MS Symptoms

[Jodie782]

Can anyone who has any good knowledge about MS -think I should go ahead and book an mri scan for my symptoms?.

For years I've had what I felt like restricted breathing, tight band around my chest and tummy (never knew that was an ms symptom). It's like air hunger but worse when sat or laying down.

Waking up with severe pins/needles in hands/feet (all fingers) sometimes in just my big toe. Or when I'm leaning on them. But not really in the day. Pains in right leg on ankle and shin but only happened twice for a second.

Arms and Legs (mainly right) are heavy, weak feel like a nerve pain. Feels hard to grip and I'm struggling to type. A couple of times my arm has gone numb and it's woken me up. Right arm is achy and if I lean on elbow it's like a nerve pain through my arm?

Vision- this has stopped since i started taking magnesium and vd. But one time i had dark grey floaters in both eyes. Dizzy spells and sometimes at night one eye vision feels darker. Pain in one eye sometimes. Sometimes light headed but no where near as bad as it was.

I feel a little bit out of balance when walking. But has gotten better since taking vitamins.

My doctor is helping me with doing extra tests for peri menopause and because my b12 results came back very high she thinks I could have Pernicious anemia.

I have physio for the first time tomorrow so a bit nervous about mentioning these symptoms. I'm 43! I don't think my doctor will take these seriously.

Also when I do have a bout of health anxiety I get the actual symptoms

I've got MS and agree it sounds more like anxiety.

I originally had only minor symptoms. I was diagnosed from an MRI scan I had as part of a research study at my local university.

Thank you if all my other tests come back negative il ask the doctor to see if I can have some checks done.

Gosh, that must have been a shock?. I guess everyone has different symptoms for this.

Thank you, you're right at the worst of my anxiety I thought I had all different cancers ,I was looking in the mirror and thought I had jaundice (I hadn't). All the things I was googling had the real physical pain. Never been an anxious person until I turned into my late 30's.

I take Kalms every day, really helps. I buy it from Schwabe online.

It's not intended to treat depression but it takes the edge of anxious feelings. I recommend it but check with your doctor since you're seeing her.

Your physio will ask about neuro symptoms, be Frank with them. They can start giving you exercises and then any difference a can be gauged. Pernicious Anemia would fit those symptoms I think.

Ask for a referral. My DD was diagnosed last year at 17, the month before her A levels. First years she had issues - some may be related, some maybe not. Hard to tell. There's no definitive test that's says 'MS', its elimination of everything else, but an MRI and spinal tap are the most indicative.
My DD actually had two MRIs before, one I paid for privately after she had a migraine so severe she missed a month of school. She had sharp pains in her shoulders and neck. She has always been clumsy- I used to tease her that she couldn't walk one end if the room to another without bumping into something! Those didn't show anything, but they weren't contrast MRIs.
But it was when taking her mocks she woke up with tingly right arm then it went numb. Then her leg was affected. The next day she was typing and just couldn't use her right arm. Call to 111 and they sent us to A&E. she had an mri the next day and there were clear lesions on her brain and spine. It still took awhile for an actual diagnosis.
Symptoms can be very different, but I do recognise some of yours: feeling unbalanced, tingling, numbness, pain.
Don't hesitate - there's something up. Whether it's MS or not you need to try and get a diagnosis then treatment.

My friend with ms gets the ms hug but he did have very rapid onset and ended up paralysed temporarily.

I can't say I know what's going on with you, but what I will say is that when I had these symptoms it was folic acid deficiency. They put me on a very high dose for 3 months and eventually the pins and needles, right sided weakness etc did go away. However, they did also send me for an mri to be sure it wasn't MS.

Thank you I've had the breathing issue for around 7 years now, so hopefully it's not that and just anxiety. My b12 came back really high so the doctor is looking into that, she said about the folate too.

I've taken them ones years ago I can't remember if they helped or not because I ended up on sertraline, no longer taking them now.

Christ she is very young, how is she now? Oh I will be getting checked over even people do say it's unlikely or just anxiety I know something isn't right. Even if it is anxiety it's best to get checked.

I have opticians in a bit to scan my eyes as well as talk about my symptoms.

This is what my doctor thinks it could be because my b12 was really high, she said it gives a false reading. I had b12 injections last summer and they made me feel loads better. I've got more bloods this week to check folate and b12 active too.

How did it go at the opticians?

Thank you, it was all clear. Had the scan too that checks behind my eyes. He also did some extra checks for me with other stuff too.

That's good news.

Yes, I am having physio tomorrow and some more bloods. Hopefully find out what's going on soon. Thank you for asking.

https://www.facebook.com/groups/PAB12DSupportGroup/?ref=share

Check out this group if you aren't already part of it.

Thank you I will look into this on Facebook

@Jodie782 she's ok. On quite strong drugs that she self injects. She's now immunocompromised so had to have a few additional vaccinations. Fatigue is her biggest issue, though she never got her right side back to 100%, and writing for long periods really tires her hand (she did two essay subjects at A level and is into art). And regular visits to the hospital for blood work, MRIs etc. But luckily we live near a great neurology department and they say she should still be able to have kids live a fairly normal life.
I hope you get to the bottom of what your issues are - but medicine is not an exact science.

Sorry I've only just seen your reply. I'm glad she is okay, things are so different now to years ago so hopefully it will never stop her doing stuff she wants to do in life. Thank you.

Sorry Mondaytosunday

I have borderline low vitamin d and folate. Since I've been taking vitamin d in January the symptoms aren't as bad the pins and needles are no longer waking my up at night and no vision problems. I had a scan done and checked over at opticians all clear. My doctor sent me to physio too to be checked, all came back okay. Not much more they can do.

When they couldn't find a reason for my neurological symptoms they diagnosed me with functional neurological disorder. I'm still convinced it is something to do with anxiety/stress in my case.

I do suffer with anxiety/stress and it does make my symptoms alot worse. I know how you feel, it’s awful living with anxiety and stress.

@Jodie782 Hello. I was just wondering how you are now and if your symptoms cleared up at all? Currently going through testing for similar things in your original post 😊