ONLYJOKINGS THREAD

[TripleyTigger]

Done!!

Morning OJ - some children really do seem able to accept huge changes don't they - I think yours have your love and care (and Steve's of course) to thank for that. However painful it gets in the future, they know they are loved, and that has got to help.

How has Elliot been the last couple of days, since your talk?

our three will always have love, I was dragged throu the care system so I will ensure that they never know what it is like to have no one who loves respects and values you.
our three can do huge changes like changing schools going on holiday, but I once made the error of buying the wrong size toothpaste, the fallout was massive and lasted for days.

Thinking of you all today OJ. [HUGS]

morning OJ -lol at the toothpaste

Morning OJ! I'm glad you had a good visit with Steve yesterday (until the MIL turned up ).

went in to see steve today it was a relaxed vist.
i did have to smile when the nurse manager asked if me and the kids enjoyed the chocolates turns out that the hospice had got chocolate buttons for the kids and some chocolate hearts for me, i think steve had forgotten they were for us as i found several empty choc wrappers
Steves consultant is back tomorrow so will have a chat to her about steves right side being very weak and his gerenal loss of mobility.

Glad he enjoyed your chocs OJ

Hey OJ, what a shame your MIL is soooooo shallow, rewarding the other grandchildren with the holidays whilst not doing anything for your 3. I really do pity her.

She is missing out on so much and I dont think she will ever understand exactly how much.

LOL at Steve eating your chocolate, bet he enjoyed it too ! Mine are knackered and all OD'd on Cadburys.

My DS has been absolutley vile all weekend so have a feeling he is coming down with something, so trying to be a patient Mummy, any chance of a rum please ?

OJ - your kids are very lucky to have you as their mum.

It must be difficult for the staff with Steve getting out of bed and falling 'cos he doesn't realise he is not capable of doing it.

This happened last year to my mum: she was a head injury patient with a broken pelvis who didn't understadn that she couldn't walk. When she gotback from India (one the pelvis had been pinned and she had been stablised) she was put on a general surgery ward and it was only after she had fallen and broken her jaw that she was moved into a single room visible from the nursing station and put onto 24 hour watch.

The postive thing from your persepctive is that it should help the case for 24 hour care for Steve, as you can't be expected to watch him for 24 hours (not and look after 3 kids with special needs).

Vag sounds like you need some of my rum.
had a bit of a drama here, beth locked herself in the bathroom, she was crying and not able to get out, i had to get the bloke nest door to come and smash the lock off it took lots of cuddles to calm her down.
your poor mum prettybird.
Steve has to get 24hour care, the kids SW says if steve comes home without it then the kids will be "at risk" amd the SW will act accordingly
i really don't want to be in the position of chosing between the kids and steve
steve and his family are not aware of what the SW said. we will just have to wait umtil thursday to see what happens at the meeting, if they don't agree funding the consultant will appeal which will take up even more time.

Oh poor Beth, have the children been talking about Steve do you think ?

I am hoping that the professionals "do right" by you, Steve and the children on Thursday. Surely they can see its the right thing.

Would not blame you at all if you made your own arrangements if they mess you about any further.

You must let us know Jo if people power is of ANY help as you know we are all prepared to write, petition and even stalk if necessary to get the care you so deserve.

Thanks for the rum btw, not a rum drinker, but hey, a change is as good as a rest. DS gave DH a load of verbal and DS now crying himself to sleep !!! Get me my ear plugs !

OJ, poor Beth. You both must have gott such a fright. Its times like that where I can imagine you miss Steve giving you a cuddle after it is all over and just being there for each other.

Glad to hear Steve hasn't lost his appetite for chocolate and that you had a relaxing time together today.

I know how nervous you are about Thursday and I really hope that it won't come to you needing to choose between Steve and the kids. Any SW with a bit of sense will take their lead from the medics and as Steve's mobility is now impaired it may mean that the 'threat' he would have once posed may not now be an issue. I can't see how they can deprive Steve of spending his remaining time on this earth with those who love him the most. Love to you OJ xxx

Sorry if asking out of turn, but why is it thought the children will be at risk if Steve comes home?

Can the kids SW not talk to Steve's SW (or is that just too easy??)???

Steve wouldn't hurt the kids but if we don't get 24hour care for Steve who is still suicidal then it wouldn't be safe for the kids to be around Steve for fear of what he might do to himself and what the kids might see.
when Steve cut his wrist and took 50 paracetamols it was me that found him it could have been the kids that found him, and thats the worry. If we get the carers then Steve will be kept safe.

the two SW have met and were both at the last meeting

OJ, does Steve remember that suicide attempt? Does he still talk about wanting to kill himself?

There has been quite a bit of change in his mobility since the 24 hr care was first broached hasn't there? Will that be mentioned at the meeting and would it help?

yes he does remember it and he still talks about doing it,to me and to the consultant and psyhc bloke. thou he isn't very mobile now. i can't make the house risk free if he is determined he will find a way.

it should help, and will definifty help us to get a hospital bed thou the Mac nurse is sorting that battle out.
when they were talking about having a 24hour carer they were saying it wouldn't be a trained nurse but would be a nursing asst or a crossroads sitter, they won't be able to give steve any of his meds, so if i do go out i will be on call when he needs anything.
as things progress then he will get nursing care lets hope it is not as much as a battle as this has been.

none of it should be a battle should it This has been said many times before - but I'll do it again - you are an amazing woman, a wonderful wife and an exceptional mother. All the best to you

oj, is there anyone who you could get in touch with who's had experience of workign with AS children wrt bereavement? there was a great tv programme on last year about end-of-life care/family counselling and the woman on that was great.
glad you've all been od'ing on the chocolate!

it always seems to be a battle i have a teflon battledress which is almost worn out now
there doesn't seem to be any workers in the ASD field that deal with this sort of stuff, thou i do have some books and a social story in a bg lurking behind the sofa.

i have the mummy diaries in dvd to watch at some point but not managed it yet, will do one day.

still reading and thinking of you, and hoping the powers that be sort out care so Steve can come home.