Help me, i have just had one of those phone calls you dread.

[largeginandtonic]

DD has seen a consultant for tests recently, she is behind at school and seems emotionally immature. We had lots of academic tests done, took about 2 hours. She seemed to do ok.

We were then sent to the hospital for blood tests. I have no idea what for. The hospital just phoned me and said can the consultant come to the house one evening this week and speak to me about the results. They said they need my husband to be home too.

I am terrified. Has anyone else had a consultant come to the house? Am shaking and cant get hold of my husband or my mother.

She is coming tonight.

Oh darling!!!

I'm so so sorry, I dont know what to say sweetie.

If you want to you can e-mail me.

Its [email protected].

I'll be thinking about you.

You know I'm crap advice so I'll just do this...

((((((((((((((HUGS))))))))))))))))

So sorry Chick.x.x.

So sorry to read this, but hope some of the fab advice on here can help you in the coming days/weeks. just looked at your profile btw, and your family is just beautiful!

What a huge shock for you and your family. I hope that you have some time and space available to you to let it all sink in. Oddly enough, I was thinking Turner's could be a possibility from your original posting.

I may not be much comfort, but I have a patient who has Turner's. She is in her 50s, has a normal life, a job, a husband and adoptive children and is possibly one of the nicest people that you could ever wish to meet.

I hope that you and your family will get lots of support as and when you need it.

so sorry, but as everyone else has said she is still the same dd as yesterday but now with a condition. By the way, you are truly and beautiful family and should be proud.

Sorry to hear your news.

LG&T, been wanting to text you but not interrupt.......

I'm sorry to hear this. I don't know anything about it. You must feel so delicate right now. Take your time, you need time to adjust your head around this. I hope you get some sleep. Always here.....xxx.

Truly terrible news

But - I have a friend whose dd has TS. She was unusual as she was diagnosed pre-birth (they were checking for other things due to previous complications).

The consultant at the time advised them not to tell anybody (even family)the diagnosis and to treat their dd totally normally. At the time friend (and I) thought this was strange old-fashioned advice. Was he suggesting that it be kept some kind of shameful secret?

Now I can kind of see why he advised that. To meet you would not realise that anything is different about their dd at all. She is not even any smaller than her friends. She is beautiful, funny, happy and girly and the pain my friend and her dh went through when they learnt about the TS seems a long long time ago in another world.

{{{{{{{{{{{{{{}}}}}}}}}}}}}}}}}

There isn't anything I can say to make you feel better tonight....but I very much know the feeling of being told that one of your children has a "problem". DS1 has been on and off growth hormone treatment for years due to a congenital growth condition, then diagnosed with a brain tumour...which turned out not to be a brain tumour...but rather a condition of the central nervous system.... it goes on and on... and I've howled in the middle of the night at the unfairness of it all, but he still gets up every morning, he thinks his life is fab, he is the most positive, optimistic and cheerful of all 3 of my children. And despite doing all my bargaining with the powers that be about how great a mum/person I would be if DS1 could just be fit and well and as able as his friends - I still end up shouting at him for not flushing the loo, leaving his pants on the floor etc. Life will go on as usual for your dd tomorrow...and for the rest of you too. It honestly will.

Just read this and wanted to say I am so sorry, thinking of you tonight.

I'm so sorry to hear this. I hope you are OK. It must be a terrible shock.

Take care

I'm so sorry you have had this shock. I hope now you can get the support you and your lovely dd need.

LG&T - I'm sorry it wasn't better news. I just want to echo what TC said earlier though - she's still the same wonderful dd you had this morning. You just have a name for what's going on inside.

Thinking of you.

Sorry to hear you have had such bad news.
Thomcat said something very sensible below, along the lines of she is still the same girl, you just have a name for something that is happening insider her.
Believe that. She is your dd, she is the same person she always has been, and she has every chance at a happy and fulfilling life.
Lots of love.

I'm so sorry you've had such a shocking day, LG&T. Thinking of you and your dd.

LG&T - I'm sorry to hear your news - I imagine you dont really know what to think at the moment. But as many have already said, your DD is still the same little girl. I am a bit like Tigs and rubbish with words, but I want you to know that if you ever want to talk or email or anything, please just drop me a CAT. And remember that we are there for you at all times on the d'y'ever thread. I am sending you lots and lots of love and hugs, and big hugs for the rest of your family too. xxxxx

Thinking of you. Can't imagine how you must feel. Glad your DD has such a lovely mum to look after her & that you have us lot to look after you when you need it (not discounting your RL peole but you can be totally honest with us - let off steam!) I'll always remember your name now & so will so many others - just tell us when you need support x

I'm so sorry it wasn't better news LG&T. Thinking of you and your family.
xxxxx

I'm sorry you've had such a shock LG&T. Lots of good advice on here already so nothing for me to add.

what a shocking day you had LG&T. here are support vibes from me as well

i'm so sorry lgt. i kept thinking about your thread all day, and am really feeling for you and your dd,. i just want to add my best wishes to everyone elses here on mn. some people have posted really eloquent replies, and some good advice. all i can add are more hugs.
so {{{{{hugs}}}}}}
thinking of you and your family.

LG&T - you poor thing, you must be exhausted with a day of anxiety and shock and emotion.
Thinking of you.

LG&T, I am so sorry you have had such shocking news. Thinking of you and your precious daughter x