Charlie Gard 15

[cjt110]

This is a thread following the legal and ethical questions raised by the recent court case involving Charlie Gard.

Please could we refrain from insulting or otherwise "bashing" his parents. It isn't in the spirit of Mumsnet and will get the threads removed.

Please could we also remember that at the heart of this case is a terminally ill baby and his heartbroken parents. There are those participating in and watching this thread for whom these issues are painful. Please let's try and be mindful of them when we post. This isn't a place for name calling or trivialising the very real pain they feel. Many parents of severely disabled children are on here.

Lastly, here are some hopefully useful reference points of facts surrounding the case.

13 July GOSH position statement on latest hearing (includes update on Charlie's condition):
www.gosh.nhs.uk/file/23611/download?token=aTPZchww

7 July GOSH statement on Charlie:
www.gosh.nhs.uk/news/latest-press-releases/latest-statement-charlie-gard

June 2017 Supreme Court decision:
www.youtube.com/watch?v=P6rPmvGlNhA&app=desktop

May 2017 Court of Appeal Decision:
www.bailii.org/ew/cases/EWCA/Civ/2017/410.html

April 2017 High Court Decision:
www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

GOSH FAQ page on Charlie:
www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Timeline so far

August 4, 2016 Charlie born 8lb 3oz to Connie Yates and Chris Gard.

October 2016 Tests reveal mitochondrial depletion syndrome.
Believed to be only 16th sufferer in the world of rare strain.

Autumn 2016 Miss Yates finds specialist in US testing nucleoside therapy, but it has never been tried on Charlie’s rare type.

January Gosh doctors say drug would be futile because of irreversible brain damage. Parents contact US doctor.

March Gosh asks High Court to let Charlie die. Mr Justice Francis gives parents a month to make case for treatment. Daily Mail readers help raise £197,000 in days to help fly Charlie to US.

April Doctors say he is likely to be in pain. Judge rules Gosh should let him die.

May Court of Appeal upholds ruling. Parents appeal to Supreme Court.

June Supreme Court rejects appeal. On June 27, European judges back decision. Gosh gives parents more time with Charlie. Pope Francis intervenes, followed by Donald Trump on July 3.

July 7 Seven scientists hand Gosh fresh evidence showing higher survival chances.

July 10 Mr Justice Francis gives parents 48 hours to produce new evidence in case.

July 13 US specialist Dr Michio Hirano invited to London by High Court

July 17 Dr Hirano examines Charlie.

July 21 Court told scan results ‘very sad’.

Today, 24 July, High Court due to rule on the case, ten days before Charlie’s birthday.

I'm just watching BBC news now and it's talking about the case and the latest image they've shown of Charlie is just heartbreaking. He looks so, so unwell. There's just nothing behind his eyes. It's so sad

NP stitch

YY Saucery - in that by quoting CA or criticising the parties, it is not in the nature of the site.

I cannot seem to locate the Skyfeed I had followed previously. Can someone point it out and then I'm ready to Tweet away when in session.

I'd like to thank Nellie for the prayer she put on the last thread. I think whether you're spiritual or not, it sums up what we all hope for. Resolution for Charlie and peace for his family.

Quotes - you know the way we don't like our posts on here (meant for the MN audience) ending up on an online newspaper instead without our permission? Seems likely to me that others feel the same way wherever they post

Sorry! Amorphous is without definite shape or form.

Thanks for the new thread

Well, cjt that's all those FB Selling Tat threads fucked then, eh?

Yknow what I mean saucery....

I've pretty much caught up all of the posts from the weekend.

Can I just ask about the source for this quote in the OP :

"Autumn 2016 Miss Yates finds specialist in US testing nucleoside therapy, but it has never been tried on Charlie’s rare type."

My understanding is that it was "late December" when this happened. That's what I read in one of the judgments, probably the April one. Happy to be corrected but would like to know the source.

Thank you for the new thread. Will be back at 2 to follow the proceedings. I am feeling for Chris and Connie. They must be feeling gut wrenchingly anxious right now.

cjt here are the three threads I have open on my phone:

JR

IanWood

RobCatherall

All Sky news

Sorry! Amorphous is without definite shape or form.

You don't need to apologise for being more intelligent than the rest of us, lol

Gin I can't remember where I saw it now and it's likely buried in my internet history. I'll have a look where I got it from... (probably not a brilliant source)

Another placemarking.
Although I feel I'm intruding into the family's grief, I've followed Charlie's story since the fundraising started. Now feel I know him & his parents & would love to give them all a massive hug & wave a magic wand to repair Charlie's broken mitochondria. If only I could..........

Thanks for new thread, and thinking of all concerned today, not easy for any of them.
Mediation, hopefully will be the way to go in future in cases like this.
The Court system is adversarial, not an ideal arena for mutual trust.

Hardly, Writer, more a wasted youth reading Lovecraft

Gin Yes, it appears to be Jan 2017 accoding to this - apologies.

cjt thanks for the thread, and jed thanks for the links

Just watched the Dr Ranj clip someone posted and it is excellent.

Joining the new thread for update soon.

I think people like JR are freelance and can be asked to report or comment by any network. Unlike staff BBC or Sky News reporters. But as he's a QC and an actual lawyer he's probably the one of the best there is for combining media and the law.