Charlie Gard 13

[muckypup73]

This is a thread following the legal and ethical questions raised by the recent court case involving Charlie Gard.

Please could we refrain from insulting or otherwise "bashing" his parents. It isn't in the spirit of Mumsnet and will get the threads removed.

Please could we also remember that at the heart of this case is a terminally ill baby and his heartbroken parents. There are those participating in and watching this thread for whom these issues are painful. Please let's try and be mindful of them when we post. This isn't a place for name calling or trivialising the very real pain they feel. Many parents of severely disabled children are on here.

Lastly, here are some hopefully useful reference points of facts surrounding the case.

13 July GOSH position statement on latest hearing (includes update on Charlie's condition):
www.gosh.nhs.uk/file/23611/download?token=aTPZchww

7 July GOSH statement on Charlie:
www.gosh.nhs.uk/news/latest-press-releases/latest-statement-charlie-gard

June 2017 Supreme Court decision:
www.youtube.com/watch?v=P6rPmvGlNhA&app=desktop

May 2017 Court of Appeal Decision:
www.bailii.org/ew/cases/EWCA/Civ/2017/410.html

April 2017 High Court Decision:
www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

GOSH FAQ page on Charlie:
www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Thanks for the new thread muckypup

Here xx how do I delete mine?

Sostenueto,sorry luv, I thought I would do it as you could not on your phone, I would ask admin, I would say leave mine, only because in your titale you have put Charlie Hard lol

CaveMum, you are welcome, lets fill the other thread up first though x

Thanks for the new thread mucky

So sorry mucky my phone is an arsehole it doesn't do anything right so how do I delete mine?

Yes thank you mucky we cross posted.

Ffs! It won't do anything now!

Thanks for new thread

Yes thanks for new thread.

latest article

I think this was meant to be the directions hearing. Hence 2 hours.

Thank you for the new thread. I'm finding everyone's experiences really enlightening.

Fine start to the day.

0nline, that is not good.

I read part of the last thread but missed a couple of threads completely - been busy and unwell and not really been on mumnset for a few days.

I cannot believe how much this is being dragged out and how many people now seem to be involved with this case. It's gone from being a case where the Doctors were making the decisions they thought best for Charlie to a worldwide media circus with everyone throwing their views in. It's almost like Charlie's needs have been lost sight of amongst all the 'parents rights' and 'America's got better doctors' debates going on.

Ultimately there is just a small boy who is at the centre of the this and his parents who are living every parents worst nightmare. I have tried not to post anything on my FB as I have a lot of friends who have disabled children and some bereaved parents, parents who had to make the decision Charlie's parents are facing. I don't think it's fair to rake open raw wounds.

Chris and Connie seem to be clutching at every tiny little shred of hope, no matter that it may be false hope. I can't blame them for that but there will be no bike riding happy ending.

Thread 13! Thanks Mucky.

Went out with three friends last night (different ones to the ones I talked to before). All of them were under the "nasty gosh kills baby and denies cure" impression. I may have monologued at them a little, but after facts (and big words ), all three said he should be allowed to die.

Really annoys me that the media keep allowing this impression to be reinforced

that is not good

A phrase that accurately describes a fair old wedge of local Italian politics.

Thank you for the new thread mucky

"there will be no bike riding happy ending."
I keep wondering who the little girl from that poster was, what is her real story, and will she forever be known as the unknown girl who, unlike Charlie, was 'saved' or 'cured'. It would be terrible if her story was different or has been grossly misrepresented, and that is never heard, just the bike girl who could have saved Charlie..............I would feel happier if we at least knew her parents were happy for her pictures to be used and her illness had not been misrepresented or misunderstood. After all, CA are more than happy to use those blue-lit buildings for autism etc and appropriate them..............

Just to add done search by image, nothing found and only an image of the Charlie 'a cure is possible' poster as a whole found and no more info. She deserves her own story and struggle to be respected!

Thanks for the new thread. Will come and catch up later.

For those not on twitter -

Joshua Rozenberg @JoshuaRozenberg 12m
Charlie Gard's parents back in court for what's expected to be a short procedural hearing ahead of the two-day hearing planned for next week

Joshua Rozenberg @JoshuaRozenberg 2m
Grant Armstrong for Charlie Gard's parents tells Mr Justice Francis they were not allowed to see his hospital notes.

Joshua Rozenberg @JoshuaRozenberg
·5s Gard: Armstrong confirms that the hospital multi-disciplinary meeting went ahead and has been transcribed. Further MRI scan done yesterday.