminally ill baby and his heartbroken parents. There are those participating in and watching this thread for whom these issues are painful. Please let's try and be mindful of them when we post. This isn't a place for name calling or trivialising the very real pain they feel. Many parents of severely disabled children are on here.

Lastly, here are some hopefully useful reference points of facts surrounding the case.

13 July GOSH position statement on latest hearing (includes update on Charlie's condition):
www.gosh.nhs.uk/file/23611/download?token=aTPZchww

7 July GOSH statement on Charlie:
www.gosh.nhs.uk/news/latest-press-releases/latest-statement-charlie-gard

June 2017 Supreme Court decision:
www.youtube.com/watch?v=P6rPmvGlNhA&app=desktop

May 2017 Court of Appeal Decision:
www.bailii.org/ew/cases/EWCA/Civ/2017/410.html

April 2017 High Court Decision:
www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

GOSH FAQ page on Charlie:
www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Timeline so far

August 4, 2016 Charlie born 8lb 3oz to Connie Yates and Chris Gard.

October 2016 Tests reveal mitochondrial depletion syndrome.
Believed to be only 16th sufferer in the world of rare strain.

Autumn 2016 Miss Yates finds specialist in US testing nucleoside therapy, but it has never been tried on Charlie’s rare type.

January Gosh doctors say drug would be futile because of irreversible brain damage. Parents contact US doctor.

March Gosh asks High Court to let Charlie die. Mr Justice Francis gives parents a month to make case for treatment. Daily Mail readers help raise £197,000 in days to help fly Charlie to US.

April Doctors say he is likely to be in pain. Judge rules Gosh should let him die.

May Court of Appeal upholds ruling. Parents appeal to Supreme Court.

June Supreme Court rejects appeal. On June 27, European judges back decision. Gosh gives parents more time with Charlie. Pope Francis intervenes, followed by Donald Trump on July 3.

July 7 Seven scientists hand Gosh fresh evidence showing higher survival chances.

July 10 Mr Justice Francis gives parents 48 hours to produce new evidence in case.

July 13 US specialist Dr Michio Hirano invited to London by High Court

July 17 Dr Hirano examines Charlie.

July 21 Court told scan results ‘very sad’.

Today, 24 July, High Court due to rule on the case, ten days before Charlie’s birthday.

Been trying to place mark for the last 5 minuted but you lot keep eating the pages up!

Maryz I agree.

Sorry Sost - nice to see you back.

....Still awaiting a Sky feed....

teainbed, I agree, it's the best combination, he is exellent.

No worries Cjt, just wanted to check it. Thanks

It's also missing (sorry to be picky) from the OP that gosh was already in the process of getting ethical authorisation for nucleoside therapy when he became more ill. I think that's a very important bit, and it's ommitance makes me wonder about the source for the timeline?

(Apologies if someone here put it together and just missed that bit)

For those that have thanked for the prayer you are more than welcome.

BeyondDrinksAndKnowsThings Sorry - i just spotted it this morning and thought it a good summary. I didnt say it was in depth... Cant even find the bloody thing now to say where it's from

Joining thread to follow the updates

Do we envisage judgement will be passed today, or tomorrow?

Thank you for new thread. Let us hope the threads stay open..

Thanks also for updates and info.

Thanks to all for comments on music and morning opener and to Nellie for prayer and to cj for new thread. And thanks to all for being here. Xxxx

The judge said Tuesday last week and that he wanted to start at 10am today which sounded as if the 10am start was to enable that to happen.

But as there's a 2pm start today then that makes things less clear. If there is to be evidence given then today would seem unlikely but with the 2pm start then tomorrow seems less likely as well.

No one knows.

It is a good summary cjt, which is what made me wonder why that bit was missing :)

The Lark Ascending is on the radio at the moment.

Do we envisage judgement will be passed today, or tomorrow?

I think when it's started so late today it'll be tomorrow. I hope whatever the outcome they act quickly on what ever is ruled

Can someone please link to the sky live thread that was posted previously? The one which updates from both their correspondents? I don't know how to find it, or whether it will go live at 2, or before?
Thanks

Delurking to follow today. I've been reading the threads since the beginning, although they move so fast I've had to skip some bits to keep up.

I dropped out of these discussions a while ago.
Just wanted to say, my thoughts and prayers are with the Gard family and Charlie. I don't think I can follow this today as it's beyond heartbreaking for everyone involved. I also sympathise with GOSH, who have only acted in Charlies best interests. Horrible horrible situation for everyone I honestly cannot imagine anything worse.

Unless there has been some kind of behind-the-scenes agreement already I think tomorrow would be the earliest.

Interesting if CA have turned off the FB comments. I won't speculate on the reason behind that but it's a step in the right direction.

I've just seen Adele Robinsons tweet for Sky news. There aren't many people at the 'protest' by the looks of it.

I don't think comments have been turned off, or at least a comment has been made on a post in the last minute.

this is the last sky thread I had but it seems to only have until 14 July on it. I cannot find anything else on their website...

Is this the sky live feed?