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Cancer support thread 62 - here comes the sun (hopefully)

986 replies

WhatWouldLeslieKnopeDo · 03/05/2018 19:14

Good evening

Our previous thread is here

If you've got cancer, this is the thread for you. Introduce yourself and feel free to ask any questions. We also welcome anyone who is waiting for cancer tests. We know how scary it can be. So don't be shy. We will happily hold your hand and hopefully wave goodbye when you get good news :)

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11
purpleunicorns · 11/05/2018 13:13

I had an ultrasound and mammogram but luckily no biopsy. Lymph nodes look normal and the lump is just fatty tissue. I will start a diet at some point Grin so nothing to worry about breast wise.

Wow year I'm tired just reading that Shock although it's good to keep busy.

I hope the pains not too bad today Regina Thanks

Turn I'm sure if it was anything serious they would have told you by now. That's a long time to wait no knowing though

MissReginaPhilange · 11/05/2018 13:14

@purple.. amazing news !! Bet your relieved

YearOfYouRemember · 11/05/2018 15:23

Great news purple!.

Just back from being out with dog. Falling out with dh over text. Bleurg.

Oh well. It's Friday.

MissReginaPhilange · 11/05/2018 15:31

@year thanks lovely whats happened with dh? I did similar with my oh this week actually without any real need. Think I was just stressed and it landed on his lap. He took it like a champ and bought me chocolate

YearOfYouRemember · 11/05/2018 15:53

Mine went to the shop after knowing my period finally turned up and did not buy me chocolate Sad. It's quite a serious falling out but it will blow over.

WhatWouldLeslieKnopeDo · 11/05/2018 16:00

What a relief purple! :)

Year glad your period has finally shown up and I hope the HRT helps. If you see her before you have your scan appointment then hopefully she can chase it up.

Regina I hope you are feeling better now.

Waving to everyone. Happy Friday. Typing very quickly as my iPad keeps randomly switching itself off so don't want to lose my post, but thinking of everyone Flowers

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MissReginaPhilange · 11/05/2018 16:03

@year strewth almost divorce material right there Grin I'm sure it will pass. If he has any sense he will.come home laden with sweets and chocolate. I know my oh would

Right back at you leslie hope you have a nice evening xFlowers

YearOfYouRemember · 11/05/2018 16:51

He did offer to get me some to be fair. Right now I don't like him so he can bog off.

MissReginaPhilange · 11/05/2018 16:53

Make sure you get chocolate before he bogs off. Jsut had a call off my oh...cars broken down. What a fab week this has been Hmm

penguinsandpanda · 11/05/2018 17:42

Just back and colon is all clear from cancer and polyps so signed off. He asked me if I had been well said yes and he looked at me disbelievingly and I said well apart from bleeding from the bladder, clots and an infection for which I have 14 day antibiotics and a 2ww cancer referral. He said he knew. Wink

penguinsandpanda · 11/05/2018 17:46

Regina Sorry about car, sickness and pain and year Sorry about your DH. I asked mine for vegetables and got chicken. Confused Purple Great news.

Hope you are OK today Leslie Love to all.

MissReginaPhilange · 11/05/2018 17:49

@penguins...amazzzing news. What's next to tick off then? Or is that all tests done? ... Yeah never send the oh for anything without a list. Only person I know that can do a full weekly shop yet I can make meals from none of it Grin

penguinsandpanda · 11/05/2018 17:57

I have gynae on Tues at 10am then CT scan on Tues at 11am for urology then kidney scan at 1pm on Wed for urology and awaiting results of cancer and urine blood tests with urology and cancer biopsy from gynae - gynae I'm assuming is all clear as it was on 13/3 but don't know if they will sign off or do further tests as had complications since. I have to get tested for Lyme Disease too but have to be off antibiotics for that. Then its more urology tests. I am health disaster zone at present Grin but at least if I get all clear from everything and maybe surgery I should be repaired for a few years. I had forgotten my Dad lost a kidney as a child. Are you just under gynae - hope they sort your pain soon. DS was very jealous you get free hot chocolate at the private hospitals. It is much nicer there, almost worth being ill for.

Turn I would assume all clear too with no contact.

McZeba · 11/05/2018 18:06

Evening, yesterday's DVT clinic showed no clots so I am waiting on an urgent in depth MRI. Been keeping busy with work but tbh I am so tired I can hardly keep my eyes open, let alone my brain or body working Confused

Best wishes to all, I will check in when I am in a more human state x Stay strong all and keep battling x

WhatWouldLeslieKnopeDo · 11/05/2018 18:41

McZeba sorry to hear that. Well, good you don’t have a clot, but it would’ve been a fairly straightforward explanation Flowers I hope they can squeeze you in for the MRI as quickly as possible. And I hope you can get an early night :)

penguins yay for a clear colon! That’s good news. Hopefully after next week’s medical bonanza you will have some more crossed off :)

Sorry Turn I think I missed your earlier post. It’s good to hear from you. Fingers crossed for your MRI results. I hope they’d have contacted you if there was anything to report :)

Waving to everyone! I’m on my mobile as my iPad seems to have given up for now. Silly tiny screen.

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penguinsandpanda · 11/05/2018 20:05

Hope MRI is clear Zeba and make sure you get some rest. Don't worry about catching up, just look after yourself and get signed off if work is too much.

Mrspotter12 · 11/05/2018 20:40

Hi folks, I'm home and in bed! Surgeon was pleased and I'm back to clinic on the 30th for results.
Hope all are doing ok xxxxxx

WhatWouldLeslieKnopeDo · 11/05/2018 20:55

Good news Mrspotter Flowers now take it easy! Fingers crossed for 30th.

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penguinsandpanda · 11/05/2018 22:27

Glad it went well MrsP, have a good sleep and good luck for 30th.

Regina Hope the pain is getting more manageable.

chasegirl · 11/05/2018 22:39

Hello. Diagnosed today with ductal carcinoma in situ. Operation booked for Thursday then will get 3 weeks radiotherapy at some point.

Mid 40s (just) single mom to DD10 but her dad is quite involved.

How do I deal with this with DD. She is already very anxious about not being with me. Worries greatly about me dying if she's not there so she I'd never happy about going to her dad's on his weekend incase I die when she isnt there.

How do I approach this???

iVampire · 12/05/2018 07:39

Hi, chasegirl

Sorry you’re here, but welcome.

Dealing with telling and supporting your DCs is one of the tough bits. MacMillan do a good leaflet on talking to children about cancer.

How much does she know so far? And have you had a chance to talk it through with your ex? This is one of the times when he needs to be fully briefed and a plan agreed for your DD’s benefit.

I found telling mine (teens) to be less bad than I’d expected once I’d got going. I waited until I had definite treatment plan, so it wasn’t just that I have cancer but also what they will do about it, majoring on what successful treatment would be like (ok, with a lot of ‘ifs’ because I didn’t want to tempt fate).

And I didn’t follow my own advice, as I told them a couple of weeks before I told their (rather peculiar) father. I might have done it earlier if I had been more concerned about how they reacted.

chasegirl · 12/05/2018 08:54

She doesn't know anything yet. Just spoke to her Dad he was pretty supportive and will do whatever I want or need

Mrspotter12 · 12/05/2018 09:46

I told my DD(9) that I was just having some tests, they'd cut my boob open have a look around and close me back up. She accepted this really well.

penguinsandpanda · 12/05/2018 10:12

Sorry to hear that Chase If it were me (and there's no right or wrong so please do what you feel best) I would let school know as well as Dad so there's back up support around, if there's a few other Mums that are nice tell them too when you are ready. I would tell your DD that you need an operation on Thursday but its not life threatening and you will need some more treatment later which will make you a bit ill but its medicine to make you better. If it was me I would say its cancer but explain not all cancer is life threatening and the type you have isn't. Tell her if she ever has any questions you will answers them the best you can.

There's no right or wrong but I prefer to be honest because kids will assume the worst, they will overhear other people/your conversations and they will panic if they have no-one to chat through worries with. Mine are 10 and 11 and I'm married and just going through tests but I've been through so many and been quite ill for 6 months (stuck in bed mainly after being quite active) so they guessed I had a terrible disease and was going to die. I've explained to them similar to above and they accepted it well - sometimes DD isn't convinced I am going to live so I've been through yes I am but even if I am not you will still stay living here in the house, can still go to same school, we will still have enough money for everything unless you all want to move elsewhere. She seemed OK with that and I think kids main worry is what would happen to them. I'm no expert though - I know my parents are adamant things should be kept secret so some people do the opposite.

WhatWouldLeslieKnopeDo · 12/05/2018 11:19

Hello chasegirl, but sorry you need to be here.

I’m sure your team will have more up to date stats but the chances of dying from DCIS are incredibly slim. Even invasive breast cancer has very high survival rates now when caught early. But obviously that isn’t really going to provide much reassurance to an anxious little girl.

It might be worth looking into whether there is any counselling available either through her school, GP or local charities. A friend’s daughter found this very helpful in dealing with her anxiety after her mum’s diagnosis.

There are various resources available about talking to children. I’m glad that her father is being supportive. Do you think it would be worth discussing with him to work out how best to approach it with her? You could even talk to her together, depending how amicable things are, so that she can see that you’re both on the same page.

Macmillan information

Don’t forget the kids the groups are in London but I think they send care packages to people elsewhere.

Good morning everyone. Still having technical issues but thinking of you all. Have a nice day :)

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