MS Symptoms

[Jodie782]

Can anyone who has any good knowledge about MS -think I should go ahead and book an mri scan for my symptoms?.

For years I've had what I felt like restricted breathing, tight band around my chest and tummy (never knew that was an ms symptom). It's like air hunger but worse when sat or laying down.

Waking up with severe pins/needles in hands/feet (all fingers) sometimes in just my big toe. Or when I'm leaning on them. But not really in the day. Pains in right leg on ankle and shin but only happened twice for a second.

Arms and Legs (mainly right) are heavy, weak feel like a nerve pain. Feels hard to grip and I'm struggling to type. A couple of times my arm has gone numb and it's woken me up. Right arm is achy and if I lean on elbow it's like a nerve pain through my arm?

Vision- this has stopped since i started taking magnesium and vd. But one time i had dark grey floaters in both eyes. Dizzy spells and sometimes at night one eye vision feels darker. Pain in one eye sometimes. Sometimes light headed but no where near as bad as it was.

I feel a little bit out of balance when walking. But has gotten better since taking vitamins.

My doctor is helping me with doing extra tests for peri menopause and because my b12 results came back very high she thinks I could have Pernicious anemia.

I have physio for the first time tomorrow so a bit nervous about mentioning these symptoms. I'm 43! I don't think my doctor will take these seriously.

Also when I do have a bout of health anxiety I get the actual symptoms

Hey Lolly sorry only just seen your post, I am now having b12 jabs and since then most has disappeared. I still get pins & needles sometimes but not as much . I do think It was It was mostly anxiety making It worse. I am so sorry you are going through this, have you been to your GP?.

@Jodie782 Thanks so much for replying. Yes I have a neurology appointment next week so hoping they're going to give me some answers/further testing. I'm hoping it's a vitamin deficiency. But the sensations are driving me mad! I also think I'm on the brink of perimenopause so no idea if that's a contributory factor!

I am so glad you are being seen to put your mind to rest, please can you update us when you do. I have noticed a huge difference since taking supplements, I take magnesium, Primrose, Vit D, Folic acid & pay private for b12 injections. I was terrified last year, having them symptoms Is awful. Yes could be peri too.

@Jodie782 Thank you. I am very similar to you in that I have a niggle it could be MS. Hopefully I'll get some answers in a couple of weeks 🤞🏻

I know how worrying It can be, I hope these couple of weeks flies by quickly for you. This was me last year, It ruined my Christmas last year.

Can I ask how you went on with your neurology appointment?

@CareerChange24hello. Yes so had scan on brain and spine with contrast back in January. All scans clear. Discharged by neurologist. Have since started HRT and turns out it was all hormones! Pretty much eradicated now. I’m 39 so had dismissed this as an option but seems to have disappeared as I’ve started balancing these again! I hope you’re ok?

The eye thing could be optic neuritis. My husband went to the optician and was immediately sent to the hospital and was put on a steroid drip. Contact someone ASAP. Best of luck x

Really glad you got the all clear and the hormones are helping.

I paid to see a neurologist six years ago who just did a brain mri and told me there was zero chance of me having ms. Never even heard of a contrasting mri.

I have recently lost vision in one eye and had such bad eye pain I haven’t left the house in two weeks. This is the third time I’ve experienced this kind of eye pain. But I suffer regularly with migraines.

I sometimes have zero sensation down below, regular numbness in my legs and weirdly on my head like a weird sensation. I’ve had times where my right leg will not move and I can’t tell you the internal panic that has caused and embarrassment.

Lots of other things but I’m worried but kinda annoyed as it’s only come up again as my auntie has progressive MS and I confided in her my struggles and she says I’ve basically been told rubbish by that particular neurologist.

May I ask was the mri they did in a&e a contrasting mri? Is a contrasting one the gold standard in seeing what’s there?

Normally they do a mri with and without contrast at the same time, then compare the results of each.

Sorry to be a pain - do they put dye in for a contrast or could I have had a contrasting mri and not know?

@CareerChange24. I had an mri with contrast. They scan you for a little bit, then add the contrast via your arm after a little bit. So I think that follows with what the previous poster is saying

Yeah, what lolly said.

They start the mri without the contrast then halfway through they take you out, inject the dye and put you back in and do the same images again.

@Lollyl88 @AptAptAptApt thank you both. Clearly the neurologist who I paid to see wasn’t very good as this didn’t happen

@CareerChange24when I saw a neurologist they said the technology had come on so much that they can spot things like MS before it’s developed. Did you have a follow up with the neuro following your scan? Can you ask for a second opinion? I presume this was done in a private hospital? If you’re still experiencing symptoms I would go back to them.

Have you been to an optician? They can do an OCT scan and would refer you to the eye hospital. You could try that route?

I only had the scan in 2019 so the technology should have been there. Yeah I had a follow up giving me the all clear based upon a brain mri. I have lost confidence in that hospital I think I will have to pay, again, to see someone else.

I need to go and see an optician but it’s just being well enough to book and go. I haven’t left the house in a month due to vision loss and vomiting with vertigo. I need to make a recovery as I see oasis in two weeks. Thanks for your help

An MRI was how I was diagnosed in 2018, through picking up on lesions on my brain. You can’t book one yourself, it goes through a neurologist.