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Obese but with pretty normal legs / arms etc but very fat, enormous belly ***Ovarian cancer diagnosis - title edited by MNHQ at OP's request***

984 replies

TwitterQueen1 · 27/02/2017 15:00

Hi
I'd be glad of any advice or personal experiences here. I am around 4 stone overweight, so definitely obese. Most of it is on my stomach though, which now looks like I'm 11 months pregnant with triplets. I'm in my 50s so this is not a possibility. It's very painful and I am short of breath when I walk etc.

I've put on a lot of weight in a short period - 10lbs in 2 months.

Six months ago I was bodyboarding in the sea, walking every day and doing an exercise class every week. Now it's a struggle to do anything.

I'm having bloods done on Friday but any ideas / comments? Am I just unlucky to pile it all on in one place?

OP posts:
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OrlandaFuriosa · 19/05/2017 00:42

I wanted titian curls and all I got was brittle grey fuzz. Dammit.

I think dogwalkers don't really usually see the people behind the lead, they see the dog, and note there is a human, oh that's fido's owner but would be hard put to it to say whether you were male, female, a giraffe or a snail.

The downs are important. It's useful to know what triggers them, e.g. Tiredness, day 3 after chemo etc, stupid people, and to look out for them. It's useful to know what can restore your equilibrium. And how to say get lost to people in the nicest possible way. And reality is such a mix of thorns and roses as we all know that they do provide some sort of anchor as well ; if you were on a perpetual high the eventual clunk would be far worse, I think. They're also an opportunity to let people show how much they care: let them do so if you dare and can bear to.

Take care, you're being brilliant.

triplets · 19/05/2017 01:11

Hi just found this thread and wanted to say hello, read it all such a lot of lovely support on here. I saw my name mentioned so here I am! I was diagnosed last July, stage 1c2, had total hysterectomy in Aug. Then had 6 cycles of carboplatin, finished end of Jan. Ct on the 6th Feb but ended up in hospital a week later with a lung infection/pneumonia, that was worse than the surgery and the chemo put together. At the end of March I was told I am all clear, no evidence of disease.........then I developed fluid in my left foot and leg. Just this week been told its lymphedema, caused by the removal of lymph nodes for testing during the surgery. Its a chronic long term condition and I will have to wear support stockings indefinitely :( cant bear the thought of that as my feet get so hot and I live in flip flops or go bare foot! I felt sorry for myself when told, then looked at my poor husband who has battled his way through stage 4 bowel cancer since 2008, is in his 6th year of remission but was diagnosed with Parkinsons 2 years ago :( we have 19 yr old triplets, a girl and two boys, they were born after ivf treatment just before my 46th birthday! My first child died suddenly in 1994, he was almost 15, I miss him so very much. So many thoughts keep me awake a night, life has been very hard since Matthew died. I have had a lot of support on the Ovacome site, all ladies with OC, its far from being all doom and gloom on there, they make me laugh! I have my first 3 month check up next Tues and am already getting myself worked up, its a horrible horrible illness but I don't intend for it to take over my life...........good luck to you, and rest! xx

TwitterQueen1 · 19/05/2017 09:52

Hello Triplets Thank you for joining and sharing your story. And I'm so sorry to hear about your son Matthew. Your family has had a rough time Flowers

Orlando Thank you - and you're right. it's the dog that is the focus! I'm definitely a snail...

OP posts:
Chasingsquirrels · 19/05/2017 11:35

I just wanted to acknowledge your posts and rough days TwitterQueen and hope that you are feeling a little better today.
The walk thing is horrible, but it is so true that people just see the dog not the owner.
Be kind to yourself and let others around be kind to you as well.

Triplets - I've seen posts from you over the years, but not the full extent of the story which you have just posted. So many difficult things to deal with in your life. I hope that you and your DH remain cancer free. My mum has the support stockings since an infection about 5 years ago when she was 65. She doesn't mind them in the winter when they keep her legs warm and she is mainly wearing trousers, but as you say not so keen in the summer. It is something which she has just learned to live with though, and they are very effective - on the odd days when she doesn't wear them her legs are noticeably more swollen.

BarchesterFlowers · 19/05/2017 14:18

TQ good to read if your progress and that you are closer to an op. I was in your thread but then it disappeared off my list - not sure why I can't see it when I am logged in. I logged out to look for it today.

I went to my GP last week and said 'I just keep getting fatter'! Honestly, I do a bit of cycling an am starting to look like a MAMIL.

He phoned me the day after my blood tests CA125 is 100 and my platelets are high so I am not on the two week fast track to investigate potential OC. Bit of a shock as I expected just to be anaemic!

BarchesterFlowers · 19/05/2017 14:19

Now on not not on.

HmmOkay · 19/05/2017 14:29

Sorry to hear that, Barchester. Hope you hear back soon.

BarchesterFlowers · 19/05/2017 14:32

Does anyone know why I can only see TQ's thread if I log out - it isn't in threads you are on even now after posting again?

TwitterQueen1 · 19/05/2017 18:45

Shit shit shit Barchester
I understand normal CA125 is around 35 apparently.
Will be thinking of you.

No idea on the thread appearing / disappearing Confused

OP posts:
WhatWouldLeslieKnopeDo · 19/05/2017 18:51

Barchester it sounds like you might've accidentally hidden the thread. I'm not sure how you unhide them. I did the same once, but luckily it wasn't a thread I was particularly bothered about. Good luck with your tests Flowers

Twitter I hope you are feeling better today Flowers

BarchesterFlowers · 19/05/2017 18:53

I know TQ, 35 normal, GP said it was vvvv high for my age, 48.

Was your story that made me think/go though, seriously Flowers.

V scary, DD is only 10, the thought of being ill/not being there for her is devastating. Clearly I am absolutely bricking it.

We went cycling yesterday/today, I am really struggling on the hills these days (Lake District so many hills), again reminded me of your thread (which I still can't see).

Pleased to hear you are coping with it all, surgery is a massive step forward, once you have that behind you it will be great.

SallyGinnamon · 19/05/2017 19:04

Hi TwitterQueen. I was thinking about you today. Glad you're out and about.

Come and walk your dog on our field. We'll all say hello to you!

myrtleWilson · 19/05/2017 19:09

apologies for intruding (I have been lurking and send my very best wishes to you Twitter Queen and also to Barchester, Triplets and anyone else affected...)

In terms of hidden threads -hopefully this may work Barchester - go into customise (from drop down arrow next to Talk - on active) and scroll down and you should find an option to manage hidden threads...

much love to you all Flowers

BarchesterFlowers · 19/05/2017 21:09

Thanks myrtle and to the PM s, I can see your thread now TQ 👍🏻.

triplets · 19/05/2017 22:15

CA is not always reliable and can be raised for many reasons. Mine was 13 when they started running tests, so said I should be reassured by that. 3 weeks later I had a full hysterectomy and a 4.5cm tumour removed. They say they wont offer me routine blood tests as mine was not helpful in the first place! x

TwitterQueen1 · 28/05/2017 13:26

Feeling very sad today. People keep telling me how well I look. IT DOESN'T HELP! I'm not well. I'm sick and I'm scared and I'm angry.

OP posts:
HunkyDory69 · 28/05/2017 13:36

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

TwitterQueen1 · 28/05/2017 13:41

Thank you HunkyDory69 - A sympathetic ear is a comfort. I can't stop crying - the DCs are out / away, which is maybe why - I'm overdue for a cry.

OP posts:
HmmOkay · 28/05/2017 13:49

Nothing wrong with having a cry at all. Don't try to fight it.

P1nkP0ppy · 28/05/2017 13:52

((Hugs)) TQ, it's a bugger of a place to be isn't it? I'm not surprised you're scared, angry and upset, you're perfectly allowed to be so. It is hard work trying to put on a front all the time and even harder when you have DCs.
💐

flyright · 28/05/2017 14:23

What's the weather like where you are? Maybe a little sit in the garden would feel nice. There's something calming about nature and the outside. FlowersFlowers

BarchesterFlowers · 28/05/2017 15:31

Flowers TQ. You have dealt with the last couple of months amazingly well. Angry, scared, sad, treatment and the unknown is an awful lot to cope with and I think you wouldn't be human if you didn't have a major down day sometimes.

I think you are right, you are protecting your DC every day and today you don't have to.

Here's to your strength Wine, because you are strong. 🥜 Too, not quite a cashew but all I can find.

gonegrey56 · 28/05/2017 18:35

Thinking of you, and hoping having a good cry might have helped. Have you managed to join a group from your hospital ? i appreciate it might not be easy logistically or otherwise but I know from friends that this can be beneficial. So hard for you , it must be so frustrating when everyone says you are looking well and they haven't the first idea of what you are really going through . Sending a very un-mumsnetty hug to you

Itscurtainsforyou · 28/05/2017 20:14

TQ I've been wondering how you're doing. Crying is really fine. You're holding things together well, when you have this undercurrent of fear etc to deal with.

As with everything, people don't know what to say so clumsily say the wrong thing (I've done it myself because I just didn't think, was kicking myself after and have tried to never be so crass again).

Sending you GinFlowersCake - whichever fits right now.

Pennina · 28/05/2017 20:55

Delurking too to send WineFlowers and love. I noticed your original post right at the beginning last month as I had a similar physique and level of weight loss required and was so sorry to see the turn things took for you. So bloody cruel. I hope today improved a little bit for you. Your mind must be reeling. Thinking of you and sending love xx