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Help me, i have just had one of those phone calls you dread.

494 replies

largeginandtonic · 01/04/2008 13:28

DD has seen a consultant for tests recently, she is behind at school and seems emotionally immature. We had lots of academic tests done, took about 2 hours. She seemed to do ok.

We were then sent to the hospital for blood tests. I have no idea what for. The hospital just phoned me and said can the consultant come to the house one evening this week and speak to me about the results. They said they need my husband to be home too.

I am terrified. Has anyone else had a consultant come to the house? Am shaking and cant get hold of my husband or my mother.

She is coming tonight.

OP posts:
francagoestohollywood · 03/04/2008 11:57

Totally agree with blu about being matter of fact with children. And they feel respected for that.

She is gorgeous.

TheDevilWearsPenneys · 03/04/2008 13:00

www.youtube.com/watch?v=9j29ofY2CHo&feature=related

This is really unsettling.

TheDevilWearsPenneys · 03/04/2008 13:02

Oh God, so sorry.
That was totally the wrong thread.

uptomyeyes · 03/04/2008 14:04

Hi LG&T,

Sorry to see you aren't feeling great today - I know that feeling of dragging it all around in the pit of your stomach and feeling it rise up inside your chest when you suddenly catch sight of a photo, or your dc in the garden.

I just wanted to say "YOU DID A BRILLIANT THING WITH YOUR DD" when you said perhaps you could see a Dr about her size. you opened the door in a really practical way. She probably doesn't care about Turners Syndrome but she does care about being small and thats where you start. I've never said to my DS1 - well son its like this you have Silver Russell Syndrome, but when he raises the things that do matter to him - usually height, I've done the same thing as you. Also when he has complained about having to take GH injections, I've said "well everyone needs help with something and this is the thing you need help with, we can stop if you want - but here are the consequences"

Its not a barrell of laughs but its not the end of the world.

Sending lots of love and thoughts from the Upto household.

XXXXXXXXXXXXX

Psychomum5 · 03/04/2008 16:38

popping by for this evenings hugs sending, which I see is needed tonight!!

I am sorry that you are down, but it is to be expected in a way as this is such a huge life changing event for you. you need a little extra for you to help you cope while you all adjust. don;t for one minute feel guilty for needing AD's.......like someone else here as said, it is just like a plaster cast while your emotions heal again.....which they will, for that I am confident.

you will soon adjust so well that you will, like you said yesterday, become a turner's bore (or more likely a turner's pro).

the way you are already being with your DD is wonderful, and is entirely the right approach.......letting her 'lead the way' so to speak. It is also testement to you as a mum that she feels able to come to you with her fears, knowing that you will listen and give her a pro-active way to approach things....be it go to her doctor or speak to someone else who knows exactly what she and you are going thro.

summer111 · 03/04/2008 18:45

LG&T,
I'm so sorry that you've had to go through such devastating news...for the moment, you just have to give yourself time to get your head around all that it entails but I do know that with time, you'll feel more accepting of what is ahead of you and feel alot more positive about your dd's future.

In answer to your question reagarding egg donation, I donated eggs to my sister a few years back and I have to say, the process was very straightforward - the injections were a doddle! My sister needed time to come to terms with not being able to have her own bilogical child, but her specialist was able to do a rough genetic breakdown for her - I can't remember the stats exactly but by using my eggs, the genetic make up was in fact very close to using her own. So if your dd did one day use your eggs, the genetic line would still be there.

My sister is currently pregnant again through egg donation, so your dream of helping dd through pregnancy and childbirth should remain very much a reality for the future!

Leoloopydoo · 03/04/2008 21:10

LG&T, big hugs and lots of love for you and your beautiful dd. L xxx

largeginandtonic · 04/04/2008 12:35

Thank you for yet more lovely kind words

You are all really helping me through this.

Unless anti d's work overnight and i am very doubltfu they do i will not be taking them today. I feel much better. Headache gone and have stopped being sick, i managed to sleep last night too. I think it may have been shock and now i have clamed down i am coping with it all.

She has a half day today so we are off for some girly shoe shopping later

My sister and her soon to be step mom are all going to donate eggs too. She could have a pick and mix if she chooses in the future.

I will join the special needs board soon i think and leave you all in peace You have all been so wonderful and made me so grateful for MN. I wish every parent knew about it, it should be handed out pamphlet style with Emma's Diary useless book

OP posts:
frumpygrumpy · 04/04/2008 12:47

Glad to hear you have stopped being sick. I think definitely shock. You can do this, you are a lovely, adorable mum and thats all she needs......to go through it with you. Good for you darling xxxxxxx.

kayzisbroody · 04/04/2008 12:48

I'm glad you are feeling better.

Shoe shopping is just the thing needed. Shoes always cheer girls up!!

She has a great mum and a fantastic family to rally round her and you!

Love Ya xxx

largeginandtonic · 04/04/2008 12:52

Yayyyyyyyyy!!!!!!!! KAZ that is such fantastic news

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kayzisexpecting · 04/04/2008 12:56

Thanks, still cant believe it really.

tortoiseSHELL · 04/04/2008 12:56

largeginandtonic - I'm glad you're feeling a bit calmer.

Re egg donation - it would be worth doing that asap I think (or at least starting the process) as I know some areas have rules about age for 'known donor' egg donation - a friend of mine found this, but your profile says your 30 so you should be fine. But I would at least speak to someone to find out the situation in your health authority. What a lovely gift to be able to give your daughter later.

summer111 · 04/04/2008 15:54

re the age for egg donation, if you are a known donor ie going to donate only directly to a specific family member or friend, then I believe that clinics will be more flexible - I was mid thirties myself.

cameroonmama · 04/04/2008 17:24

Good to hear you sounding more chirpy today LG&T. Girlie shoe shopping sounds like the perfect therapy. . What fabulous strong family support you have, even the fiancee , to offer to donate eggs like that.

Big kisses to P.

twentypence · 04/04/2008 19:16

Re needles and things - ds (5) has asked to have his allergy test this year, skin prick and a couple of blood tests. I wasn't going to put him through it because I know what they will say, but he asked and so I'll take him.

He is very polite and always thanks the blood test people.

tortoiseSHELL · 04/04/2008 20:10

I think what my friend found was that for a known donor the donor had to be under 38 or something like that, don't know what the unknown donor age is, but it's definitely worth checking.

YouCantTeuchThis · 06/04/2008 20:40

LG&T, I just found this thread - what a shitty situation for you and your family to go through

I hope you are finding the information and support you need.

It is so normal to grieve for the woman-child you imagined until now, but that doesn't mean your new dreams and aspirations for her can't reach for the stars also!

Come back and let us know how you are getting on - there is a shiny new thread! - and we'll keep you company whilst DH is away.

Teuch x (and I don't leave kisses for just anyone you know...)

largeginandtonic · 06/04/2008 22:04

Thanks Teuch, kisses much appreciated. Will come and find you crazy bunch.

Am feeling much better now and have been brave enough to read around the subject.

Thank you so much everyone for all your support

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