Cancer support thread 62 - here comes the sun (hopefully)

[WhatWouldLeslieKnopeDo]

Good evening

Our previous thread is here

If you've got cancer, this is the thread for you. Introduce yourself and feel free to ask any questions. We also welcome anyone who is waiting for cancer tests. We know how scary it can be. So don't be shy. We will happily hold your hand and hopefully wave goodbye when you get good news :)

And no idea about the period. Maybe put on some white jeans!

@swaying actually rescannes as missed your post . Sounds awful. Hope your doing better now . Do you mind me asking what sort of symptoms you were having? It's ok if you don't want to answer.
I'm just heading to a very dark place as I feel no-one is really taking me seriously . I'm in so much pain and no-one seems bothered. There's no urgency with it. I can't stand for longer than 10 minutes washing pots without being in agony.

Drs secretary just rang. Dr wanted me to be seen asap. Quickest gynae appointment is Wednesday......in a hospital an hour away..closest appointment at my local one was June and he said he didn't want me waiting apparantly. He's going to ring me soon himself with a view to different pain relief .

Year Maybe try a warm bath though not sure how much you can control it.

Regina Sorry you are in so much pain, I would try 111 and see if they have any ideas. I find them better than my doctors. They sent me to hospital once when my doctors said not urgent and picked up a pelvic infection and had 14 days double antibiotics and got me to have an urgent cancer test. That was negative but it was reassuring to have one area ruled out. I've been really ill for about 6 months and having fun and games with the NHS, some of it is brilliant, other parts are dire and I've switched to private via work for those recently out of desperation but you shouldn't have to. That must be really hard with young kids, mine are 11 and 12 and walk themselves.

Leslie Hope the chemo goes OK

iVampire Good luck with results and TQ good luck with the cleaning.

Been off sick today again just can't stay awake think anemia again but coming round.

Glad docs helping now Regina.

Penguins I'm guessing gynae issues also for you. You have probably elaborated up thread and apologies but im so doped up even remembering stuff is becoming a task. They are very dire in parts. I ended up in my local a&e for the pain a week ago. They gave me morphine and aimed me out of the door had to wait for a taxi while morphine was kicking in. Was an odd experience.

6months is a long time its bloody awful. Why do they leave people waiting so long. I just keep pestering the Dr until he decides to listen. I've give birth 3 times no pain relief have a monster tattoo right up my rib cage so my pain threshold is very high. This pain has me on all 4s unable to walk. Something is seriously wrong but no-one listens

And I hope you start feeling better soon. Don't know about you but I'm not mentally in a good place right now. It's too much sometimes x

Thanks Regina I'm under lots at the moment - gynae 1 NHS hospital, urology x 3 hospitals (2 NHS, 1 private), and colon x 1 private hospital for bleeding (but that's clear so a sign off expected tomorrow) plus 2 A&E trips in the past month or so. The gynae NHS one is brilliant but the urology are useless and now I started losing a lot of blood from bladder I just switched to private as been under NHS hospitals since September, not able to go to work since October. Can wfh when well enough but it's no way to live. Sorry to hear about your mental health, mine isn't that great either - I have ocd with germs though at least hospitals always have gel. Are you depressed or anxious? Fine if you don't want to say. I'm not depressed due to the kids (only occasionally) and general anxiety re tests has gone right down as had so many but does get depressing when you talk to doctors who don't take you seriously, had one laugh at my symptoms and tell me I had imagined it all and I looked fit. Grrr.

Oh gawd seems like your really going through the milk. Have they even suggested what it could be or are you still being poked prodded and tested? My mental health is usually fine I just think the constant pain and worry is just making me feel down in the dumps. My kids are only 5 , 4 and 16 months old the youngest has numerous health issues So it's all full on and not easy when I'm feeling like this. Feel like I'm being a crappy mummy as I'm really snappy and it too much pain to do much with them
Just praying that the gynae on Wednesday offers me a glimpse of hope and I may start to feel better x

Through the mill even not milk

Sorry to hear you are down, its understandable, I've got one with ASD - he's just being attacked by another boy a lot at school now - other boy has just been excluded for 2 days for it after DS told me he had hit him with a tree branch and got others to laugh at his injuries, y6 boy. I do feel useless with them too though at least at 11/12 they are pretty self-sufficient and DH is amazing at playing nurse, seems to prefer me ill.

Had a fibroid removed mid March, pelvic infection and regular utis and anemia but so far cancer tests are negative so just lots of prodding. Got CT scan and kidney scan next week and just had some cancer blood and urine tests but I think it won't be cancer. Urine was bright red, hmm. I was so healthy up until 6 months ago, really active, weird. Though most on here are going through so much worse than me so I shouldn't complain. Hope your hospital finds a solution quickly.

Oh bloody hell here's hoping they can give you answer soon. . I was pretty active aswel id started the gym to gain weight and actually got to deadlifting 75 kilo....was so proud of myself. Now I can't stand up long enough to wash the pots without pain . Like you say tho frel awful for moaning as there are people in much worse situations than me.
Kids are bloody awful aren't they. My eldest son has suspects asd/aspergers... still no firm diagnosis for him yet tho. Attacking a kid woth a branch at that age...makes you wonder about the parents doesn't it. My little boy gets a lot of grief from some boys in his class and they are only 5
Funnily enough my oh is the same. I think it's because I haven't got the energy to reprimand his half arsed cleaning attempts haha

My DS isn't diagnosed either - takes 2 years and we gave up but the school are certain he has it and had a full-time TA at one point, he's very bright - doing logarithms at 7 but very quirky - will dance at certain numbers, will only swim pretending he's woofie the dog and sleeps with a 4 foot panda and a 4 foot penguin etc. As they get older it gets obvious. He's lovely just the way he is.

I don't know much about the other boy joined school only a few months ago and full-time TA (wonder if excluded elsewhere) but very worrying he's doing this at 11, trouble is he's bright and there isn't special school provision for bright kids in state sector so he'll stay causing chaos in mainstream or learn nothing in a special school, at least he's going to a different secondary though its a zero tolerance one so think he'll last 5 mins there. Sorry to hear your little boy gets grief, boys can be so violent but they often seem to make up quickly I find the ASD types attract too.

They do I think it's because he's different to boys that age. He's quite sensitive and stuff. Very emotional and doesn't like rough housing like the rest of them. I'm hoping they stop as he gets a bit older . Believe it or not my son also has a 4 ft panda teddy in.his bed called eddy . He's extremely bright too. Especially with matha and readung. Absorbs information like a sponge. Like you say hes just wonderfully quirky.
Mad how they take so long to diagnose although actually I don't mind as I never wanted people to label him anyway.

Thank you MissRP.. I'd do the school run for you if I am near. I hope you get an appointment soon. Even waiting a week feels like an eternity when you're in pain.

WWLKD - I'm sure the GP said pelvis scan but no doubting myself. No appointment letter yet but I only saw the GP last Thursday. I thought about white jeans but don't have any. Have had bad stomach pains for the last 3/4 hour but they don't feel like usual period pains.

Thank you penguins.. Sadly no bath as dh tiling in there but I might get a hot water bottle in a bit. Can't be bothered to move at the moment. Hoping the kids will do their own teas. .

I'm fed up to hear some children are being bullied at school. We had to take out year 6 child out as he was being bullied incessantly and then injured. The following year the bully was being picked on and beaten up in secondary school and the mum went nuclear then the following year removed her remaining primary school aged kid as they were being picked on. My dc said karma. We'd already been through a school move as our eldest was being bullied. It's top two reason why I'm worried I'm pregnant as I couldn't go through school life again.

@year god love you means a lot. Dr just rang urgent gynae appointment on Wednesday and he said hes following this witj great interest and needs to know what they think. Also whipped me off a prescription for coedine and morphine to take together. Sent someone to.get it so here's hoping I may be able to walk soon. Have you tried buscopan? Apparantly aswel as ibs they help with lady cramps too. Who knew!!

Your not a bad mum at all In fact need a medal for coping with everything whilst in pain. It's not bloody easy is it

freddiemercury

I went past the Moonwalk start/finish on the bus today. It looks amazing - a huge pink tent, that looks like something from a mediaeval jousting tournament, but massive

Good luck getting the pain relief, MissRP..

I think my hormones are taking over. If men had to have them there would be cures for all the crap bits by now.

How very true. We endure the pain of childbirth and suffer forever and a day afterwards as a thankyou

That's cute your son has a 4 foot panda too Regina. Wow codeine and morphine that should work but not sure you'll be able to do much in a drug induced haze.

Hope you get your scan soon Year

The meds have just landed courtesy of a friend....im off to enjoy a night of hopefully less or no pain. My daughter has a 4 foot unicorn too. She has fallen out of bed before know as its so big takes up all the space !

My DS only played with girls until y3, remember him coming home start y3 and crying as they had put him on a table of boys, we had many daisy chains Glad you have pain relief and a kind friend.

Eddy :) my ds prefers to play with girls too. He's not a fan of the toy fighting and other stuff the boys do. Kids are all in bed lasagne in the oven and morphine down the hatch. Pray the pain has gone soon

Well done on getting kids in bed and lasagne on

Hope pain relief kicks in soon.

Your DS looks lovely, similar taste in soft toys to my DS 😎