Cancer Support Thread 94 - Sweetness and light - the two noblest of things.

[LemonDrizzle10]

@tilllly and Daisy.

To top off my already fucking wanky day, the (approx) 20 millionth outfit I've tried for our Eras night...does not fucking sit right on wonky fucking boobs & my lashes are vacating my face again ffs 🙄🙄🙄 I want to cry 😥

I hope you’ve opened the wine @lucysmam.
Have you got anything dark with a pattern on? I find that disguises bits and pieces.

@Daisy03 good news about the scan. 🎉

@Daisy03
That's excellent news and it must be a huge relief for you.
You should ignore anything that's USA based as they do treat it differently over there presumably because it's all paid for with insurance. I found that what goes over there doesn't often apply here in Blighty.
I am HER2+ but not triple positive but was given Herceptin. I was given Herceptin along side chemo and started both at the same time and when chemo ended I carried on with Herceptin on it's own. I was told that Herceptin is always started along side chemo. Before I started I had a heart scan and should have had a CT scan but they forgot to do that but if you've had one recently then another CT scan isn't necessary. I had a second heart scan after about 3 months of treatment.

@lucysmam We should start
the " wonky boob brigade!" My reconstructed " mound" is about as far north as The Shetlands and my natural boob, is heading very far into the south east! My next door neighbour has the same issue.

You will find something and look lovely, I am sure 🌺🍷

Woo @Daisy03 that’s good news! We like to celebrate on this thread when we can. 🥳
I had FEC-T chemo with Herceptin and Perjeta. I think you still have to have IV chemo with HP in the UK as the HP makes the cells more treatable. I got a complete pathological response. Then I carried on for a full year of Herceptin injections after finishing radiotherapy. It wasn’t too bad.

Ok, I feel very sorry for me & have cropped my grumpy face. This is my latest dress...complete with wonky boobs 🙄 . Maybe not stitch to the pin like I had planned & a plain cami under it? I don't fucking know 🤷‍♀️

Pants & bra it is!

I am so frustrated right now. I don't want to go work my ass off tomorrow, come home knackered & have to take in my shop, then sort tea. & think about house work because I currently reside in a fairly tidy but fucking desperate for a clean, house. I want to sit & craft, all fucking day. After a bit of housework, before my shop turns up & I have to put effort into putting it away.

Christ I am a moany arse tonight.

I think it's time for bed!

Might have forgotten my pic (as always 🙄)

@lucysmam 🍷😀 lovely photo of outfit. Now, get your moany self to bed! 🤣

@Enigma52
(hand straight up in the air) me!me!me....I want to join the wonky tits club too. I have spent all winter wearing loose sweatshirts & jumpers to work to stop people looking my undulating chest and now I'm wearing loose t-shirts. Last year I donated most of my wardrobe to my own shop and spent weeks looking at clothes that ladies were buying thinking "ooh that's nice...damn". Bizarrely my other 'normal' boob also misbehaves by mysteriously inflating and deflating randomly which makes half deflated boob look worse. I have just bought a minimiser bra from M&S (in order to get the cheap summer beauty bag) which I'm hoping will smooth and even things out a bit.

@lucysmam
Gosh you've had a bit of a day - have a big hug.
I think that the hair thing is the one thing that still surprises me. My eyelashes and nasal hair still totally fall out randomly and my body hair has never regrown apart from weird thin straggly pubic hair.
I hope that union man gives HT/HR a good kicking tomorrow but this stress can't be helping you and you should definitely tell him that you went home very upset.

@lucysmam
That is a lovely dress lucysmam. Have a glass of wine, watch some tv and go to bed early. You've had a shite day and tomorrow is a new day my friend x

I’m getting my picc line put in tomorrow, I keep welling up thinking about going through it all again.

my left leg is really swollen. I don’t know if it’s because of the radiotherapy and I haven’t been doing my exercises as I should or, if it’s something more sinister? It does go down though but it’s deffo tighter.

@EachandEveryone

How did the picc line go today?

It was very quick thanks. It’s in my hospital so I was very emotional. I popped into work to get something out of my locker and left. When I was waiting my boss consultant came down and he was so upset for me said if I want to carry on doing abit of work or if he can help to get intouch with him. I’m very lucky and he’s so not like my nursing boss which tells you about how women treat other women.

my leg is swollen but was fine when I woke up I don’t know what’s causing it really.

I met someone for tea but my mind just wasn’t in the conversation, I know she meant well but these days I only want to talk to my close friends or family.

im going onto London in the morning for an appointment and the lipidaemia clinic. I might treat myself for something to help with the chemo but I have no idea what!

@EachandEveryone

Well when I had gaps between my kidney function test blood draws I bought myself a vintage ring. I had less than two hours in the city my hospitals in. Normally I always take time before a big purchase but thought fuck it!

I have a stocking up to my thigh that’s going to be fun getting on and off.

its a lovely day in central London. I’m just thinking about whether to go somewhere fancy and get some nibbles for chemo and the days after. It’s a pain being on my own I hope I can sleep this time. I’m dreading the steroids.

@EachandEveryone

What side effects did you get from the steroids before?

My face is puffy and I can't sleep from mine. Only get about four hours sleep a night. They also make me a bit manic.

Same as me last time, it’s only a small dose as well, eating is terrible and I hate healthy snacks but I can’t afford to put any weight on

@EachandEveryone

Yeah I've been surprised by the weight gain over the course of my treatment. I thought I'd lose weight!

Just in recovery after my lumpectomy.
I've now joined the wonky boob club!

Hi everyone, I’m sorry to hear about all those people with HR drama at work. As if everything isn’t stressful enough without people being dicks.
Ive only posted in this group a few times, but I’m finding reading it all really helpful.
I had my left side mastectomy and re-construction last week so just recovering. They also took 4 lymph nodes at the same time to check for any spread.
So now we wait for more results. Best case scenario is radiotherapy and hormone drugs. But I’m a little bit scared.

Hope all went well @Zoopet
How are you feeling?
Yes, you've earned your place in the Mumsnet " wonky boob club!"

Sore, thirsty and desperate to go home! X

Awww.. how long will you have to stay in hospital for ? X

@Nomorebear I hope you are recovering well from your surgery and those nodes are clear. It's always a waiting game where cancer is concerned but you shouldn't have to wait too long for results. Rest up 🌷

@Zoopet @Nomorebear I hope both your recoveries are as straightforward as they possibly can be💐

@EachandEveryone did you stock up on snacks?

I'm just printing my proof that I'm actually going where I said I am (did you feel the ground move with that massive fucking eyeroll!?). It has train seats and ref, address of where we're staying (inc postcode and ref no). Also has my email and the person who arranged it alls email. Would I be wrong to marker pen through stuff like that? I can see them contacting Eve's Trust "to confirm" if I leave it all there & they don't need booking refs as far as I can work out.