TAMOXIFEN -the third thread ***

[MaryAnnSingleton]

here we are- will put a link on the old thread.

really can't remember tbh but sounds familiar - it was the old cancer support thread (the one that shouted cancer ) i sort of lurked and hid over there for months without telling anyone else! but those girls were fab! Pass on my very best wishes to her, getting great news like that must be a breath of fresh air! and of the bubbly!

Yay!!!!!! Good for Lalaa!!!! I am so pleased for her and her family (I am right in thinking she is quite a young whippersnapper, aren't I?)

Please send her my best (although she will obv go "who??")

Thanks for concerns over my neck. A massage could be a nice idea, certainly might go for that. I am also hoping yoga will help tonight, it does seem to a bit, each week.

What a great GP - and I feel I need to say so because I slag off our practice royally usually

I will pass on your good wishes - and yes,she is a whippersnapper -a mere 38 I think (am rubbish at ages)...she was definitely on that thread.

A big thank you to everyone for the kind words. My Bach's seems to be kicking in now because I'm feeling remarkably calm and reasoned I've been recommending it to all and sundry today.

I'm getting my head around it all a bit, I've found out another lady treated at the same hospital last August for IBC had the chemo first, so it's not like they've never heard of it or anything, just quite possibly they're darned good at this stuff! Now my head is in the right place, I think I can cope with the waiting for now.

MaryAnn, that's fantastic news about your SIL, brilliant!

Cakes, hope your neck is feeling better soon, massage and yoga sounds like a great idea. I've also fancied the idea of yoga, but I've only ever attended one class and managed to fall asleep during the wind down time, t'was hilarious so I'm told

good for you Wubbly - you're doing really well
and thanks for the kind words about SIL !

Well done Wubbly, you are taking it all very well, it seems to me, and you are absolutely right to take an active interest in what is best for you.

I also went to yoga once with someone who fell asleep (she snored). We don't have that at ours, although there is a lot of farting, which puts me off rather A friend who is a yoga teacher says this in entirely normal and a sign that people are doing it right. So all I can say is, I must be doing it wrong, because i have NEVER farted in a yoga session (honest )

MAS I remember Lalaa's posts from that old thread, she did sound a star. I feel absurdly pleased for her, considering I don't know her.

Good news about your SIL MAS - hope she is saving you some bubbly.

Hope your neck is a bit better Cakes - and thanks for the squirrel story, it made me chuckle. I'm not sure what I would do if one came in the house (although the thick one is getting closer and closer).

Glad you are feling a bit better Wubbly - it's a bit of a roller coaster, isn't it?
Re yoga, haven't tried that but it put me in mind of one of the local cancer charity relaxation clasees. last time I went I fell asleep and then woke with a huge snort . Can't face going back again.

Hi, fantastic to hear about your SIl, MAS!

Will keep this brief as pc makes me a bit nauseous today, but wanted to let you know I'm doing OK, especially as this might reassure Pennies for Friday. NO buckets required ths far.

As others have said somewhere, the closest description (ofr me anyway) is that I have a hangover, plus slight nausea which I am keepingat bay with the pills plus crackers (crackesr were my favourite when preganat too)

I stayed in bed this mornign, then pottered, made a Go-cake (v nice) and watche a DVD (The History Boys) this afternoon. Then by 6 was feeling relatively perky and had a bath. I know I could still go downhill but so far, nuch better than I feared.

'Fraid I can't reposnd to everyone but hope Wubbly gets helpful disucssion, and that Cakes's neck improves.

Go cake SR ? what's that ?
the yoga farting is a bit eeww,I don't think I'd like that !
thanks for everyones good wishes for my SIL - I think it's a lovely,encouraging story
Hope everyone has a good day xxx

Glad you're not feeling too bad SR, and that it stays that way.

Had a totally shocking day yesterday. I went to get my port fitted, which I had been told would take about an hour with a local anaesthetic.

So I drove to the station, got on the train and got the tube to the hospital. Sat in my room, nurse comes in and does a pre op chat, which seems a bit in detail for my liking but she's vague when I ask questions. Then the Dr comes in and says - you're having a general followed by 4 - 6 hours bed rest. No driving for at least 2 days. You'll be in theatre in 10 mins. Then he left.

So, that left me with a number of problems. Getting home, childcare that evening, driving the next day etc. DH wasn't answering his phone, lovely nanny wasn't answering hers because she was taking DD swimming. So I lost the plot and totally broke down. I ended up going into theatre having texted people in the hope they could help me out, and that DH could collect me and get me home.

I got into theatre and luckily news of my ire and upset had reached the dr and he agreed to do it under heavy sedation. So in the event it wasn't too bad but I still didn't wake up properly until a good 3 hours after the event (DH was there bless him) and I went home pretty much immediately, still covered in blood and iodine because for some reason they didn't clean me up. They also didn't give me any post op pain killers so it really, really hurt and when I got home and walked through the door I just broke down completely and had that horrible uncontrollable crying when you can't talk that you only ever get once in a blue moon.

I'm cancelling everything today and getting a load of rest before chemo tomorrow.

Pennies

That sounds bloody awful. No wonder you broke down. I am so sorry.

As you say, rest today and hopefully you'll be fine tomorrow. Thinking of you.x

Sandripples, glad it is going OK. That's one down - and at least you now know what to expect. Well done!

love to all, and thanks for good wishes for my neck - whixh is reasonable but not fab. I am going to keep execising it gently and see what happens. Thankfully no farter at yoga last night. Much more fragrant! But as there were several missing yesterday i am not much further forward with identifying the perpetrator!

Pennies that is an awful experience for you - you poor love

Pennies - I'm so sorry about your awful experience, it sounds dreadful. I do hope you'll feel better as today goes on, so that you are feeling Ok to start your chemo. I feel upset for you. . Good luck for tomorrow.

I get mixed up about what I read on here and on BCC at times - was it on here someone told the story about chemo- farting in the garden and a neighbour thought it was the drains?! Glad to say I haven't had this S-E yet!

I feel better today than yesterday - just tired. So thats not bad at all really - just need to go and lie on the osfa again now. Sorry, sofa.

Hi all, sorry to hear about your horrible experience Pennies. -Last thing you need when you are feeling vulnerable, I hope you're able to relax today and get back to feeling on an even keel. Very good luck for your chemo tomorrow.

Pleased you are coping well SR, - the fatigue is a pain, but you just have to rest when you need to, and try to make the most of the periods when you feel a bit perkier.

Hope your neck is improving Cakes, I haven't experienced any yoga farters -yet! - mind you it is in a big air conditioned dance studio - so maybe they waft unnoticed

Lovely to hear about your SIL MAS - esp. as her DX sounds quite similar to my own. Very encouraging - good luck and best wishes to her.

Haggis - I'm very envious of your Red Squirrels, they are beautiful little animals. They've reintroduced them into one of the protected forests near to us. And apparently they are doing well.

My Dad is not yet home - we will see whether he gets out before the weekend. I think mum is optimistic, she has bought thank you presents for the nurses and care staff (for the convalescent hospital - not the one that he got scabies from!!!)

[jealous] of the big air conditioned studio, ours is just a community hall. Hence the pong, probably.

Also pretty green about the red squirrels. Would love some of those. Can't compete with that but we had 8 buzzards swirling above our house this morning when I got back from my meeting. Nice, but not in the same league, really.

Fingers crossed for KK's dad's emergence from the house of pestilence...

hope KK's dad does get home this weekend,fingers crossed.
Good luck tomorrow Pennies -will be thinking of you

Hi All. Hope everyone is OK. Not been on for a while and haven't really got the energy to read all the way through since my last visit and make intelligent comments, but I will try to catch up properly soon, promise.

In the meantime, quick update. Got my results today. Cancer in the right breast and three lymph nodes. No surprise there, although they took 18 nodes, which seems like rather a lot. Pre-cancerous cells in the left breast which was not expected. But I guess at least it means that the bilateral mastectomy was the right decision.

Chemo to start in not too distant future.

Feeling a bit flat. No pun intended. Not sure why.

Hello fellow bc MNers.
Just popping on (don't want to cramp mas's style!) to say thanks for the general good vibes following my discharge from oncology yesterday. I remember when I was first diagnosed, I think that one of the first things I did was broadcast it on MN! It was a truly brilliant feeling to shake the oncologist's hand with a broad smile and walk out of oncology forever, and we had a lovely day yesterday. I have a hangover and am knackered today, but definitely worth it.

Lots of positive thoughts to everyone in the middle of it.

Oh Lalaa, I remember you giving someone some wonderful support on a thread ages ago when you must have been in the thick of it yourself. I'm so very happy to read the post you wrote today and to see what MAS had to say about you as well.

It's the night before I start chemo. Had a very low day due to coming down from yesterday's events and also because of the constant ache from where they put it in. I feel rather robbed of my final day of normality before chemo starts.

I am so utterly daunted by the chemo regime they have for me. this fortnightly business does my head in. They are taking this approach because of my age (the younger you are the more hormones you have in you and therefore this counts against you apparently) and the histology of my cancer which is apparently an aggressive one. Despite knowing this to have it confirmed to me by the regime terrifies me.

Hi Lalaa. well done, I am so pleased for you and hope to join you there in the world of total normality in 4 years time. Thank you for the support your advice gave to me last year (I was lurking on your thread, but even so, it helped).

Pennies, you may not see this before your treatment. But I wanted to say I am sorry you are feeling as you are, but it is totally understandable.

Best of luck for today and the next few days. You may well be surprised that you don't feel as bad as you expect. But even if you do feel pretty rough remember, it is for a few days and will pass. And each cycle is one down. Stay strong ifyou can, this doesn't mean you can't have a weep if you fancy it. Lots of positive vibes coming from me to you.

Hi again Burning Bright. At least you know those other nodes were clear. I had about 18 taken as well, I think they have to come out in bundles, it is either three, or about 18 there is no middle way. I should think you are feeling flat, and exhausted and fed up. Take each day as it comes for a bit.

Love to all

xx

hello lalaa, how nice of you to post - it is lovely to hear from someone who has come out the other side, getting to where you are is the motivation to keep me going when it all starts getting on top of me. Best wishes to you and your family. (You also have a lovely SIL )

If you're still at home Pennies, good luck for today, I'm sorry you're feeling so anxious, but as Cakes says it is understandable. I found the intense regime tough as well, and it does bring it all home a bit. Its a terrible cliche, but try to deal with it as it comes. Don't waste your energy anticipating things which may not happen. And take any help that is offered. (and possibly ban the inlaws )

BB, hope you are feeling a little better today, emotional ups and downs are hard to deal with sometimes I know, there's a bit of 'limbo' time between surgery and chemo, but maybe once your treatment starts again, you will feel as if you are making progress. I imagine you are also feeling physically shattered, so take it as easy as you can.

Hope everyone has a good weekend. I've spent the last couple of evenings on skype with DD - she's having a lot of problems with her landlord.

Hope everyone has a good weekend - DH and I are going to a quiz and chips night tomorrow. Mmmm chips.

Forgot to say - hope you aren't feeling too bad today Sandripples

sending lots of good thoughts to Pennies,BB and sandripples. Sorry to hear about dd's landlord problems KK and thanks for nice words

I couldn't get on MN earlier but lots to read here. Pennies I do hope you're Ok after your chemo - sending lots of huggy vibes.

I didn't know you at your DX time, Lalaa but am so pleased for you - its fantiastic to read such good news. Congratulations!

BB - I will be having the rest of my nodes taken out on 13 April , mid Chemo. Not looking forward to this combination but knowing that 4/7 of the sample were cancerous I need to get them out I guess.

I went to a school fund raising quiz yesterday evening and enjoyed it. Think the 2 hour sleep I had in the afternoon was essential to enable me to get there! My DS is going on an Afrtwin project trip in August and we need to fund raise as much as poss so I was gald to get there - for most of the evening anyway, and my DH's team won!

Today I have done absolutely nothing - no energy. So slept, rested, read, had a bit of soup and fruit salad from yesterday. Finally made a bit of Quorn mince which is cooking now.

MAS - Go Cake is on the BCC site under top tips for surviving chemo - recipe includes All Bran and loads of dried fruit inc prunes, apricots etc so you get the pitcture! Its good actually.

I hope you enjoy your quiz night too, KK!

Love to all
xx

Just thought you'd like to know - I burnt the mince!! Have moved it to a different pan, added more gravy flavour, swithced it off and now am going to lie down