ONLYJOKINGS THREAD

[TripleyTigger]

Done!!

Hi oj - feeling very cross for you re blinds. Hope you sleep well and that you find Steve ok in the morning. From what you say he seems to have settled into a routine a bit better? Hope so

Love to the OJ household today. x

You must have a zillion mental lists of things to do at the moment OJ. I really feel for you.

OJ, as well as sending you positive vibes today I'm also going to send those around you, be they blind companies, in laws or pencil pushers who deny Steve a hospital bed FFS, "be kind to OJ" vibes.

Hope it works.

just met with consultant, the assessment team say they need to call a meeting with the psych the consultant the mac nurse and Steve and myself, they are questioning the 24hour bit, consultant says this is usual due to large amount of money. They are trying to get a meeting for next week.
Steve much weaker today and for the first time agreed to using a. Wheelchair, it took 2 of us to give him a shower today
he is snoring right now so I am drinking coffee and relaxing.

Enjoy your coffee OJ is it laced with anything ? you said you were missing the sound of Steve snoring......

OJ been away for a while but wanted to pop back to give you my love. Godd name for thread i always worry i won't find you!
Hope you enjoyed the coffee and had a bit of a rest!

meeting is now going to be on the 27th march although they are still awaiting confirmation from 2 people, if the meeting goes well and the funding bods can be convinced to fund the care package then steve will be home within days, he has been in three weeks already.
the only problem is that steve, steves mum and steves brother don't think that 24hr carers are needed so if they all turn up for the meeting then it could go pear shaped.

God, let me know where they live, and I'll get Dh's mates to bomb them!

FFS don't they realise how much is involved in his care.

Sorry but this is making me so angry on your behalf.

Wankstains!

but thats just it MB they can't see past their own needs, they can't think whats best for steve, what does steve want. well i don't feel any urgent need to pass on time and date of meeting and given that they have not phoned me in all of the three weeks steve has been in the hospice, they haven't asked how the kids are or anything.

OJ, I was really hoping that they would have approved it for you today. Hopefully the assessment team will make the right decision on the 27th. Do his mum & brother have to know about that meeting? I know you don't want to keep things from them, but as you have regularly experienced, they will try & make things difficult if they can. How are you holding up? Sorry Steve was feeling so weak today. Sending you a massive (((((((hug))))))).

the big meeting on the 27th will be the assessment team -who don't want to fund
phsyc bloke - who wants the funding
Mac nurse- who wants the funding
hospice doc -who wants the funding
social worker - who wants the funding
me - who wants the funding
Steve-who doesn't want the funding
steves mum -doesnt want shooting funding
steves brother -who doesn't want funding
steves sister - who doesn't want funding
so if his family all turn up it could sway the decision

OJ at his family after all this time they still don't get it

that really sucks that there's this further delay until the big meeting. I would hope that the views of the professionals dealing with Steve who know him well would be a stronger factor than that of family who haven't been involved in day to day care

But what happens when most of MN pitch up and o want the funding OJ !!!!!

oh shit, just had a call from a mate who went in today whislt steves mum was there, one of the nurses came in and mentioned the meeting on the 27th
the nurse asked Steves mum to let me know about it, funnily enough she hasn't let me know.

sweetie, wouldn't you have more "sway" being next of kin? and assuming the kids would have a say - ie dad at home less stressful all round esp with proper medical/personal care

I agree with bundle. Given Steve's understanding of the situation, and that you are his primary carer, I think you're in a stronger position than you realise.

I think that the medical staff can see right through your MIL - they will have seen it hundreds of times before. If they let Steve go and live with his mother, given her understanding of his situation, they will be failing in their duty of care, surely? I don't think their responsibilities end when Steve comes out of hospital.

Also, does everyone at the meeting have an equal vote? I don't think that is the case.

And I would impress upon the medical staff that Steve and his dumbass family are not to be relied upon to pass on messages.

well dunno if next of kin counts in this, it may be down to numbers, i don't really know how it all works yet. the kids wouldn't be able to do a meeting thou could give their opinions separatly, i have a meeting with the Mac nurse on monday so i will try not to stress until i have spoken to her about it.

the consultant has said that steve cannot go and live with his mother, she is in too much denial to keep him safe.
i don't want them playing a part in the decision making cos they don't take an active part in looking after him that is always left to me.

that last bit you just said re; they play no active part therefore should have no much less say - that's the way to play this.

imo

it would be a nonsense for steve to go to his mum's. he'd be back in hospice in 5 mins

print out thread for consultant

there is no way that the hospice would allow it to happen, they said if steve tries to leave then he will be sectioned.
if his mum tries to take him lets hope they section her

I know they wouldn't let it happen, just want this whole thing to be sorted out your way with least stress for you, x

it will be sorted out and hopefully soon, Steve doesn't have time to waste.

no words oj, just hugs xxx