can i ask you lovely lot to cross fingers and fanjos for Steves scan results.

[onlyjoking9329]

what a weekend.
Steves been in bed since saturday feeling sick but not been sick, he is struggling to balance and has been in a lot of pain.
Steve ended up with the doctor out again last night and was given morphine. he slept much better last night
it's so hard to be optimistic about scan results when he is feeling so crap.
on the one hand we want the scan results out of the way, but on the other hand we don't want to know, just in case it isn't the best news. the timing is crap and we just can't get into the christmas spirit.
the kids have several things on at school the next two weeks and don't know if we will be able to go.
sorry if it sounds like i am always moaning but mumsnet is my sounding board.

Oh, OJ - only just seen this - was it not good news?

oh shit!

was there no affect?

well the good news is that it hasn't grown and the swelling from rasio has gone down but tumour is the same

doesn't sound like it went well . sorry to hear this.

Oh and MB you will love what happened at the pharmacy

bugger

But it hasn't grown - that's something?

so the oncologist give us script for new double strengh chemo to start today

Sorry OJ, what happens next?

goes to pharmacy hands in script told it will be ready in 30 (yeah right) so goes off to have a drink and dinner stroll back an hour later....

well I guess on the one hand it's good that there is more treatment they can give, but on the other I imagine that strong meds with strong side effects is not a pleasant prospect. So how do you and Steve feel about the strong chemo?

pharmacy lady looks up and says sorry systems are down, so what does that mean to me then, no system means we can't do drugs.

she then goes on to say last time systems were down it was 3 hours, you can wait if you like love, so we came home, steve now not starting chemo today. tomorrow i will do the 20mile trip to get the bloody meds, aaaarrrrgggghhhh

Bugger. But glad they are still going ahead with treatment. Hope that the side effects are not too grim.

Used to the '30 minutes' porkie pie by now. I go and get a coffee and a bun.

this has now happened so often my arse is lodged in two different postcodes.

Sending you all my love

no it hasn't grown cos of the radiotherapy, but he won't be given any more radiotherapy ever so it will carry on growing. they can give him up to 6 lots of chemo then they won't give anymore as it will no longer work.
i mean we are pleased it hasn't grown we would have been delighted if it had shrunk

re the 'six months and then that is your lot' line, we had that. First it was 3 months, then they extended it to 6 months and in the end dh had 9 months of the first line chemo.

They only stopped when it stopped working.

It worked a lot longer than they originally thought

oh OJ.
I will be at the sanctuary this evening. Will crack open a bottle of Rhum.

sorry it's not better news, oj.

And the pharmacy am horrified about that.

Mb theres a lady near me whos DH has the same tumour the same consultant and same treatment plan, they were at hospital yesterday to start his 6th lot of monthly chemo, they have told him he won't get anymore now. he has a follow up appt in three months, dr said something about the chemo damaging the bone marrow?

Message withdrawn

Oj where do you have to go to collect the meds? Could I go for you, I'm only "over the border"

I'm on FB if I can help/ xx

Shame it hasnt shrunk but no growth is also sort of good. How does Steve feel abou tit?

Does pharmacy not have a delivery service? One down the bottom here has, only know as I nearly ended up on bonnet, drives like a madman!

oh OJ Thinking of you all xxxx

.

O.k. who started the lets cross Norks thingy?!!!

I can do fingers,toes,legs etc O.J!!!!

So about the meds and

Thinking of you and your family as always O.J.

P.S. and take Bossy up on that offer,she can walk there, about time those dogs were walked missy!!!

Thinking of you OJ. Sorry the news wasn't what you'd both hoped. x