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Original poster

Help me, i have just had one of those phone calls you dread.

494 replies

largeginandtonic · 01/04/2008 13:28

DD has seen a consultant for tests recently, she is behind at school and seems emotionally immature. We had lots of academic tests done, took about 2 hours. She seemed to do ok.

We were then sent to the hospital for blood tests. I have no idea what for. The hospital just phoned me and said can the consultant come to the house one evening this week and speak to me about the results. They said they need my husband to be home too.

I am terrified. Has anyone else had a consultant come to the house? Am shaking and cant get hold of my husband or my mother.

She is coming tonight.

OP posts:
pickie · 01/04/2008 22:27

I am so sorry to hear this LG&T, dont really know what to write other then take care and take it one step (forward) at the time

LintFree · 01/04/2008 22:29

Sending you and your family lots of love and hugs. I wish there was something positive I could do for you. The hearts and minds of so many people across the country are focussed on you right now and I truly hope that in some small way we can support you, DP and DD on your journey {{{{{hugs}}}}}

BoysAreLikeDogs · 01/04/2008 22:31

Am so sorry to hear your news

Hope you really have had a large g & t and are managing to rest after such a stressful day

NatalieJane · 01/04/2008 22:33

LG&T, don't really know what to say, that hasn't been said already.

You know I am here whenever you want to talk, wish there was something I could do.

Thinking of you sweetie xxx

Elibean · 01/04/2008 22:36

I can only imagine the shock you must be in, and I'm so sorry for that

My friend's ds has the male version of TS, he's only 4.5 but is a lovely (and gorgeous) lad. I also know a woman with TS who has a dd conceived with the help of an egg donor - and a 'normal' (whatever that means for any of us!) life in terms of relationship, work etc.

I don't suppose all our stories are much help atm, though - just hug your lovely dd and remember what all the wise MNers have said: she's still the same little girl she was yesterday, and the day before...

Sending hugs and hoping you get lots of support in finding out what this means for your dd, xxx

Ellbell · 01/04/2008 22:38

LG&T, I'm so sorry that you've had such a stressful wait today and such sad news. It will obviously take a while for all this to sink in, but it's good news that your dd's condition can be managed and isn't life-threatening.

I don't know what else to say, but I am thinking of you, your dd and your whole family. Take care and try to stay positive.

Lots of love xxxx

callmeovercautious · 01/04/2008 22:43

LargeginandTonic - I am so sorry you are going through this x

If it is any comfort to you I have a good friend at work who has the same condition. She is happily Married and very successful in her career. They are waiting to decide on options for having Children - however she is happy with her life and what more can we ask for than that?

I may point her this way, I will have to tread carefully though as I would not want her to be upset either iyswim?

gerbrajess · 01/04/2008 22:51

LG&T, I don't know you but have just seen this thread and wanted to send positive vibes and hugs across the ether to you and family...

Juicylucytoo · 01/04/2008 22:55

So sorry you're having to go through this. As some others have said though, I think once the shock is over that this will be a syndrome that you and your DD can deal with.

Lupins71 · 01/04/2008 23:00

LGT no matter what she is still a perfect beatiful little poppet who deals with her brothers and will deal with this with the love and support that you an N have for all your children and each other, huge hugs to you all,feel free to call me if you need an ear or your welcome to do an escape to the country if you need to, will be thinking of you

IdrisTheDragon · 01/04/2008 23:04

Thinking of you LG&T

Carmenere · 01/04/2008 23:07

Just want to add my support LG&T xx

MarsLady · 01/04/2008 23:10

Honey... nothing else to add to what the others have said.

Here (as much as an internet persona can be) for you!

orangehead · 01/04/2008 23:38

lg+t Im so sorry it was bad news. Thinking of you

tortoiseSHELL · 01/04/2008 23:51

I'm really sorry you didn't get better news - thinking of you all this evening. x

triplets · 02/04/2008 00:49

Dearest LG&T,
Everyone has said it all before me, I too am in shock atm about out situation as you know. Shabster as ever said such good strong words, though if you feel like me, its very hard to even take in well meaning words at this time. I hope like Shabster I dont sound flippant, I dont know about Turners only what has been posted on here tonight, but I am soooooooooo relieved it is nothing worse, life is very cruel at times, but this does not change your beautiful child, just makes her more special xxxxxx

Califrau · 02/04/2008 01:02

This reply has been deleted

Message withdrawn at poster's request.

sallystrawberry · 02/04/2008 01:11

This reply has been deleted

Message withdrawn at poster's request.

Pillow · 02/04/2008 02:42

I hope you don't take offence at me posting when I don't know you, but I just wanted to say that I can't imagine how awful today was for you (and am angry on your behalf as to how it was all handled and that you had to spend the day terrified). I hope the love and support you have on here is more than doubled in rl and that tomorrow is a brighter day.

UnderRated · 02/04/2008 03:00

Oh, LG&T, what a shock.

I hope you have lots of support in RL.

chloeb2002 · 02/04/2008 03:58

hello, i am not an expert by any lengths on turners syndrome but did go to uni with a girl who had truners. To be hnest other than the fact that she is short i would have no idea. It came up in a lecture one day (nursing) however what i do remeber is taht turners syndrome children normally go on to have very normal lives? I think there may be issues with hearing??? and fertility?? but otherwise they have no other problems? I may be way off track thast just what i remeber hearing. I can understand totally what a shock it is to discover that your perfect child is viewed not to be but allow yourself time to understand all the plus points and carry on life as usual as best you can. sorry i couldn't offer any better pearls of wisdom!

sparklyfairypie · 02/04/2008 04:47

hugs x

Buda · 02/04/2008 06:14

Hi LG&T - hope you managed to get some sleep.

As you said in your post it is crap. But as crap goes it could be so much worse.

And - thank God for MN at times like these - so many positive stories about people with Turners.

The main thing is it doesn't seem to be life limiting. And as others have so wisely said - she is still the same DD - although is prob getting more hugs than normal!

I suspect yesterday was the worst - knowing it was something but not knowing how bad. OK so it is not nothing - but it is do-able.

Hugs to you all - esp your gorgeous DD. She sounds fab from what others have said and she looks gorgeous from your profile. You have a very lovely family.

twentypence · 02/04/2008 06:41

I worked with a lady with Turners syndrome, she was very short, too short for it to be just one of those things which is I guess why we knew.

She was/is fabulous at her job and a thoroughly nice person whom everyone wanted on projects. She had a nice house and earned a good salary.

I have no idea what her personal challenges were or how she felt obviously. But it was no big deal to everyone else. Someone told me she had Turners and I remembered it because one of my mum's friends had just had a baby with Turners so I think it stuck in my mind.

NatalieJane · 02/04/2008 07:10

LG&T have you slept at all?