anyone know anything about non-Hodgkins lymphoma?

[deaconblue]

Ds has to have a biopsy tomorrow and this is one of the possibilities. He is only 14 months and apart from 3 lumps in his jowls seems totally fine.

my FIL has non-hodgkins and is currently having blood transfusions and chemo

hope everything goes ok tomorrow

You poor thing, I hope it all goes well. My friend's ds had swellings like this that the medics were convinced were lymphoma but turned out to be an infection with no temperature. Here's hoping.

Just in case anyone reads this and worries about Hodgkin's I have to correct tegan- the 5 year survival rate is at least 85%, so not at all bad.

The positive messages help a lot thank you. It would be the best thing ever if we got some good news tomorrow. Will post again whenever I get back from Cambridge. x

Oh poor you.

I work on a haematology ward with adults with various lymphomas.

I wouldn't like to speculate re anything to do with paediatrics,but talking to one of our registrars recently who wants to specialise in paeds oncology (she has to do a bit of adult haematology too as part of her specialisation)she said that children are usually a lot more resilient and bounce back better than adults.For adults success rates are improving all the time and new treatments such as monoclonal antibodies are being trialled on an ongoing basis with positive results .

Sending all positive thoughts and best wishes to you and your family xxxx

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Any news yet shopping? I do hope everything is OK.

Best wishes from me, too, for a good result today.

thinking of you and your precious DS, and hoping for good results x

have had a text
well at the new hospital things seem mroe positive
haev a couple more options to explore before a biospy

bio spy
chrotle
no a biopsy

ill text her and tell erh to get on ere

Fingers crossed for ds adn you, shoppingbags

really hope everything turns out ok.

That's great news, Cod. I hope it's all sorted out v soon.

Fab news, hopefully they will discover it is something harmless adn a biopsy won't be necessary.

cod, unable to decipher your 2nd message but I assume those are the other tests they are running?

Tell shoppingbags we are rooting for her ds!

My dad had non-Hodgkins lymphoma but he had loads of other symptoms too such as night sweats etc. My friend, who is a nurse told me the type of non-hodgkins younger people get tends to be very curable.

I hope all turns out well xxx

thanks so much everyone. We saw the paedatric oncology doctor today and after asking a million questions he said that he feels lymphoma is unlikely (although can't rule out until after a biopsy which will be next week now) as the lumps came up literally overnight. He thinks it is either glandular fever, an infection without a temp or the weird atypical mycobaterium thing foxinsocks mentioned (thanks so much for that, it meant I could discuss properly with him). So more blood tests today and have to go back tomorrow for ultra sound and discussion with cancer head honcho. Keep everything crossed for a few more days please

oh and he also said if it is lymphoma there is a 95% total cure rate in children, so even if it is the worst case scenario we still have a very good fighting chance

All sounding as good as it could so far then Thanks for letting us know, and keeping everything crossed for next week.

everything still crossed

Don't think about it yet, think about it when you have a diagnosis. Keeping my fingers crossed for you and good luck for tomorrow.

fingers crossed, shoppingbags

I don't know if this helps - dd1 had enlarged lymph nodes in her neck at this age too - we were referred to a paediatrician who put it down to her eczema, as she was completely fine otherwise. They went back to normal after a year or so.

is ds still in hospital?

fingers crossed!

no we came back this afternoon, got to go again for this ultra sound tomorrow and then if they decide after getting blood tests back we need a biopsy still, it will be next week. Poor little man is getting sick of hospitals, I think parents who cope with this for months and months are amazing people, full of admiration for the families I've seen over the last 10 days

aah I'm glad you've got him home.

I don't know how people do it either. It is just so emotionally draining. Your life just stops basically.

Good luck tomorrow - hopefully, you'll have some answers soon.