I thought that I should post and say thank you to all the wonderful Mnetters who were involved in sending me the frozen food. It was so amazingly kind of you all, all the more so since I had been saying , no help, thanks
The food is in the freezer and will be a life saver on those days that we spend dashing round hospitals, seeing medics and waiting on medicines. And the MN foodies will be delighted to know that it is eve organic That did make me smile.
I don't know all of the people involved, but I do know that MI, Tamum, and Jimjams were all involved.....my profuse thanks and apologies to those of you involved who are unknown to me.
I won't pull any punches; this is the hardest thing I have ever had to cope with. DH is terribly thin, often in pain and vomiting. He has always been my true love and best friend, and I find it almost impossible to imagine life without him. If anything I love him even more now when I see him fight to make sure that the kids and I are financially 'sorted', that the garden is done, that people are told. He wants to die in a hospice so that the children don't have to see anything awful. How can you not love a man like that?
We have his care sorted out. The Macmillan nurses have met us, we have a care package set up with the GP, the Hospice will see us soon, I have support sorted out for the children, and for me after he dies. My school is being more than supportive. The RAF is doing all the right things. All of this is very hard to cope with, even though you know how important it will be.
But at the same time this has been a time of great joy. I am amazed by the kindness and goodness of people. Everyone has been so good to us, from the Macmillan nurse who looked me in the eye and said, 'We will control his symptoms so that he will live, and then die with dignity', to the lady who cleaned to ward and would tease him about tickling him with his duster, to my friends and family who don't know what to say, but say the right things anyway, and to the gentle kindness of women round Britain who I have never met.
I have always said that nothing is ever so bad that some good doesn't come out of it. This time has tested that theory to the utmost, but in the end I have to stand by what I said. This time has made me realise that people are good. Systems may suck, but people are at heart good and kind, and give each other support in the most awful of circumstances. And that thought will help me to cope 'the other side'.
This has to be the longest post I have ever made on MN, and I have even spell checked it . Thank you again for all your help. Have a wonderful Christmas and know that life, and people, are far more magnificent than we ever realise.