I had a fit last night

[Ihadafit]

Just need some hand-holding and impressions.

My DP was woken up last night by me "having a fit" - me eyes were open and vacant, I was completely unresponsive and shaking violently.

I hope this isn't epilepsy etc. Thankfully I already have a GP appointment booked for this afternoon.

Really, really, scared...

I saw the neuro last week, and as expected have been referred for EEG (tomorrow) and MRI (probably 4 week wait).

As I know it is unlikely that the EEG/MRI will show anything definitive it's basically just a waiting game.

Waiting to see if I have any more, and in the meantime dealing with the complications of not driving.

I have started the process of surrendering my licence too. And looking at Au Pairs Agencies to tide us over for the next 6 months.

Sorry you're having such a difficult time of it Ihad

It's terrible that it took you a year to get a diagnosis lifesucks. Are you on treatment now? Has that helped?

ginger your attacks do indeed sound frightening, for yourself and others. I hope they manage to get to the bottom if it.

May be expressing concern as a non epileptic seizure can be related to an underlying health issue, sometimes heart related, or maybe even gallbladder if that is being queried.

Some people think that dissociative seizure means put on, this is totally not the case, just in case that is what you thought he meant.

Hope they can get to the bottom of this soon, your treatment so far had not been great.

I agree with pp, your treatment has been appalling. Frequent seizures lasting 15 minutes and the hospital discharges you, for you to have another seizure in their carpark. And still no treatment or investigations. I'll be honest with you op, I am glad I am not living where you are.
Hopefully the eeg this week will provide some answers but I would be seeking further advice re the abdo pain.

GP said see how it goes? Were you clear that you're in "severe" pain despite strong painkillers? He offered no other advice?
You've had unbelievably poor treatment OP from GP and hospital.
Excellent link gingeroots

That makes sense about "concern" ,thanksFanny .
Actually a 24 hour heart monitor test thingy is one of the things I'm waiting for .

EastCoast - I admire your stoicism ,you eastcoasters are made of stern stuff .

Thank you for the tip about hair -sorry can't remember your name !

Hoping we all have a quiet day !

Oh God! I am not stoical at all!!!! In tears almost every day and extremely anxious. Don't feel that comfortable being left on my own with the kids either.

(But thanks for saying I sound it ginger - means a lot )

re hair after an EEG - we found a nit comb was the best thing to get rid of the glue, especially with longer hair.

i'm on lacosamide (sp) now eastcoast, I was on keppra before my official diagnosis and I begged to be taken off it, my mood swings were awful.

I was ok
With keppra eventually but my first 2-4 weeks on it were horrific. I literally felt like I was going mad. Best of luck to those having investigations

Thanks life and Petal it is so reassuring to hear of others who are managing.

I'm not on any treatment now. Fx not had a fit for over 4 years

Had my EEG today. Waiting for results.

They did it resting, hyperventilation, tying to sleep and with strobe lights .

Felt really, really exhausted afterwards.

Is that normal?

Oh gosh that sounds daunting . I'm not at all surprised that you feel exhausted .

Hope the results don't take too long to arrive .
Were you sedated for the trying to sleep bit ?

Mine is on Thursday and I'm beginning to feel a wee bit worried .

Thursday too! Bricking it :( this time of year is fucking shit anyway... birthday soon too.... meh.

Good luck for your results EastCoast.

The technician who did the EEG was very reassuring and it wasn't bad at all. Just felt like hard work (when mainly lying down! )

I wasn't sedated, which it why it was so strange that I felt so tired afterwards. A bit likeI did for the day after the seizure. But I definitely didn't have another one. I asked.

Thanks EastCoast for your words of reassurance .I'm quite looking forward to being sedated .

I'm always exhausted after hospital appointments and the dentist - I think it's the apprehension ,being out of one's comfort zone and being in someone else's control .I always tense my muscles ( unconsciously ) and end up feeling like I need my bed .

I hope you managed to rest - not easy/doable with children .

I'm sure my episodes must be related to my state of mind .I had two minor blips yesterday where I was praying they wouldn't develop into a full blown attack . I think it's the tests making me think about all the time making me more anxious and more prone .I'm sure I'm not alone in that.

I hate that so much ,not being able to control my emotions and my body .
I'm off to google breathing exercises .

Ive been following this thread out of interest and very impressed at how you all cope so well. I noticed the mention of dissociative seizures and that a poster remarked that this means the doctor doesn't think they are really happening.
I read a fantastic book written by a neurologist about dissociative disorders called 'Its All in Your Head' by Suzanne Sullivan.
They definitely are happening but not caused by anything physiological. However, this is never diagnosed until exhaustive tests have been carried out to rule everything else out.
The book is very easy to read with case studies covering all sorts - highly recommend it
Good luck with all your tests.

Thanks lazymum ,I'll look at that .

I think the poster was actually saying that it wasn't the case that the doc didn't think the seizures were happening .
(if you can fight your way through my double negatives ! }

I saw you have ME OP - I had a diagnosis of fibromyalgia for years and anytime any odd symptoms came up I'd be told it's all to do with the condition without any investigation - including a vasovagal faint and 72 hrs of paralysis. You need good advocacy and to remind them that ME itself is seen as a neurological condition. Hope it all goes well!

Am back in hospital with severe abdo pain, it's either gallbladder and it's removal, or fucking pancreatitis.

No words.

Pancreatitis is one of the worst pains I believe. You poor thing. If morphine isn't working see if they can offer anything else.
Even gas and air.

The neglect in your care is astounding.

Plus how THE fuck did they miss pancreatitis?

Can I ask what part of the country you're in?

Sorry to read this op. But thank goodness someone is listening now.