Active discussions

Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

Talk
General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Original poster

anyone know anything about non-Hodgkins lymphoma?

144 replies

deaconblue · 15/07/2007 10:33

Ds has to have a biopsy tomorrow and this is one of the possibilities. He is only 14 months and apart from 3 lumps in his jowls seems totally fine.

OP posts:
foxinsocks · 15/07/2007 10:50

I don't know any more than what you've probably found out via googling.

Sorry to hear that shoppingbag - what a shock. Have they given you other options? A few people on this site have had something called atypical mycobacterium which has something to do with swollen lymph glands.

I hope the biopsy goes OK.

lyndyloo · 15/07/2007 10:51

My mum had it but she's in her 60s. God - only 14 months? How did you discover the lumps? Did they just appear?

There are lots of sites on the net giving info about it. My mum had chemo and touchwood is fine now.

Good luck.

Original poster
deaconblue · 15/07/2007 18:46

Thanks for responses. The first lump just appeared one morning 10 days ago and within 5 days he had 2 more. They seem to have exhausted all other options and we're seeing the paedatric oncologist tomorrow and although they do keep saying it could still be something less sinister, they haven't suggested what that could be. We have looked into infections, mumps, abcesses and a range of other stuff but he has no temp and no pain. The net stuff suggests there is a very high success rate with this type of cancer though so my panic has reduced slightly

OP posts:
Original poster
deaconblue · 15/07/2007 18:49

Have just read your link foxinsocks, very interesting. These children didn't seem to be in pain either, I will ask about it tomorrow

OP posts:
FluffyMummy123 · 15/07/2007 18:49

Message withdrawn

FluffyMummy123 · 15/07/2007 18:50

Message withdrawn

Original poster
deaconblue · 15/07/2007 18:53

am surviving on chocolate, cake and other comfort food. My mother is catering like a jewish mother (turned up with dish of cauliflower cheese for a BBQ this afternoon). Am a tearful wreck but am determined to find inner super amazing strength by the morning.

OP posts:
FluffyMummy123 · 15/07/2007 18:53

Message withdrawn

tegan · 15/07/2007 18:54

My dad was told he had non hodgkins when diagnosed in 2004 but when we went to a check up in march a dr let slip that he actually had hodgkins instead of non.

non hodgkins is curable but hodgkins only has a 1 in 10 chance of survival.

Thankfully he is still here being a pain in the ass.

foxinsocks · 15/07/2007 18:55

ooh yes, lordy, the nurses will expect it. They are very good at being supportive so don't worry if you can't hold it together.

just remember, whatever the circumstances, EVERYONE gets a bit freaked by their kid having an anaesthetic - tis perfectly normal to feel that way.

am glad your mum is there cooking for you

FluffyMummy123 · 15/07/2007 18:55

Message withdrawn

FluffyMummy123 · 15/07/2007 18:56

Message withdrawn

Original poster
deaconblue · 15/07/2007 18:57

He was definitely non toxic wasn't he? All the symptoms are non and the googling I've done seems to show it has a really good survival rate. Just so horrified to be discussing "survival" about a baby who only 10 days ago was carefree and even today is running around as if there is nothing wrong with him

OP posts:
slayerette · 15/07/2007 18:59

My sister had non-Hodgkins a few years ago. She went through chemo and is still monitored closely by her doc. It knocked out her thyroid and she's on thyroxine. However, she has since qualified as a teacher, got married, had one gorgeous baby and another on the way! So be strong for you and your ds - this is definitely a beatable cancer, and my sister is living proof that life most definitely goes on afterwards.

Thinking of you and hoping like mad that the biopsy goes well.

FluffyMummy123 · 15/07/2007 19:01

Message withdrawn

foxinsocks · 15/07/2007 19:01

how soon will you know after the biopsy?

EricGallagher · 15/07/2007 19:01

I agree with Cod, try and make sure you're eating enough even if it is crap.
I'll pray for a good outcome for DS.

foxinsocks · 15/07/2007 19:01

I also think they prepare you for the worst in these situations iyswim.

FluffyMummy123 · 15/07/2007 19:02

Message withdrawn

FluffyMummy123 · 15/07/2007 19:03

Message withdrawn

Original poster
deaconblue · 15/07/2007 19:04

I think you are right, just was horrible to say goodbye to the doctors this morning and see sympathy all over their faces. Good to hear of success stories and yes he may still get a different diagnosis this week. I've been warned that biopsy results aren't quick but no time scale given. We are going to Cambridge tomorrow morning and the biopsy will either be later tomorrow or Tues morning. I guess he'll need to be nil by mouth for a while so perhaps Tues is more likely.

OP posts:
Original poster
deaconblue · 15/07/2007 19:06

night night cod. Dh was convinced ds was going to have nothing wrong with him until I had to force him to accept what we might have to deal with. Poor bloke's been a bit of a mess since but we are coping well together so far.

OP posts:
Tutter · 15/07/2007 19:44

just popping in to say everyhting here is crossed that you get positive news. poor you and ds. a mate of mine was recently poised for similar news re her 2yo ds (suspected malignant lumps) but got the all clear - hoping same for you x

bodiddly · 15/07/2007 20:03

my step-father had this about 7 years ago and had one course of chemo and was completely clear as a result!

FluffyMummy123 · 15/07/2007 20:10

Message withdrawn